Repatha as a treatment for high HDL Cholesterol

Posted by sue225 @sue225, Tue, May 7 9:46am

Think I have posted this before but no feedback as of yet. Very interested in hearing from people who are on Repatha (evoculomab) to treat their high LDL levels. I am one of those patients.

Sue225: I've been on it for about 3 months without incident. Very convenient and my LDL dropped to 50. (below 70 required because of an event.) Triglycerides were 47. No more walking the line and trying to get it down a few more points. Best wishes. Repatha takes good care of you with convient calls to RN's and scheduled notices for taking the medication.

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@downhillbob

Sue225: I've been on it for about 3 months without incident. Very convenient and my LDL dropped to 50. (below 70 required because of an event.) Triglycerides were 47. No more walking the line and trying to get it down a few more points. Best wishes. Repatha takes good care of you with convient calls to RN's and scheduled notices for taking the medication.

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Thanks. I just saw the endocrinologist who prescribed Repatha. We use different measurements in Canada. However, 5 months later, my LDL is down by 50%. For any Canadians reading this it was, 6.18 (I know, scary high) and is now 3.26. (Total number is 6.07).
The doctor told me I will stay on this until something else comes along.
Not a lot of people are on it here. It is very expensive. My husband still has a company private plan so at the present time, I have coverage.
There arent enough positive stories on this site. So, thankyou for sharing. Its important for those searching for answers to their health problems not to be scared of conventional medicine. So again, thankyou.

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@sue225 I also have high cholesterol The n.p.pit me on Creator it is expensive but she said there's a generic with Co pay of 10.00 I won't get blood work done for a month yet but hope it brings it down Anyone ever use it?

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@lioness

@sue225 I also have high cholesterol The n.p.pit me on Creator it is expensive but she said there's a generic with Co pay of 10.00 I won't get blood work done for a month yet but hope it brings it down Anyone ever use it?

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I have heard of "Crestor" which is a statin. In fact, I took it at one time. However, I am one of those patients who can't tolerate statins.
My best friend's husband is a cardiologist and he had been on a statin for many years.

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@sue225 Isn't relates a statin?

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Repatha is not a statin. It's other name is evolocumab. It is a biologic. It is given by injection every two weeks.

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@sue225 But it lowers your cholesterol? If the Creators doesn't I,'ll ask my Dr about it then

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@sue225– I have been on statins for 15 years and I have tolerated some better then others and all seemed to have lower my cholesterol, but on my last trip to the Mayo in Scottedale, AZ. my cardiologist suggested I switch to Rosuvastatin (generic form of Crestor). I had been on 40 ml. of all the others prior, but he suggested to start with 20 ml and after 6 months all my numbers were way better. The one he was most wanting to drop was the LDL(L for lousy). It went from 86 to 68 in that time period. Jim @thankful

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@thankful

@sue225– I have been on statins for 15 years and I have tolerated some better then others and all seemed to have lower my cholesterol, but on my last trip to the Mayo in Scottedale, AZ. my cardiologist suggested I switch to Rosuvastatin (generic form of Crestor). I had been on 40 ml. of all the others prior, but he suggested to start with 20 ml and after 6 months all my numbers were way better. The one he was most wanting to drop was the LDL(L for lousy). It went from 86 to 68 in that time period. Jim @thankful

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It is wonderful and a relief when drugs do what they are designed to do and you can tolerate the medication.
As for me, Repatha seems to be doing the trick.

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@thankful

@sue225– I have been on statins for 15 years and I have tolerated some better then others and all seemed to have lower my cholesterol, but on my last trip to the Mayo in Scottedale, AZ. my cardiologist suggested I switch to Rosuvastatin (generic form of Crestor). I had been on 40 ml. of all the others prior, but he suggested to start with 20 ml and after 6 months all my numbers were way better. The one he was most wanting to drop was the LDL(L for lousy). It went from 86 to 68 in that time period. Jim @thankful

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@thankful That is great I hope mine will have dropped on the next blood work I have

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54 years old have been on statins for 20 plus years 80 mg Lipitor. Cholesterol ran between 180 and 230 started at about 320. Had a Calcium scan in Jan was 1200. No symptoms no previous problems no issues with statins. Family history piss poor. Dr started paper work for Repatha insurance accepeted been on Repatha for 2 months so far no side effects. Jan 28 Cholesterol 224 June 7- 84. HDL Jan -192 June – 54. Dr is impressed so far Im waiting for issues to crop up….seems to good to be true.

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@bigchevy

54 years old have been on statins for 20 plus years 80 mg Lipitor. Cholesterol ran between 180 and 230 started at about 320. Had a Calcium scan in Jan was 1200. No symptoms no previous problems no issues with statins. Family history piss poor. Dr started paper work for Repatha insurance accepeted been on Repatha for 2 months so far no side effects. Jan 28 Cholesterol 224 June 7- 84. HDL Jan -192 June – 54. Dr is impressed so far Im waiting for issues to crop up….seems to good to be true.

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What good news bigchevy. I have now been on Repatha for 10 months. So far nothing horrible has happened. Only the dramatic drop in LDL. With statins I had impossible to live with stomach pain. Life's a gamble. (and I go through it waiting for the other shoe to drop but so far so good). Wish you luck and continued low cholesterol readings.

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Repatha is fantastic for lowering overall cholesterol and LDL (bad cholesterol). Should be taken with a statin ..but you'll find your statin amount will decrease the more you use repatha. Been using it for almost a year and no problems

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Unable to tolerate statins. That's why I'm on Repatha. It does work well and lowers LDL quickly.

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@sue225

Unable to tolerate statins. That's why I'm on Repatha. It does work well and lowers LDL quickly.

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You are fortunate to be among those that can get the benefit of repatha without needing to take the statins. In my case, after completely going off statins as instructed by my cardiologist, I actually ended up with higher numbers than I did before. I then went back to 40mg Crestor and now trying to titrate to 10mg. My LDL dropped as low as 12.

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