Please any of my fellow PVC Warriors please help me feel better

@jc76 you should definitely try lowering your levothyroxine dose and see what happens. Low TSH especially under 1.0 is hyper. Not sure what level of TSH is defined as hypo. Sorry for the confusion- low TSH means you have excess thyroid hormone so raising TSH lowers thyroid hormone if you go far enuff you become hypo, TSH > 5.0 rings a bell and hypo can cause other issues. I recommend reading more about that. If I were you I would scale back on the 88 mcg by skipping a couple of days per week, maybe space omissions 3 days apart. Also at some point after you’ve settled into a routine get your PCP to order a TSH test. Need to keep track of the numbers to insure you’re in the Goldilocks range with TSH. I’m still searching for endocrinologist or EP who understands this issue. Pretty specialized field but If I find one I’ll post it

@jc76 my error I should have written “lowered my TSH and arrhythmias went away again

Wait not right. When I raised my TSH arrhythmias went away. I get confused with TSH and thyroid hormones T4 and T3. However I have noted that TSH level doesn’t sem to affect T3 and T4 that much if at all - confusing. Anyway for me low TSH= more arrhythmias. So I’m trying to keep TSH around 5.

@kpryor1982

Oop,s forget to mention it,s been over a year but getting better but not yet there

@chickenfarmer thank you I appreciate it. I read probably a book every other day. I’m a big nerd. I also do diamond art and watch hot in Cleveland and old Andy Griffith shows I’m an old soul lol but yes it’s been hard the last few days I’m trying to keep it together, but I made myself get out of the house today and go to my sister‘s football party. She was having at her house which was something I would usually hide from while I was going through these flareups and I actually had a great time because it was happening, but I wasn’t fixated. Thank you so much for your comments

@chickenfarmer You are confused by the terms and are confusing others trying to make sense of what you are saying. As I replied about six posts up, hypo means low, hyper means high, and in the case of thyroidism, the low means low production of TSH and hyper means too much of the hormone is produced and therefore the gland is hyperactive.

See: https://www.healthline.com/health/hypothyroidism/hypothyroidism-vs-hyperthyroidism

I'll just tell you my story, I started having arrhythmias around Y2K, wore one of those old Holter monitors with a cassette tape, cardiologist looked at the results and said, "Huh, you've got something a bit odd, but I wouldn't go further with it right now." Hmm. So they gave me a little atenolol on of some other BP meds to get the pressure down, and I lived with it that way for years, but in 2015 it got a lot worse - more Holters and such, but doctors still just shrugged and smirked, but I had a really bad year - probably should have more aggressively sought more expert help. It finally got a little better, but there were times when it was every third heartbeat and times when I could hardly walk because it felt like I was about to go down.

So, I was reviewing my nutrition and decided two things, I might be low on vitamin A, and I might be low on iodine. So I finally did what most doctors tell most people to do, take a standard multivitamin every day to take care of the iodine in particular, and get some baby carrots at the grocery and snack on one once or twice a day.

And the PVCs and PACs were reduced by 98%.

Either that's one heck of a coincidence, or I tripped across something that was really causal.

So, check your nutrition profile, check your A and iodine, but it could be something else for someone else. No doctor ever suggested I do such, but there it is. Get a reference to a nutritionist since most doctors don't really do nutrition.

@gloaming I see what she means though because on the numbers when you get your blood work lower the number that means you’re hyper and if your number is higher like mine used to sit near 5.5 to 6 I was hypo I think she’s just saying it’s the wrong way or it’s being misinterpreted

@chickenfarmer right mine used to sit at five and I was considered borderline hypo slow thyroid and then I’ve been on the thyroid medicine for so long. It’s down to a one which is closer to hyper and now I’m having all this going on so I don’t know what to do. The doctor said oh that’s a great number, but I’m like I can’t live with the PVCs like this.

I have had PVCs and SVT for ten years. lately I’ve been more symptomatic and it’s so so scary and frustrating. I am on metoprolol and they have recently given me flecainide as a pill in the pocket for Svt episodes and I am terrified to take it. I have a wonderful cardiologist that has tried to set me at ease and i have an EP appointment in about 4 weeks. I am very excited to see what he thinks …. Ablation or not. I am nervous it would make things worse but I am finding it harder and harder to deal with. I get nervous about driving, vacations, and being alone with my grandbabies. I have been seeing a therapist which has helped tremendously and added yoga and meditation with the Calm App almost every day. The deep breathing really helps with my PVCs. It’s worth trying.