Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Just two cents if I may! Do remember, endocrinologist are there to treat one’s “ Bone” density issues. After my Reclast infusion I shared with my endocrinologist what side effects I was / am experiencing. His response was that I should connect with my rheumatologist because he has never heard of Reclast causing my symptoms; muscle pain, nausea, exhaustion, just to mention a few. Well, hopefully with physical therapy the day comes that I experience less symptoms; no more injections for this person! Weigh out the pros and cons before you let someone talk you into something they must not know much about! In addition, should you decide the infusion is for you, hydration days before might be beneficial; drink lots of fluids! Good luck

REPLY
@dannyandebbie

Just two cents if I may! Do remember, endocrinologist are there to treat one’s “ Bone” density issues. After my Reclast infusion I shared with my endocrinologist what side effects I was / am experiencing. His response was that I should connect with my rheumatologist because he has never heard of Reclast causing my symptoms; muscle pain, nausea, exhaustion, just to mention a few. Well, hopefully with physical therapy the day comes that I experience less symptoms; no more injections for this person! Weigh out the pros and cons before you let someone talk you into something they must not know much about! In addition, should you decide the infusion is for you, hydration days before might be beneficial; drink lots of fluids! Good luck

Jump to this post

One thing I have decided is that I will insist on a low dosage if I go this route, which I most likely will at some point.

REPLY
@dannyandebbie

Just two cents if I may! Do remember, endocrinologist are there to treat one’s “ Bone” density issues. After my Reclast infusion I shared with my endocrinologist what side effects I was / am experiencing. His response was that I should connect with my rheumatologist because he has never heard of Reclast causing my symptoms; muscle pain, nausea, exhaustion, just to mention a few. Well, hopefully with physical therapy the day comes that I experience less symptoms; no more injections for this person! Weigh out the pros and cons before you let someone talk you into something they must not know much about! In addition, should you decide the infusion is for you, hydration days before might be beneficial; drink lots of fluids! Good luck

Jump to this post

You are not the first person to say your doctor said they've never heard of the side effects you had from Reclast, or side effects from some of the other osteoporosis medications. A simple google search lists the side effects you had along with many, many others. I have a hard time understanding how doctors can be so uninformed about the medications they prescribe.

REPLY

I have found that pharmacies are much better at knowing the side effect from a medication than a doctor; not sure why! On the other hand! I should have inquired way before the infusion as to what they were wanting to inject into my system and took the time to review the pros and cons. However, often times I find the potential pros outweigh the cons and we just go forward with the treatment; some are lucky and others not so lucky.

REPLY
@basole8

Please report to the FDA!!. I am amazed how many of us have had these long lasting debilitating side effects. Maybe there are changes that can be made change if we all report what is happening.
I hope you get some relief soon!

Jump to this post

I went on FDA website and wrote my report and there was no send button. Weird!!
I may have to call

REPLY
@annar

I went on FDA website and wrote my report and there was no send button. Weird!!
I may have to call

Jump to this post

Has our current administration done something to FDA? You might want to check

REPLY
@annar

I had a terrible autoimmune response from Reclast. I had the infusion almost 2 months ago and am still not 100 percent well. Severe acid reflux, acute colotis, heart rate issues. I’m in a constant state of being lightheaded. I’ve lost work and so much weight , which I couldn’t afford to lose. I’m still having many problems and am beginning to wonder if I’ll ever be the same again
I will never put anything like that in my body again. I’m 64 and feel much older since this.
I am a rare case, but it happens and there is very little information out there about these types of reactions.
I wish you well. Trying to keep a positive attitude that those of us who have had these reactions will recover fully. I’m thinking of contacting the FDA. Though not sure if it will matter or if they care.

Jump to this post

I am so sorry to hear this happened to you. I am fearful that I’m on the same path. I just had my first infusion last Tuesday and since then I’ve had the most debilitating headaches like screwdriver, twisting pain in my neck and head, weakness in my triceps, thigh, jaw, pain, random inflammation, causing my pinkies and ring fingers being painful to bad pain in my thumbs spasms in my thighs And I’m befuddled since nothing like this happened when I took the evenity shots for one year. I would have never agreed to take this infusion if I had known this was such a big possibility. My doctor’s office did nothing to prepare me for the visit. They did not tell me to take Claritin or hydrate or anything I just showed up the IV Persson literally made me bleed all over and then I had my infusion and off I went. I hope now that a few more weeks have gone by that you’re feeling better. Can you give us a report?

REPLY

I had all over body pain for a few days after but it went away.

REPLY
@naturallyj9

I am so sorry to hear this happened to you. I am fearful that I’m on the same path. I just had my first infusion last Tuesday and since then I’ve had the most debilitating headaches like screwdriver, twisting pain in my neck and head, weakness in my triceps, thigh, jaw, pain, random inflammation, causing my pinkies and ring fingers being painful to bad pain in my thumbs spasms in my thighs And I’m befuddled since nothing like this happened when I took the evenity shots for one year. I would have never agreed to take this infusion if I had known this was such a big possibility. My doctor’s office did nothing to prepare me for the visit. They did not tell me to take Claritin or hydrate or anything I just showed up the IV Persson literally made me bleed all over and then I had my infusion and off I went. I hope now that a few more weeks have gone by that you’re feeling better. Can you give us a report?

Jump to this post

After 2 months I’m finally feeling better. But not 100 percent yet. I have see cardiology for suspected POTS syndrome. I get very lightheaded still. It’s treatable but it never goes away. The most frustrating thing is my bone density is probably worse because I was so sick i barely moved for six weeks.
Terrible poison drug.

REPLY
@annar

After 2 months I’m finally feeling better. But not 100 percent yet. I have see cardiology for suspected POTS syndrome. I get very lightheaded still. It’s treatable but it never goes away. The most frustrating thing is my bone density is probably worse because I was so sick i barely moved for six weeks.
Terrible poison drug.

Jump to this post

I’m so sorry to hear you continue to have symptoms like this. I have osteopenia after Evenity so I’m thinking no more drugs for me on this. What are they suggesting you do? Or are you in a holding pattern since you still feel awful?

REPLY
Please sign in or register to post a reply.