Raynaud's Syndrome: Anyone want to talk about Raynaud’s?
Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
sonnyforee10:
I've dealt with whole body dryness all my life. I use a body wash (Dove brand is my favorite) for showering, towel dry completely, paying close attention to areas between and under toes. A nickel sized dab of a thick emollient (but not petroleum jelly) is massaged over entire foot, starting with heels and ankles, then under and over, and finally between and over toes. A tiny dab more is rubbed at front end and over each toe. Gentle massage is essential for me since I have three neuromas that I don't want to "activate." I make sure that ALL is as rubbed in as possible. NO little gobs of moisturizer between toes. Then I rub up toward ankle and continue up the leg, because it just feels good😊 and it finishes spreading out whatever emollient might still linger in my palm. I have a pair of non-binding socks right there beside me, ready to put on and then my comfortable pair of what I call "in-house shoes" (actually a pair of super comfy no-lace-up Skechers). Voila! My feet are ready to provide me "transportation" throughout the day. I NEVER go barefoot for a couple of reasons: (1) hurts like hell to walk on hard surfaces of tile or wood floors (2) I broke two toes while being barefoot and I don't want to ever experience that again.
You ask about "too moist": Not sure what you mean, but if you prefer to use a liquid cream, again make sure that it is well worked all over each foot, and that you don't leave any between toes. As I wrote elsewhere, you do not want to provide a moist environment in which bacteria can take residence and give you additional problems.
Another point: Yes, I've endured Raynaud's in both hands and feet for several decades now (as well as peripheral neuropathy, both which have intensified as I aged (now 76). I wear socks ALL the time, ALL year round, and yes, feet are covered with thick non-binding socks at bedtime. When I was placed on metoprolol succinate extended release about 25 years ago, the drug affected the Raynaud's, and while my wonderful, much-appreciated rheumatologist wanted the cardiologist to change the medication, no, that was the one to deal with my pressure and arryhthmia. (That specific medication can effectuate Raynaud's, and if you already have that disorder, the heart mediation can exacerbate the Raynaud's.) Solution: cut the dose from 100 mgs twice per day down to 50 mgs, thus reducing from 200 mgs to 100 mgs per day. That helped tremendously. However, the condition still exists, can get nasty at times with horribly "iced" fingers and toes (especially the fingers), gray to almost black color, and soles of feet become black, along with slightly less black toe nails and toes. Scary. Painful. Upsetting. I bought 6 pairs of stretchy gloves on Amazon (in different colors) that I wear as needed, even in warm weather. Hey, you gotta do whathagottado😁!
I have had rynauds for over 15 years, your toes and fingers turn white and always feel cold, very painful to go outside in the winter even with gloves, never had sores of any kind, it’s a circulation problem, dr only said be careful of frost bite