Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy
I am trying to find someone who is dealing with the same issues I have. I was diagnosed in 2000 with Hereditary Nerve Pressure Palsy, which is a very rare neurological condition. Also, falls under CMT. Then in 2018 I was diagnosed with CLL. My problem is many drugs are toxic to me and none of my doctors are fully knowledgable of HNPP. So I'm really terrified when I have to start treatment because we will not know if the drug will be toxic, which could kill me. So, I'm trying desperately to fine someone who have HNPP or CMT and CLL.