1. < Brain & Nervous System

Persistent Muscle Twitches throughout Body

Posted by moconnor166 @moconnor166, Oct 2, 2023

For about 2 months now, I've had persistent muscle twitches. They started in my right hand, and now they occur regularly in my legs, hands, arms, and occasionally in my face, shoulders, and torso. I went to my primary care place, and they referred me to a movement disorder neurologist. I'm scheduled for an appointment there in January 2024. I've asked them to keep me on a cancellation list in case any earlier appointments become available.

I'm worried about the muscle twitches being an early symptom of a serious condition. I have trouble sleeping at night, partly because of the twitches, and partly just from constant worry and anxiety. The muscle twitches are worse at night when I'm lying in bed, and also when I'm quietly sitting down reading or watching television. I don't notice them so much when I'm actively moving around during the day, walking, swimming, gardening, etc.

Has anyone else experienced anything like this ? What was the diagnosis ? Thanks for any help that you can provide.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

pacer3702 | @pacer3702 | Oct 15, 2023
In reply to @falconhawaii "I'm in a similar boat. It started 2 years ago with my middle right foot toe...." + (show)
@falconhawaii

I'm in a similar boat. It started 2 years ago with my middle right foot toe. Involuntary wiggling. It progressed to random involuntary limb movement which comes and goes depending on the week or month. When my current neurologist, bless his heart but F his timing, casually mentioned it might be ALS, oh I slept great that night.

Now I have some pretty bad RLS in my left foot when sleeping, and what feels like energy buzzing in my legs, with a feeling of internal tremors and occasional twitching fingers for good measure. Like you, they go somewhat unnoticed during daily activities. The biggest concern now is inability to fall asleep and stay asleep. I get on average < 5 hours a day, but that's being in bed for around 7. I pretty much ruled out ALS since I don't have muscle wasting, and was fairly convinced it was related to Parkinson's, and I still kind of do, but again, I seem to have symptoms not associated with it, and don't have some that do. That brings a marginal amount of comfort. I know there's a huge controversy around this, and I'm only interested in facts not conspiracy, but I have to know if you've taken the vaccine and how many. I'm trying to be as open minded about this as possible, but when Dr.Google tells you it might be all these awful things, you wonder if it might be that new coffee you're drinking, lack of a vitamin, or a bad food habit you recently picked up; something you actually can fix on your own. I just want to be thorough, and open to all possibilities, because I've seen 4 Neurologists so far, and they've all basically shrugged.

I wish you the best to get answers, peace of mind, and good health.

-Brandon

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There is a link between the Covid vaccines and muscle twitches/tremors. Even the medical professionals are reporting they were injured in this way:
https://www.medscape.com/sites/public/covid-19/vaccine-insights/how-concerned-are-you-about-vaccine-related-adverse-events
Information about neurological injuries from the Covid vaccines is available at the Neuro V Long-Haulers Facebook group or React19.org. The first symptom of the peripheral neuropathy I developed after the Pfizer vaccine was spasms in my big toe.

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1 reply
gariston | @gariston | Oct 15, 2023
In reply to @marklane "Yes! Experiencing it right now. I’ve had it for the last week. From all my research,..." + (show)
@marklane

Yes! Experiencing it right now. I’ve had it for the last week.

From all my research, it appears to be excess histamine. Cortisol is that active ingredient that fights histamine from getting too bad in our bodies. And I just found out my cortisol is flatlined… so makes sense.

If you haven’t yet, get a full hormone panel done.

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Have you had the excess histamine treated and have your symptoms improved?

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falconhawaii | @falconhawaii | Oct 15, 2023
In reply to @illinijohn54 "Hi. Sorry to hear you are having this. You mentioned the last two years, but not..." + (show)
@illinijohn54

Hi. Sorry to hear you are having this. You mentioned the last two years, but not your age. I’ve had RLS since my mid-30s and am now 69. So I can’t speak to vaccines and other environmental factors, except that they likely aren’t my cause. Then again, as kids we used to love to run behind the mosquito fogging truck and I was a decent runner, so I was up there in full fumes. We laugh about it as a stupid kid memory, but who knows what toxins I took in. Good luck with your situation.

