Parkinsons dementia and the use of the iphone

Posted by cloudydaysue @cloudydaysue, May 11 7:26pm

My husband with mild parkinsons uses his i phone 80% of his day. I cannot get him to stop and he causes himself problems by pressing wrong keys and deleting things. He gets in trouble and has caused us financial problems through his mistakes. He agrues whenever I ask him to put the phone down and will not let me take it way. He is clear minded sometimes so it is difficult. I am not good with technology so I cannot fix his mistakes. Suggestions as to how to work with this problem?

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celia16 | @celia16 | May 11 8:18pm

Getting someone with cognitive/judgement issues to understand and change is often not possible. I’d consult with an attorney to get guidance on getting legal authority to control and manage the finances. Then you can place them out of his reach and control for safety reasons. Even if clear minded at times, if he has episodes as you describe, it could cause catastrophic damage to your marital assets.

lkbous | @lkbous | May 12 1:14am

@cloudydaysue I’m sorry. I don’t have any suggestions for you, I just want to let you know I feel you. It’s really tricky to maneuver through caregiving when he/she has very clear moments mixed with very confused moments. It really hits you coming and going. You get all settled in and comfy with utter cognizance, then, bam, gone in a moment. It leaves you feeling so deflated and sad.
For the tech, hmmm, if you can at least use a phone, it’s really helpful to ask complex questions to google to get technological help. And pick and choose through the various answers to get the best answer and also to piece together the different versions of answers to compile the perfect one. I hope that makes sense for you. If you know a teen that you would feel comfortable with, they know soo much about phones. Good luck. I’m probably not useful to actually help with your technology, but I’m here for your needs and willing to help in whatever way I can.
Linda

cloudydaysue | @cloudydaysue | May 12 12:57pm

In reply to @celia16 "Getting someone with cognitive/judgement issues to understand and change is often not possible. I’d consult with..." + (show)

@celia16 Thank you so much for your insight. I do have my name on our financials as the main decision maker . I just worry that some one, Scammers and the dark web can cause havoc in ways I haven't thought of.

cloudydaysue | @cloudydaysue | May 12 1:02pm

In reply to @lkbous "@cloudydaysue I’m sorry. I don’t have any suggestions for you, I just want to let you..." + (show)

@lkbous Thank you for your understanding and support. I will try harder to know how to fix some of the mistakes he's made on his phone and getting help makes sense if I can explain to them what he did. Truthfully my mind isn't 100% and I have always disliked phone and computer technology.

bjs080208 | @bjs080208 | May 15 11:46am

I understand what you are going through. My husband has mild Parkinsonism and MCI. I have poa, along with all of the other paperwork. Is there any way you can get his phone when he’s sleeping and delete for of the app that are causing the problem? I had an issue with my husband charging Amazon stuff with my debit card. I changed it to my credit card. It may work for you. It helped me a lot. If you have the proper paperwork, then u can maybe go to the bank and ask if they can help you.

Hope this helps,

Bonnie

cloudydaysue | @cloudydaysue | May 15 8:17pm

Thanks Bonnie, I will think about that and try to figure out where his problems stem from. Lucky for me he hasn't charged anything that we weren't able to work with the bank with. Mainly fraudulent web sites , or responding to fraud questionaires. I appreciate your input. Best of luck to you as well.
Sue