PogZ

Posted by lyndacarroll88 @lyndacarroll88, Apr 20, 2019

Hi my son was diagnosed with pogz in 2016 I just wanted to no If anyone here has connections in this field I really would like to no if anyone has any information on it thank you

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Ethan McConkey, Moderator | @ethanmcconkey | Apr 21, 2019

Hi @lyndacarroll88 and welcome to Connect.

I wanted to introduce you to fellow Connect members @rachelfromnl @lisapraska and @jennsprung as they have mentioned POGZ in the past and may be able to offer you support.

I also wanted to share these discussions as they may be helpful:

White -Sutton Syndrome - https://connect.mayoclinic.org/discussion/white-sutton-syndrome/

Anyone with keutel syndrome - https://connect.mayoclinic.org/discussion/anyone-with-keutel-syndrome/

Back to you @lyndacarroll88 has your son shown any symptoms since this diagnosis?