Prolia treatment for osteoporosis

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

@kathy2016

Hello I have the same question the prolia.Mri shows ostaporois measuring T2 -2.5 I SUFFER FROM REOCCURING DEPRESSION,STIFF JOINTS,BACK PAIN,OFF BALANCE,AT TIMES FALL . MY 2 ND DOCTOR STATED HE DID NOT WANT ME TO HAVE THIS DRUG, I HAVE THE SIDE EFFECTS.I very fatique,swelling in feet and ankles,Lowe and middle back pains.As well they found lesion on my brain. The radialgist stated all leads to MS. So I have a nerorolgist who feels he needs another MRI to be conclusive! I’m getting very upset,memory loss, unstable.Doctors have not let me work now going on 2 years. I’m very confused, I know they keep stating all these issues but no one is listening to me. I know my body, depression itself hurts,(anxiety panic attacks PTSD due to a rape,where I was left for dead! I give up. I would think 2 specialists would at least show me the MRI findings, for which I gave them both a copy.I don’t know the serverty of my own health @ 58 ! I’m lost getting upset, it’s one or the other daily!

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Are you lifting items? Bags filled with groceries? Twist or turn – be careful. Think abrupt movements i.e., have you reduced routine habits? Note don’t jump out of bed, but sit up for a minute, then go. To the best of my knowledge Prolia doesn’t cause severe pain. I believe wear and tear is the key during the aging process. I agree with Jaleen; practice gentle, low impact maintenance.

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@kathy2016

Hello I have the same question the prolia.Mri shows ostaporois measuring T2 -2.5 I SUFFER FROM REOCCURING DEPRESSION,STIFF JOINTS,BACK PAIN,OFF BALANCE,AT TIMES FALL . MY 2 ND DOCTOR STATED HE DID NOT WANT ME TO HAVE THIS DRUG, I HAVE THE SIDE EFFECTS.I very fatique,swelling in feet and ankles,Lowe and middle back pains.As well they found lesion on my brain. The radialgist stated all leads to MS. So I have a nerorolgist who feels he needs another MRI to be conclusive! I’m getting very upset,memory loss, unstable.Doctors have not let me work now going on 2 years. I’m very confused, I know they keep stating all these issues but no one is listening to me. I know my body, depression itself hurts,(anxiety panic attacks PTSD due to a rape,where I was left for dead! I give up. I would think 2 specialists would at least show me the MRI findings, for which I gave them both a copy.I don’t know the serverty of my own health @ 58 ! I’m lost getting upset, it’s one or the other daily!

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How can you say that Prolia doesn’t cause severe pain? I googled Prolia just now and this popped up: “Common side effects of Prolia include low calcium levels (especially if you have kidney problems), weakness, constipation, BACK PAIN, MUSCLE PAIN, PAIN IN YOUR ARMS AND LEGS, anemia, diarrhea, or skin problems (eczema, blisters, dry skin, peeling, redness, itching, small bumps)”. I have read on other sites that Prolia can also cause loss of jaw bone and loosening of teeth. This happened to a friend of my daughter-in-law who had been on Prolia. She lost part of her jaw along with teeth and caused her to miss almost a year at work. .
I often have pain in my back but I almost never take a pain pill. Instead, I go the gym and use the treadmill and other exercise machines that will strengthen the muscles in my shoulders, back and legs. I almost always go home pain free. My last bone scan showed that my bones “were stable”, i.e., no additional bone loss from the scan taken two years earlier. My doctor now agrees with my decision to say “no” to all bone drugs. Why aren’t doctors pushing exercise and diet instead of so many drugs?

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I WANT TO THANK THOSE WHO REPLIED TO MY ISSUES WITH MY CONCERN OF THE DRUG Prolia I REFUSED THE DRUG FOR THE LAST TIME. I’m still concerned ,in pain falling,dizzy,fatique,confused,bone indensity is a T2 -2.5.Truly no doctor has stated that’s a good or bad score? I now have 9 doctors no one is on the same page.My neck,middle part of my back,lower,legs cramp,numbing of fingers ,again CONFUSION I feel it’s more than ostaporois! I’m tired of being passed around doctor to doctor.Bone density test showed high risk factor, MRI tested for MS, lesions white matter found, I’m so tired confused I don’t have much more strength.Yesterday I went to a orthopedic he looked at all MRIs and stated you have alot going on,ordered a cane/ walker for home, then turned me over to another doctor.My body is sick to me,humped over,I truly can take all this doctor to doctor daily, it’s been years, nothing can be determined! I know my body this is not normal.If these doctors knew how scared I am being 58,alone no support system,as well as severe reoccurring depression(which doesn’t help) I’d pray instead of just taking insurance money ,I could find help.I look at all these side effects,I don’t see a way out.I have all signs of MS,and ostapenia/ and ostaporois,I’m getting worse daily,crumbling daily, I feel ugly with this hump figure of mine, THE PAIN IS UNBEARABLE, BLOOD WORK IS FINE, IM ON CALCIUM/ D 2 TIMES DAILY, I ASK AND PRAY TO GOD WHEN WILL THEY FIND THESE ISSUES!FOLIC ACID,B12 4 TIMES A MONTH VIA SHOT. I DONT FEEL ANY DIFFERENT.JUST WORSE EVERY MORNING I WAKE. THERE SOMETHING THEY ARE NOT LOOKING AT,OR FOR IM TIRED OF TELLING THEM ,I SHOULD JUST GRAB A BRICK AND TALK TO IT,BACK TO TODAY FOR ANOTHER B12 AND COME BACK HOME TO ANOTHER SAID MISERABLE DAY!!!MY HEALTH IS IMPORTANT TO ME,I FIND GOOGLE TO BE MY DOCTOR ,SO SAD!

