PSC of the liver

Hi my husband was diagnosed with PSC 15 months ago. Unfortunately we hae now seperated due to his unrasonable, agressive and abusive behaviour. We were together a long time so i am wonering if the PSC could have anything to do with the personality change? I asked my / his gp and he said no PSC would not explain his behaviour.

Hi! I am going back this weekend for a second ERCP, labs, cancer sweeps and a colonoscopy. First visit 8 weeks ago was good with no cancer found. I have had PSC at least 15 years since diagnosis and just had serious symptoms and bad labs crop up in January, 2012. Liver hurts, chills , fever and abdomen pain and discomfort that does not end. I am hoping they will remove more infection this trip and i can reach another satisfactory plateau. If one has a transplant , was the probability pretty good at getting a liver at mayo? Did you have cancer too? Even with insurance the cost is daunting. I am happy to find some other peers to visit with. Rod Edwards

Rosemary, thank you for your responses. I have several questions: How soon after diagnosis did your serious continuous jaundice, and extreme fatigue set in? How did your actual liver feel? How soon after these worsening feelings was your transplant done? How did your MELD scores progress? How did they talk to you about availability of a liver Were you on any other hospital transplant list?After my May visit this year, my energy and strength returned . My liver tests are still in the 300 ranges but bilirubin and CA19-9 tumor test are way down.
I am in year 15 after diagnosis. I have dormant(for decades) ulcerative colitis too. So far no cancer anywhere. Mayo docs say I am at intermediate stage in transplant process. I may go on transplant list in Fall. How fast can the liver deteriorate? Do I have 3-5 years if all conditions stay stabilized before transplant?
I look forward to communicating. Lots of questions fro me! Rod

I had a liver transplant in 2003 from having PSC at Indiana University Hospital. Any questions on pre or post are welcome. Was on transplant list for 6 years.

There is no way to know how long liver may last, when it does go south, it happens very fast.

Tim , thx for responding. How long from diagnosis did you 6 years started on list? I am at 15 and not on list yet. But this year after many regular years, has been tough with more and staying fatigue and feelings of nausea. I get more sudden fever and chills. I am finding it challenging to focus at work? How bad was your fatigue? How did your numbers generally change prior to getting on list? Did symptoms come and go ? How did they progressively worsen?When did they figure u were ready for list and how did u progress on list? I worry how much worse my fatigue and nausea will get. I am 61 and wanting to work to 65.