Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

I have had rynauds for over 15 years, your toes and fingers turn white and always feel cold, very painful to go outside in the winter even with gloves, never had sores of any kind, it’s a circulation problem, dr only said be careful of frost bite

I was diagnosed with Reynaud’s 20 or so years ago after my fingers were turning blue or white driving at night, cutting fruit in a cold kitchen, etc. I have celiac, so fits the cluster idea. Good news is its severity comes & goes depending on my overall immune health —I’ve had periods where 65 degrees triggers discoloration, pain & weakness —a wet vegetables in cold produce section would leave my fingers purple for 2days. But currently my cold tolerance is pretty good…

Hi! How do I join this particular group rather than the Autoimmune?

Hello, I am confused as to what is going on with my body! Does anyone have pins and needles and muscle cramps with Raynaud's?

Yes, in my hands.

I've had it for 15 to 20 years. Must be a mild case because it really doesn't affect my life. Fingers only...they turn, white, then blue then red and extreme numbness. Avoid cold at all cost. Mittens a must by October.

I’ve had raynauds for about 19 yrs., I have white fingers , purple or reddish at different times if I get cold. I have also had pain in my feet and ears that is similar. I have used hand warmers which you can buy on amazon that seem to help and also a heated steering wheel ina vehicle, when opportunity arises.
I try to avoid cold and dress warmer, keep temperatures warmer in home.
I guess I have learned to cope, but can still be painful!

Agree hardwares are a godsend

I’ve had it since my mid 20s, 40+ years, same time my fibromyalgia and lupus was diagnosed. Later on it was figured out that it was drug induced lupus from a beta blocker so it was discontinued. I was prescribed gabapentin for the last 15 yrs, after I was diagnosed with coldpressor syndrome, a micro vascular condition. I also have small blood vessel disease in my brain, fairly common in older people. I still have to keep my hands out of the freezer, cold water and weather as it’s so painful. If I don’t stay on gabapentin the throbbing pain in my thumbs is continuous no matter what the weather or activity and it’s unbearable. Wish they would come up with something else

I have recently been diagnosed with Raynaurd’s disease after my big toe became red and very painful. My primary put me on amlodipine. My foot doctor said wear socks. Neither told me it was an autoimmune disease or that it would not go away! The nurses at my foot doctor explained it was associated with RA. Should I see a rumotologist? I am at a lose at the doctors not responding more.