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@kathy2016

I WANT TO THANK THOSE WHO REPLIED TO MY ISSUES WITH MY CONCERN OF THE DRUG Prolia I REFUSED THE DRUG FOR THE LAST TIME. I’m still concerned ,in pain falling,dizzy,fatique,confused,bone indensity is a T2 -2.5.Truly no doctor has stated that’s a good or bad score? I now have 9 doctors no one is on the same page.My neck,middle part of my back,lower,legs cramp,numbing of fingers ,again CONFUSION I feel it’s more than ostaporois! I’m tired of being passed around doctor to doctor.Bone density test showed high risk factor, MRI tested for MS, lesions white matter found, I’m so tired confused I don’t have much more strength.Yesterday I went to a orthopedic he looked at all MRIs and stated you have alot going on,ordered a cane/ walker for home, then turned me over to another doctor.My body is sick to me,humped over,I truly can take all this doctor to doctor daily, it’s been years, nothing can be determined! I know my body this is not normal.If these doctors knew how scared I am being 58,alone no support system,as well as severe reoccurring depression(which doesn’t help) I’d pray instead of just taking insurance money ,I could find help.I look at all these side effects,I don’t see a way out.I have all signs of MS,and ostapenia/ and ostaporois,I’m getting worse daily,crumbling daily, I feel ugly with this hump figure of mine, THE PAIN IS UNBEARABLE, BLOOD WORK IS FINE, IM ON CALCIUM/ D 2 TIMES DAILY, I ASK AND PRAY TO GOD WHEN WILL THEY FIND THESE ISSUES!FOLIC ACID,B12 4 TIMES A MONTH VIA SHOT. I DONT FEEL ANY DIFFERENT.JUST WORSE EVERY MORNING I WAKE. THERE SOMETHING THEY ARE NOT LOOKING AT,OR FOR IM TIRED OF TELLING THEM ,I SHOULD JUST GRAB A BRICK AND TALK TO IT,BACK TO TODAY FOR ANOTHER B12 AND COME BACK HOME TO ANOTHER SAID MISERABLE DAY!!!MY HEALTH IS IMPORTANT TO ME,I FIND GOOGLE TO BE MY DOCTOR ,SO SAD!

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I’ll be praying for you, Kathy.

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@kathy2016

I WANT TO THANK THOSE WHO REPLIED TO MY ISSUES WITH MY CONCERN OF THE DRUG Prolia I REFUSED THE DRUG FOR THE LAST TIME. I’m still concerned ,in pain falling,dizzy,fatique,confused,bone indensity is a T2 -2.5.Truly no doctor has stated that’s a good or bad score? I now have 9 doctors no one is on the same page.My neck,middle part of my back,lower,legs cramp,numbing of fingers ,again CONFUSION I feel it’s more than ostaporois! I’m tired of being passed around doctor to doctor.Bone density test showed high risk factor, MRI tested for MS, lesions white matter found, I’m so tired confused I don’t have much more strength.Yesterday I went to a orthopedic he looked at all MRIs and stated you have alot going on,ordered a cane/ walker for home, then turned me over to another doctor.My body is sick to me,humped over,I truly can take all this doctor to doctor daily, it’s been years, nothing can be determined! I know my body this is not normal.If these doctors knew how scared I am being 58,alone no support system,as well as severe reoccurring depression(which doesn’t help) I’d pray instead of just taking insurance money ,I could find help.I look at all these side effects,I don’t see a way out.I have all signs of MS,and ostapenia/ and ostaporois,I’m getting worse daily,crumbling daily, I feel ugly with this hump figure of mine, THE PAIN IS UNBEARABLE, BLOOD WORK IS FINE, IM ON CALCIUM/ D 2 TIMES DAILY, I ASK AND PRAY TO GOD WHEN WILL THEY FIND THESE ISSUES!FOLIC ACID,B12 4 TIMES A MONTH VIA SHOT. I DONT FEEL ANY DIFFERENT.JUST WORSE EVERY MORNING I WAKE. THERE SOMETHING THEY ARE NOT LOOKING AT,OR FOR IM TIRED OF TELLING THEM ,I SHOULD JUST GRAB A BRICK AND TALK TO IT,BACK TO TODAY FOR ANOTHER B12 AND COME BACK HOME TO ANOTHER SAID MISERABLE DAY!!!MY HEALTH IS IMPORTANT TO ME,I FIND GOOGLE TO BE MY DOCTOR ,SO SAD!

