Persistent Muscle Twitches throughout Body

Thanks, Twitchy and Fela, for your helpful responses. You're correct, ALS (as well as multiple sclerosis and parkinson's disease) is what I was worried about. When you research muscle-twitches online, you learn that they are an early warning sign of those conditions, and then the worry and anxiety starts. It makes it hard to sleep. It's a vicious circle, as the muscle twitches make the worry and anxiety worse, and then the worry and anxiety make the twitches worse, and it becomes impossible to sleep.

My muscle-twitching actually did start in one single place in my right hand. I didn't give it a single thought, wasn't worried about it. But after a few weeks, it became random all over my body. Sometimes I can see the muscle twitching. Then I went online, learned about it being an early warning sign of ALS, etc. , and became very worried. I saw my primary care provider, who referred me to a neurologist. The neurologist is all booked up until January, so I must wait until then for an appointment.

On this very forum today, I learned about a condition called Benign Fasciculation Syndrome. Then I researched that, and it seems similar to what my symptoms are. That was reassuring, and maybe that is what I'm experiencing. I'm just going to wait and see how my neurology appointment goes.

Thanks once again to you both for your helpful and reassuring information.

@moconnor166 oh my gawsh I can totally relate to the part where you said the twitching happens and anxiety becomes worse and then the twitching gets worse 😢any recommendations on what this could be?

@anastasiyap04

I have basically the same symptoms and after several months of anxiety and tests was finally diagnosed as BFS. Knowing that it wasn't ALS was a huge relief. I still have the fasciculations, but since the anxiety is gone the symptoms seem to be not as bad.

The anxiety was the result of my fear of an ALS diagnosis and was really consuming me 24/7 (as well as my wife). After several months of tests and neurology visits That fear was finally put to rest. Now, even though I still have the symptoms the knowledge that it is not a dire situation has taken quite a load off my mind. I know that the white matter disease will continue to progress but so far that has been a slow process and something I learned to cope with.

I can totally empathize with you. Fortunately, most of my fasciculations are in my legs. When I wear shorts, I wonder if people think an alien is trying to pop through my calves or thighs! If someone notices I just tell them I have BFS and tell them it's nothing to worry about.

Thanks, Twitchy and Fela, for your helpful responses. You're correct, ALS (as well as multiple sclerosis and parkinson's disease) is what I was worried about. When you research muscle-twitches online, you learn that they are an early warning sign of those conditions, and then the worry and anxiety starts. It makes it hard to sleep. It's a vicious circle, as the muscle twitches make the worry and anxiety worse, and then the worry and anxiety make the twitches worse, and it becomes impossible to sleep.

My muscle-twitching actually did start in one single place in my right hand. I didn't give it a single thought, wasn't worried about it. But after a few weeks, it became random all over my body. Sometimes I can see the muscle twitching. Then I went online, learned about it being an early warning sign of ALS, etc. , and became very worried. I saw my primary care provider, who referred me to a neurologist. The neurologist is all booked up until January, so I must wait until then for an appointment.

On this very forum today, I learned about a condition called Benign Fasciculation Syndrome. Then I researched that, and it seems similar to what my symptoms are. That was reassuring, and maybe that is what I'm experiencing. I'm just going to wait and see how my neurology appointment goes.

Thanks once again to you both for your helpful and reassuring information.