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Thanks for replying. I'm 42. So yeah, I didn't inhale, was it DFS? In the past few weeks, the energy in my legs have been so bad, I just lay in bed. And it goes beyond that, into twitching fingers and sporadic limb movements...which really perplexes me.

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falconhawaii | @falconhawaii | Oct 15, 2023
In reply to @pacer3702 "There is a link between the Covid vaccines and muscle twitches/tremors. Even the medical professionals are..." + (show)
@pacer3702

There is a link between the Covid vaccines and muscle twitches/tremors. Even the medical professionals are reporting they were injured in this way:
https://www.medscape.com/sites/public/covid-19/vaccine-insights/how-concerned-are-you-about-vaccine-related-adverse-events
Information about neurological injuries from the Covid vaccines is available at the Neuro V Long-Haulers Facebook group or React19.org. The first symptom of the peripheral neuropathy I developed after the Pfizer vaccine was spasms in my big toe.

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Thank you. I'm checking them out now. I'm both disheartened yet encouraged by what some of the others have written, mirroring some of my symptoms. At least it's a possible answer, instead of one giant question mark.

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 15, 2023
In reply to @santosha "@moconnor166 Hi, Good Afternoon I am very sorry you have been going through that. I also..." + (show)
@santosha

@moconnor166 Hi, Good Afternoon
I am very sorry you have been going through that.
I also had some twitches, especially at night, waking me and my husband up many times in the middle of the night. The doctor said it was a side effect of the medication (AED and anti-depressive). Now that I am off those medications, thankfully, being treated with a more natural approach (medical cannabis, diet, yoga, etc), those twitches are gone. Have a look at the side effects of the medications you are taking. Perhaps those twitches come from them?
After going through very difficult moments with medications in my epilepsy journey, I would also schedule an appointment with a doctor of integrative medicine, which combines traditional medicine and ancient medicines (Ayurveda, Chinese) and homeopathy, if I were in such a situation.
All my best to you!
Chris (or Santosha)

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Thank you so much, Chris. I have been searching for a reason for my life partner's constant twitches. When they wake him up he is in agony and we struggle to calm his body down.

I am a 100% advocate of integrative medicine. Having used medical cannabis for 10 years now, I am assured of its capabilities to reduce pain and discomfort without any negative reactions.

May you be free of suffering and the causes of suffering.
Chris

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1 reply
Chris Gautier OR Santosha | @santosha | Oct 16, 2023
In reply to @artscaping "Thank you so much, Chris. I have been searching for a reason for my life partner's..." + (show)
@artscaping

Thank you so much, Chris. I have been searching for a reason for my life partner's constant twitches. When they wake him up he is in agony and we struggle to calm his body down.

I am a 100% advocate of integrative medicine. Having used medical cannabis for 10 years now, I am assured of its capabilities to reduce pain and discomfort without any negative reactions.

May you be free of suffering and the causes of suffering.
Chris

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My pleasure Chris. Thankfully, I am doing well since I have been treated with medical cannabis. Almost no side effects, just a bit of sleepiness that I get through it after a yoga nidra practice after lunch every day :-). I hope your partner gets through those twitches!!!!
Since you are a 100% advocate of integrative medicine, I recommend very much the book "Brave New Medicine" by Dr. Cynthia Li MD. She was once a traditional medicine doctor becoming an integrative one after her own journey of suffering. There are many interviews with her about her journey on YouTube. This is one of them I like the most:
https://www.youtube.com/watch?v=yqz5GVGAgYo&t=30s
Have a beautiful day and a good start to this week! She has also a website.
Chris (Santosha)

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hk22690 | @hk22690 | Jan 26 4:45pm

@moconnor166 hope you are feeling better after your appointment! Have you heard anything reassuring since your neurology appointment?

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twitchyone | @twitchyone | Jun 7 5:00am

Hi @moconnor166, how did you go with your appointment? Have you found anything out about your symptoms? There seem to be a lot of people with similar symptoms and would be a big help! I hope you are feeling better.

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