Please any of my fellow PVC Warriors please help me feel better

Posted by kpryor1982 @kpryor1982, Jan 17 11:47pm

I have really bad days where I have 500 to 700 PVCs a day and it’s debilitating I feel like my quality of life has gone down and I have six kids that I’m trying to raise five boys you can imagine the stress, but it gets to the point where I feel like giving up sometimes it’s so hard. I’ve seen every doctor. You can imagine. I have an electrophysiologist a cardiologist a PCP a psychiatrist a psychologist a therapist. I’m on 25 mg metoprolol morning the night and .5 clonazepam up to three times a day as well as magnesium and potassium supplements. I also drink hydration packets once or twice a day and a lot of water. I’ve given up all caffeine. I haven’t drank alcohol in 15 years. I just don’t understand anymore. What to do. I feel so defeated because I’ll go three weeks with one or two here and there too a week like this past week where they’re every minute to two minutes and it just is so so distracting and disheartening.

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Profile picture for 713j @713j

@jc76 what form of magnesium do you take?

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@713j
I take 400 mg of Citrate. My EP recommended the citrate as said is easily absorbed. He said that the Glycimate would be next as is also highly absorbable.

Some take magnesium to help with bowel movements as helps with fluids in bowels. However the citrate formula can issues for some as so easily absorb. I don't have this issue but we are all different. Make sure you check with your doctors if you are consuming a high intake of magnesium already in your food.

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Profile picture for lindy9 @lindy9

@jc76 I know what it is like to have bp of 90 / 60 without meds. I have googled the side effects of meds you are taking and you say you are taking more. Your doc is concerned about dizziness, yet the meds he is prescribing are a side effect.

I do not know what age you are, I am 77 and take none.

You need to start taking personal responsibility for your health. I would be surprised if your original symptoms are not due to horrible diet. In my OPINION, the meds and bad diet will be the end of you if you do not start obtaining information and make changes. Eat the foods that contain magnesium. That is the problem, you believe you can swallow pills, follow blindly what a heart failure doctor says when he has you taking a bunch of drugs and you will be getting better instead of worse.

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@lindy9
Please do not lecture me MCC about my health and diet and my dedication to the expansive medical profession to help with individuals health both physical and mentally. You have no idea of my dedication to my diet and health.

In comment to your criticism of my Mayo doctors. I was not being treated at Mayo until 2006. I was being treated by local cardiologist prior to going to Mayo. My ejection fraction (EF) caused by a virus (cardiomyopathy) was slowly going down every time I went to local cardiologist. It got below 30 EF at that time he referred me to a EP as stated needed a ICD.

I went to Mayo in 2006 for second opinion. I met with the director of electrophysiology who recommended both at ICD and Pacemaker. Prior cardiologist only wanted to do ICD. He recommended the pacemaker to help my heart deal with the electrical problems.

I then was referred to the Mayo Director of Heart Failure/Heart Transplants that changed my medications. The medications I was put on I researched and was the most latest and most researched medication to help with heart failure. With both these outstanding medical professionals and their medical treatment my EF became staple and has not changed in 20 years.

After I got ICD/Pacemaker and went on my new meds I would play tennis 2-3 hours a day. In 2017 I started doing Sprint Triathlons, which requires physical fitness and stamina, and have done about 50 of them. My ability to do these sports I give credit to my Mayo professional experienced doctors who have treated me with exceptional medical treatment.

I infer you are anti doctors and that is your prerogative. However as I will not tell you what to do don't tell me either. I do not like your comment about my diet. You don't know me thus should not assume what you posted. I eat a very balanced diet given to me by Mayo Clinic. I also went through formal diet training with Mayo dietician twice.

I am 78 and will soon be 79. I just finished a 25 mile bike ride today prior to my healthy lunch. I don't follow blindly anything including your disrespectful and rude post information to me.

I do respect my Mayo medical professionals which you by your post you obviously do not. I found your post disrespectful and full miss-information as you do not know me thus should not post the information you said about me.

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Profile picture for chickenfarmer @chickenfarmer

@kpryor1982 0.9 is way too low. Get it up to around 5.0 and see if your symptoms ease. Also 0.9 should be contributing to your weight loss. In simple terms Hyper = slim, hypo = fat. Another challenge in finding the right level for TSH. However 5.0 is still borderline and shouldn't be too high. I dont have a thyroid it having been removed for cancer nodules 35 yrs ago. Last year I found that my doseage of 175 microg was too much whereas 150 was too little so I found a sweet spot at 162.5 (daily). My PCP has worked with me on Rxs plus TSH tests but I took the lead on this one as he seemed clueless as to the relationship between thyroid and Arrythmias. EP didn't have much to add other than 'keep your TSH as high as possible' ; he didn't give me a target number.

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@chickenfarmer yes I’ve been dealing with my thyroid for the last 20 years. I’ve only been on 88 µg ever and it got down that low so I have not been on thyroid medication now for going on four months.

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sorry for what you are going through and the stress it causes.
Sleep, nutrition, exercise and support are key to any improvement.
One has to be 90% of the solution.
One must do some research to know what questions to ask doctors.
I've had two stage 4 cancers and recent heart surgery.. seems live is suffering
and often depression sets in.
Hope you can find some hope.

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Profile picture for chickenfarmer @chickenfarmer

@kpryor1982 0.9 is way too low. Get it up to around 5.0 and see if your symptoms ease. Also 0.9 should be contributing to your weight loss. In simple terms Hyper = slim, hypo = fat. Another challenge in finding the right level for TSH. However 5.0 is still borderline and shouldn't be too high. I dont have a thyroid it having been removed for cancer nodules 35 yrs ago. Last year I found that my doseage of 175 microg was too much whereas 150 was too little so I found a sweet spot at 162.5 (daily). My PCP has worked with me on Rxs plus TSH tests but I took the lead on this one as he seemed clueless as to the relationship between thyroid and Arrythmias. EP didn't have much to add other than 'keep your TSH as high as possible' ; he didn't give me a target number.

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@chickenfarmer how do you improve your thyroid? What foods if that helps?

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THere may be more subtle ways through diet and exercise but my methiod is to change my levothyroxine doseage. It's eay since I don't have a thyroid.

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Profile picture for rdl @rdl

Two things that brought my PVC's down from 20+% to < 1%, were an ablation and at the same time reseting my pacemaker from 80 to 60 bpm. I'm not sure which helped the most.

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@rdl wow, I don't know anything about pacemakers but I know about pulse rates and I'm very surprised to hear it might be set to 80, I mean, if that's a lower, resting rate and not an alert rate that it needs to slow down! I suppose there may be reasons, a quick Google response is not very specific about that.

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Profile picture for bryanta @bryanta

sorry for what you are going through and the stress it causes.
Sleep, nutrition, exercise and support are key to any improvement.
One has to be 90% of the solution.
One must do some research to know what questions to ask doctors.
I've had two stage 4 cancers and recent heart surgery.. seems live is suffering
and often depression sets in.
Hope you can find some hope.

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@bryanta thank you. My sleep is great. I’m great on nutrition. I exercise but I could do more. And I don’t have much support. No one understands PVCs in my family or group of friends. They don’t have them.

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