Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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Very true. I had no issue with Evenity. I am preparing for the worst and hoping for the best. Thank you!

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I'm going for my first reclast infusion on Wednesday and now after reading everyone's comments I am NERVOUS!!! I was on prolia and now with the copays being $900 2x a year vs reclast copay $154 once a year I am going to have to at least try it. I just can't afford those copays anymore. Keeping my fingers crossed. Should I bring my warm snuggie to cover up with while the infusion is going??

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jovigirl1969, yes, bring your snuggie and a bottle of water. What I've heard is tylenol, zyrtec and hydration. If you can get a longer infusion it is easier on your kidneys giving them more time to process the bisphosphonate.
You might plan on taking it easy for a couple of days of feeling fluish. Some don't have that experience, I hope you are one of those.
The doctor who ran the clinical trials tells his patients to take two regular strength Tylenols with dinner and at bedtime the day of the infusion, with all 3 meals and at bedtime the day after the infusion, and a final dose with breakfast the 2nd morning after the infusion.
He also tells the infusion nurse to dilute the zoledronate and infuse it over an hour with the equivalent of two Tylenols, which you might take instead beforehand.
I'm glad you are getting off Prolia and in the safest way.

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@jovigirl1969

I'm going for my first reclast infusion on Wednesday and now after reading everyone's comments I am NERVOUS!!! I was on prolia and now with the copays being $900 2x a year vs reclast copay $154 once a year I am going to have to at least try it. I just can't afford those copays anymore. Keeping my fingers crossed. Should I bring my warm snuggie to cover up with while the infusion is going??

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Curious as to how your Reclast infusion went and how you are doing today, being a few days after infusion? Hopefully you had little to no side effects?

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I had my infusion a month ago
Since then 2 ER visits, cardiologist, CT scans, xrays
They can’t find anything wrong
I haven’t slept in two weeks and I have terrible pain in my upper back and chest
Does anybody have a solution to ease the pain
I am 77 and was fairly healthy and active
I am a crippled now screamingbofvpai

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reclastsufferer, I've heard that Claritin and Tylenol can help. I'm sorry you are having this reaction to the drug.
There isn't a way to remove reclast from your system. Some people take a steroid, even though it isn't good for the bones you are trying to protect, though a short course of 5mg is said by some to be less harmful than the inflammation sometimes caused by the drug.
I'm glad you've seen a cardiologist, because the location makes heart a suspicion. The negative effect should fade but the drug is long term. Is the prescribing physician involved? cooperative?

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I had fever the next day but other than that I was fine

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@reclastsuferer

I had my infusion a month ago
Since then 2 ER visits, cardiologist, CT scans, xrays
They can’t find anything wrong
I haven’t slept in two weeks and I have terrible pain in my upper back and chest
Does anybody have a solution to ease the pain
I am 77 and was fairly healthy and active
I am a crippled now screamingbofvpai

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I am truly sorry for what you are going through and can relate! I had my infusion almost 10 months ago and both shoulders are at their worst at night, waking me up 2-3 times a night. However, they are better than they were. I go to physical therapy biweekly and try to do his suggested exercises when I can. I also have this feeling of exhaustion at times and nausea often; I try to snack more than consume a whole meal seems to work. The exhaustion is normal due to lack of a nice deep sleep. My shoulders, like I said, are their worst at night. I have tried Tylenol and it doesn’t seem to help. Time has made them better, between that and my learning to deal with what I’m given. My endocrinologist called this week wanting to set up another infusion and I declined. Should I fall and break a hip, I’ll deal with it then. Try, I do mean, try physical therapy and also try to stay busy. Our minds are very powerful and a little pain can be felt as extreme. If we learn that there really is nothing broke and the pain is from the infusion. My hopes is that I can train my brain that I am okay until this Reclast hopefully, wears off! I wish you luck and whatever you do, do not give up, you are in control not the Reclast!

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@dannyandebbie

I am truly sorry for what you are going through and can relate! I had my infusion almost 10 months ago and both shoulders are at their worst at night, waking me up 2-3 times a night. However, they are better than they were. I go to physical therapy biweekly and try to do his suggested exercises when I can. I also have this feeling of exhaustion at times and nausea often; I try to snack more than consume a whole meal seems to work. The exhaustion is normal due to lack of a nice deep sleep. My shoulders, like I said, are their worst at night. I have tried Tylenol and it doesn’t seem to help. Time has made them better, between that and my learning to deal with what I’m given. My endocrinologist called this week wanting to set up another infusion and I declined. Should I fall and break a hip, I’ll deal with it then. Try, I do mean, try physical therapy and also try to stay busy. Our minds are very powerful and a little pain can be felt as extreme. If we learn that there really is nothing broke and the pain is from the infusion. My hopes is that I can train my brain that I am okay until this Reclast hopefully, wears off! I wish you luck and whatever you do, do not give up, you are in control not the Reclast!

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Thanks so much
I try to stay positive but is hard when I had to stop all activities and confined to a chair
I will try physical therapy
Thanks so much

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Just remember, you did not fall or get hurt so the pain is from the infusion! It is a lot like over doing an activity. Rest when you feel the pain and try not focus on the on it; even if it is talking to someone on the phone or playing a game of solitaire! My shoulders and especially my left foot burns so bad at times and I worry about how I am going to be able to mow my own lawn. I try not spending a lot of time focusing on this; I need to do it and that is that. Spending time focusing on how I am going to be able to mow my lawn is emotionally draining and I get discouraged. Therefore, I move away from it to something completely different. I know I probably sound a little off my rocker but I strongly feel that our brains are extremely powerful and are there to help protect us. Pain has always been an alarm to the brain to help protect us; we need to help the brain realize this pain is safe as we have not been physically injured to create this pain. Therefore, this pain is okay so the brain doesn’t keep triggering our thoughts that were unable to do anything due to the pain. It’s hard to explain, but I honestly now days know I am hurting but it don’t stop me from doing what I need to get done and hopefully the Reclast eventually will have less impact on my daily life! Lots of Good Luck! It does suck, but we will get through this and be able to enjoy life again!

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