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Please any of my fellow PVC Warriors please help me feel better
I have really bad days where I have 500 to 700 PVCs a day and it’s debilitating I feel like my quality of life has gone down and I have six kids that I’m trying to raise five boys you can imagine the stress, but it gets to the point where I feel like giving up sometimes it’s so hard. I’ve seen every doctor. You can imagine. I have an electrophysiologist a cardiologist a PCP a psychiatrist a psychologist a therapist. I’m on 25 mg metoprolol morning the night and .5 clonazepam up to three times a day as well as magnesium and potassium supplements. I also drink hydration packets once or twice a day and a lot of water. I’ve given up all caffeine. I haven’t drank alcohol in 15 years. I just don’t understand anymore. What to do. I feel so defeated because I’ll go three weeks with one or two here and there too a week like this past week where they’re every minute to two minutes and it just is so so distracting and disheartening.
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@anjimlynch
Has your cardiologist mentioned magnesium? My EP suggested 400 mg of citrate.
There are a lot of medications out there that help with PVCs. I am on one that really helped reduce tachycardia and PVCs.
I known and have been told by my EP that stress and anxiety will cause PVCs. I have found that so true after I lost my 12.5 year old coca poo to auto immune disease that attacked his platelets.
Man did my PVCs go up.
@jc76 thank you for your reply !! Yes he did mention magnesium and I’ve been nervous to add to my metoprolol. Have you had any blood pressure issues ? Mine is fairly low at about 99/67. They pretty much dismiss my high blood pressure.
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1 ReactionHave you considered a catheter ablation for PVC's? I had a PVC burden of around 30% - then a PVC ablation two years ago. The PVC's are gone. Lots of literature about this procedure online, and/or speak to your electrophysiologist.
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1 Reaction@anjimlynch
My doctors; heart failure, EP, PCP, said 400 mg of magnesium was a safe level to take for my PVC issues.
I am on so many medications: Entresto, Carvedilol, Mexiletine, as well as others for other reasons. My normal blood pressure with these medications (which reduced it dramatically) is low normally 90/60. However when my weight goes up like now it goes up to 100/70.
My heart failure doctor becomes concerned when I lose weight as my BP will fall to 90/60. At that point he says if goes lower he will separate the times I take my heart medication but no mention of magnesium. He is concerned with dizziness when standing.
I take the magnesium for PVCs. Ask your doctors about taking magnesium as they are the only ones who have your full medical history and can advise if something will affect you personally.
I will thank you 😊 very much !!!!!
@jc76 what form of magnesium do you take?
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1 Reaction@jc76 I know what it is like to have bp of 90 / 60 without meds. I have googled the side effects of meds you are taking and you say you are taking more. Your doc is concerned about dizziness, yet the meds he is prescribing are a side effect.
I do not know what age you are, I am 77 and take none.
You need to start taking personal responsibility for your health. I would be surprised if your original symptoms are not due to horrible diet. In my OPINION, the meds and bad diet will be the end of you if you do not start obtaining information and make changes. Eat the foods that contain magnesium. That is the problem, you believe you can swallow pills, follow blindly what a heart failure doctor says when he has you taking a bunch of drugs and you will be getting better instead of worse.
Two things that brought my PVC's down from 20+% to < 1%, were an ablation and at the same time reseting my pacemaker from 80 to 60 bpm. I'm not sure which helped the most.
@kpryor1982 0.9 is way too low. Get it up to around 5.0 and see if your symptoms ease. Also 0.9 should be contributing to your weight loss. In simple terms Hyper = slim, hypo = fat. Another challenge in finding the right level for TSH. However 5.0 is still borderline and shouldn't be too high. I dont have a thyroid it having been removed for cancer nodules 35 yrs ago. Last year I found that my doseage of 175 microg was too much whereas 150 was too little so I found a sweet spot at 162.5 (daily). My PCP has worked with me on Rxs plus TSH tests but I took the lead on this one as he seemed clueless as to the relationship between thyroid and Arrythmias. EP didn't have much to add other than 'keep your TSH as high as possible' ; he didn't give me a target number.
@lindy9 As a followup to your good advice, I recommend "The AFIB Cure' by Day and Bunch. I purchased my copy from Amazon for less than $20. Lots of practical things regarding diet, activities, health monitoring. The premise of the book is that one can be AFIB free without meds or surgery if you follow healthy habits. Keeping a healthy weight and getting plenty of exercise are two biggies but there's also info about magnesium, potassium and other diet enhancements. But there's also a good description of ablation. Ablation knowledge is progressing rapidly so even this fairly recent book may be dated.
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