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I am so sorry that you are going through this. I will be praying for you to find some answers.

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My prayers are with you. Sounds like they’re sending you through the system. Do you have one doctor in the group that you can talk to and have respect for his or her opinion? If so listen. With many involved you’re going to get different opinions and few really know your body. Someone needs to listen to you. Write down your questions and symptoms and present them. I understand about the back changing. I have the same problem. Friend, it is what it is. I can tell you still have a good mind and this is something to be thankful for. Time for you to take charge. You have to trust someone so make a decision. God bless you.

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@kathy2016

I WANT TO THANK THOSE WHO REPLIED TO MY ISSUES WITH MY CONCERN OF THE DRUG Prolia I REFUSED THE DRUG FOR THE LAST TIME. I’m still concerned ,in pain falling,dizzy,fatique,confused,bone indensity is a T2 -2.5.Truly no doctor has stated that’s a good or bad score? I now have 9 doctors no one is on the same page.My neck,middle part of my back,lower,legs cramp,numbing of fingers ,again CONFUSION I feel it’s more than ostaporois! I’m tired of being passed around doctor to doctor.Bone density test showed high risk factor, MRI tested for MS, lesions white matter found, I’m so tired confused I don’t have much more strength.Yesterday I went to a orthopedic he looked at all MRIs and stated you have alot going on,ordered a cane/ walker for home, then turned me over to another doctor.My body is sick to me,humped over,I truly can take all this doctor to doctor daily, it’s been years, nothing can be determined! I know my body this is not normal.If these doctors knew how scared I am being 58,alone no support system,as well as severe reoccurring depression(which doesn’t help) I’d pray instead of just taking insurance money ,I could find help.I look at all these side effects,I don’t see a way out.I have all signs of MS,and ostapenia/ and ostaporois,I’m getting worse daily,crumbling daily, I feel ugly with this hump figure of mine, THE PAIN IS UNBEARABLE, BLOOD WORK IS FINE, IM ON CALCIUM/ D 2 TIMES DAILY, I ASK AND PRAY TO GOD WHEN WILL THEY FIND THESE ISSUES!FOLIC ACID,B12 4 TIMES A MONTH VIA SHOT. I DONT FEEL ANY DIFFERENT.JUST WORSE EVERY MORNING I WAKE. THERE SOMETHING THEY ARE NOT LOOKING AT,OR FOR IM TIRED OF TELLING THEM ,I SHOULD JUST GRAB A BRICK AND TALK TO IT,BACK TO TODAY FOR ANOTHER B12 AND COME BACK HOME TO ANOTHER SAID MISERABLE DAY!!!MY HEALTH IS IMPORTANT TO ME,I FIND GOOGLE TO BE MY DOCTOR ,SO SAD!

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Someone – there must be someone able to help – a nerve specialist – someone to provide the care you need. I hope so. Blessings.

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@JustinMcClanahan

Hello @veriska, @crenhov, @ritafarmer, and @cairnmama, welcome to Connect and thank you for posts about Prolia for osteoporosis. Thank you for jumping in and addressing @veriska‘s concerns about the side effects of Prolia.

I would like to also invite @kayelle, @tessie, @dolan, @janicec8957, @donna13, and @jaleen, to share their experiences with taking Prolia for osteoporosis in this discussion as well.

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Have you been tested for lupus? Symptoms same.

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I was diagnosed with osteoporosis after a ankle stress fracture. After taking fosomax for five years i thought it was time to be changed to a different medication because my bone density was stlll declining. My regular doctor sent me to a rheumatologist who luckily starting running a lot of blood work mainly because I developed osteoporosis at a young age. Also a 24 hour urine test was done that came back with high calcium levels. I was then sent to a endocrinologist who diagnosed me with hyperparathyroidism which explained the osteoporosis at a young age. I have now had surgery to remove the parathyroid gland that was enlarged and have started Prolia. Have been on it a year and half. Am waiting for results from bone density done last week.

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My insurance just approved me for it so I will be starting it soon.

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@gabesmom594

My insurance just approved me for it so I will be starting it soon.

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There is a Prolia copay card that you can apply for. My doctors office told me about it, and received info from drug rep. Go online and research it. After the insurance pays, Prolia will pick up everything but $25.00.

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Hi, My mom is 87 and has very few health problems, aside from osteoporosis and slightly elevated blood pressure. Her Dr. wanted her to start Prolia and I also read some pretty terrifying stuff online. However, because she is 87 and has a great risk of falling, combined with the fact that my mom\'s dr\'s office has so many people on Prolia – they do over 100 shots per month – and they have never seen a worse side effect than a skin rash, we decided to go ahead. She had her first dose about a month ago and so far so good. If that changes I will update here. She will have a shot every 6 months. She\'s also doing PT to get generally stronger as well as improve her balance.

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