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Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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piperandmax | @piperandmax | Mar 14 5:17pm
In reply to @heartfelt70 "I had the same side effects. Several times I thought I was going to die. I..." + (show)
@heartfelt70

I had the same side effects. Several times I thought I was going to die. I hurt all over as well, but never got dizzy. I am functional,but I know I would be better had I not had Reclast!
I ordered chlorophyll. It is mint flavored. Mix with water and drink. It cleans cells and works on whole body. I use a heating pad often. I had my infusion about three years ago. It was a poison to my body and I will never take it again.

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I've only had one because my former QUACK DR said I had Osteoporosis, when indeed, I had OSTEOPENIA!
I have all sorts of side effects from it!
I will NEVER take it again!
To me, it's POISON!

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piperandmax | @piperandmax | Mar 14 5:25pm
In reply to @vgen "I have been tired since my first infusion. However, it’s hard to take something out of..." + (show)
@vgen

I have been tired since my first infusion. However, it’s hard to take something out of my body that’s supposed to work for one year. My endocrinologist talked me into it too. What’s your primary care doc going to do? Stare at you and wonder why you are seeing her instead of the endo.

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I will NEVER put this POISON in my body again! Between CHRONIC hives, exhaustion, bone & joint pain, no way will I allow this in my body!
PLUS, my then "Quack Dr" misread my DEXA scan! I have had Osteopenia for over 15 yrs & still do, according to my new Dr who showed me the results!
He diagnosed me with SEVERE OSTEOPOROSIS!
I turned him in to the medical board, which was a TOTAL waste of time! Of course the Medical Board & CDC are going to side with "BIG PHARMA!"

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vgen | @vgen | Mar 14 9:29pm

All doctors seem to push bone drugs. Could all our bones be ready disintegrate and collapse on us someday? Now i am taking prednisone and that makes bones weak. Feel like i can’t win.

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vgen | @vgen | Mar 14 9:35pm

Yes, we can ignore till there are actually broken bones, then it makes the osteoporosis real

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1 reply
victor5211 | @victor5211 | Mar 16 6:11am
In reply to @normajean77 "I had very severe reactions to Reclast. The FDA insert said to expect some joint pain..." + (show)
@normajean77

I had very severe reactions to Reclast. The FDA insert said to expect some joint pain 2-3 days after, which I had. Then, things were ok for about a week and a half. Then, one morning, I woke up in severe joint pain ALL OVER! It was so bad, I could not get out of bed. Called my endocrinologist and of course, she said she’s never heard of this. I read the FDA Drug insert for Reclast and yes, there were a percentage of patients with this severe joint pain following the IV Infusion. All I can say is I will never, ever take that infusion again!
I believe each one of you saying you had pain after this infusion. It’s poisonous!

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I am so sorry about your dreadful side effects. And it's not your fault as drs do not tell us enough information or they are ignorant. I am trying to decide what drug to take after coming off Prolia. They are all poisonous.

How do these drug companies get a licence? In America the drug companies pay 60% to the FDA. In the UK it's 80% subsidised by the companies. I am trying to find out what percentage they pay our Australian Licencing Authority.

Do look up Dr Aseem Molhotra. He has become an activist against these drug companies. Brave man!!

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1 reply
kallettla | @kallettla | Mar 17 10:11am
In reply to @vgen "Yes, we can ignore till there are actually broken bones, then it makes the osteoporosis real" + (show)
@vgen

Yes, we can ignore till there are actually broken bones, then it makes the osteoporosis real

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I have seen people lose their quality of life and die a painful death from osteoporosis. In my family is genetic. I have lived my life trying to prevent it, with no luck. My sister has as well. We are so glad we live in a time when there is medication to help it. I wish I started it sooner, but I thought I could do more and more to prevent it. I couldn’t. I wish people understood that sometimes you can not do anything, and it is simply genetic.

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1 reply
gently | @gently | Mar 17 11:06am
In reply to @victor5211 "I am so sorry about your dreadful side effects. And it's not your fault as drs..." + (show)
@victor5211

I am so sorry about your dreadful side effects. And it's not your fault as drs do not tell us enough information or they are ignorant. I am trying to decide what drug to take after coming off Prolia. They are all poisonous.

How do these drug companies get a licence? In America the drug companies pay 60% to the FDA. In the UK it's 80% subsidised by the companies. I am trying to find out what percentage they pay our Australian Licencing Authority.

Do look up Dr Aseem Molhotra. He has become an activist against these drug companies. Brave man!!

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Thanks to the link to Molhotra, Victor.

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bluemoray | @bluemoray | Mar 18 11:51pm
In reply to @deedee49 "First time taking anything for osteoporosis. My endocrinologist wanted me to have Evinity but my insurance..." + (show)
@deedee49

First time taking anything for osteoporosis. My endocrinologist wanted me to have Evinity but my insurance won't cover it.

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I’m having the same issue. Aetna has one pathway to Evenity - must fail Prolia. Prolia is not an option medically.

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deedee49 | @deedee49 | Mar 19 5:28am
In reply to @kallettla "I have seen people lose their quality of life and die a painful death from osteoporosis...." + (show)
@kallettla

I have seen people lose their quality of life and die a painful death from osteoporosis. In my family is genetic. I have lived my life trying to prevent it, with no luck. My sister has as well. We are so glad we live in a time when there is medication to help it. I wish I started it sooner, but I thought I could do more and more to prevent it. I couldn’t. I wish people understood that sometimes you can not do anything, and it is simply genetic.

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I am 75 and I have osteoporosis of the lower spine. It's not always genetic I'm the only one in the family of 12 that have it.

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1 reply
kallettla | @kallettla | Mar 19 8:23am
In reply to @deedee49 "I am 75 and I have osteoporosis of the lower spine. It's not always genetic I'm..." + (show)
@deedee49

I am 75 and I have osteoporosis of the lower spine. It's not always genetic I'm the only one in the family of 12 that have it.

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I know it’s not always genetic. There are many causes for it, as Dr McCormick explained to me. I had Lyme disease for a long time and that could have contributed. As well as being 100 pounds most of our lives. But my dad was 170 pounds, so that didn’t contribute. It is great we have medical interventions for those of us who did everything right, but still ended up with osteoporosis. I know someone who could even ride in a car because going over a bump would cause a painful fracture. We are so fortunate these days, and, I expect, it will only get better for future generations.

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