Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@patient101

In addition to keeping your core warm, I will add that wearing a hat and a scarf will also help. Normally, a lot of heat is lost through the head.

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Thank you @patient101! The PA I work with in rheumatologist office echoed what you wrote and added a few more suggestions:
1. Keep core warm
2. Hat, scarf, and mittens on cold days
3. Use gloves when removing items from the freezer
4. Wear socks and gloves when you go to bed
5. Wear warm boots and warm socks in the winter months.
I have found all of these recommendations to be helpful.

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@grandmapark

have any of you used Magnesium to help?

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I have not tried this. Do you take it and find it helpful? If so, how many
milligrams and how frequently?Thank you.

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@savanah10

I have not tried this. Do you take it and find it helpful? If so, how many
milligrams and how frequently?Thank you.

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@savanah10 I don’t recommend using supplements unless you speak to your doctor about it first. You can easily get magnesium in your foods: leafy, green vegetables, nuts, seeds. If you magnesium level is OK, then extra can be a cause for concern. Studies are not complete, but so far they show some effects on the heart.
Can you speak with your doctor ?

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@grandmapark

have any of you used Magnesium to help?

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Absolutely Magnesium helps whether in pill form or a bath with Epsom Salts This I like to soak it in

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Heat Holder socks are my husband’s go-to all year long.

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@becsbuddy

@savanah10 I don’t recommend using supplements unless you speak to your doctor about it first. You can easily get magnesium in your foods: leafy, green vegetables, nuts, seeds. If you magnesium level is OK, then extra can be a cause for concern. Studies are not complete, but so far they show some effects on the heart.
Can you speak with your doctor ?

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Thank you. I will talk with the PA about this.

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Having done this 40+ yrs in upper Midwest it is challenging. I wear mittens w/hand warmers (instead of gloves), comfortable
Ugg-type boots around the house year round & in the car during summer w/air-conditioning. I am a socks-n-sandals person now! During very severe attack on feet, having someone give you a five minute massage of your feet may help circulation & get blood flowing. Does wonders! Outside in winter has become my nemesis-I just have to know my time limits & go inside BEFORE the raynauds strikes. Take heated blanket to hockey games, etc.

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Yes. It’s awful. Seems to be getting worse with age. Thank God I moved to Florida. But I go into grocery stores and my hands and feet burn. When I lived up north, I had ulcers on the bottoms of my big toes. Nothing really helps except bundling up and warm water !

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I’d love to engage on Raynauds

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I live in Vermont and use to suffer immensely from my Raynaud’s Syndrome. However, I discovered the benefits of beet root. I never ate beets as I don’t like the flavor. I purchased beet root powder and add a half tablespoon or so to juice. It really has helped!

As with all things, please clear it with your doctor. Also, I discovered through research that Raynaud’s can be ancillary to other autoimmune diseases. Unfortunately my doctor didn’t know that either. I have PBC which went undiagnosed, despite the symptoms I told my doctor about. I eventually ended up with end stage liver disease. Fortunately I received a second chance at life three years ago with a liver transplant.

Here is a link to an article on beet root and Raynaud’s.

https://pubmed.ncbi.nlm.nih.gov/31343948/
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