Pancreas Divisum

Posted by mjemjm @mjemjm, Jun 14 2:15pm

Does anyone else have this and know they have it? I’ve been diagnosed with it. Thanks.

Interested in more discussions like this? Go to the Digestive Health group.

Hello @mjemjm

I see that you just recently joined Connect and I would like to welcome you. I'm sorry that your post was not responded to earlier. However, I was interested in your post, as I have not heard of this disorder before. I did some research on the National Pancreas Foundation website and found a link with some information, https://pancreasfoundation.org/patient-information/ailments-pancreas/pancreas-divisum/. Perhaps you have already read this? If not, please take some time to familiarize yourself with the information.

It appears that this disorder is often without symptoms. Is this your situation as well? How was your pancreas-divisum diagnosed?

REPLY
@hopeful33250

Hello @mjemjm

I see that you just recently joined Connect and I would like to welcome you. I'm sorry that your post was not responded to earlier. However, I was interested in your post, as I have not heard of this disorder before. I did some research on the National Pancreas Foundation website and found a link with some information, https://pancreasfoundation.org/patient-information/ailments-pancreas/pancreas-divisum/. Perhaps you have already read this? If not, please take some time to familiarize yourself with the information.

It appears that this disorder is often without symptoms. Is this your situation as well? How was your pancreas-divisum diagnosed?

Jump to this post

Thank you for the information. I’ve had two acute attacks. The first time was in July 2018 and I was in the hospital nine days. The second time was September 2021 and I was in seven days. Each time my Lipase was around 30,000. The pain was excruciating. I was given Dylaudin and Tramadol and Toradol by IV around the clock. I had no intake by mouth. The doctors thought it was brought on by sulfasalazine because I have no risk factors. No gall bladder, non drinker and very low cholesterol, etc. After CTs and MRIs which showed no damage to pancreas the only thing left was that it was medicine induced. . I stopped the sulfasalazine and things seemed to be ok until I ate three days of fried foods and the second attack happened. This time a pancreatic endoscopic ultrasound was done and they found the divisium. As you said, most people never know they are born that way. Now that I understand it, I eat much healthier.

REPLY

I appreciate the added information, @mjemjm, it is good that you finally got a diagnosis. It appears as if maintaining a healthy diet is important in order to keep from having further attacks. Is this what you've been told?

As the Sulfasalazine medication seemed to be a trigger for your first attack, did your doctors replace that drug with something else?

REPLY

You might also be interested in connecting with @slb50 who posted a similar problem here: https://connect.mayoclinic.org/discussion/need-diagnosis-snd-treatment/

REPLY
@hopeful33250

I appreciate the added information, @mjemjm, it is good that you finally got a diagnosis. It appears as if maintaining a healthy diet is important in order to keep from having further attacks. Is this what you've been told?

As the Sulfasalazine medication seemed to be a trigger for your first attack, did your doctors replace that drug with something else?

Jump to this post

Yes the diet is everything for me. My pancreas doesn’t drain properly, so fat, etc backs up and the pancreas produces more enzymes which inflame it. I try to avoid fats and sugars as much as possible, but my GI
Doctor said tha was not realistic, but everything in moderation. Ever since the last attack it makes me nauseous if I even think about eating fried food.
When I stopped the sulfasalazine,
My rheumatologist started me on hydroxichloroquine two a day. I also started seeing an endocrinologist who discovered I don’t produce a sufficient amount of cortisone so I take a 5 mg prednisone daily. The arthritis always hurts but I can live with it.

REPLY
@mjemjm

Yes the diet is everything for me. My pancreas doesn’t drain properly, so fat, etc backs up and the pancreas produces more enzymes which inflame it. I try to avoid fats and sugars as much as possible, but my GI
Doctor said tha was not realistic, but everything in moderation. Ever since the last attack it makes me nauseous if I even think about eating fried food.
When I stopped the sulfasalazine,
My rheumatologist started me on hydroxichloroquine two a day. I also started seeing an endocrinologist who discovered I don’t produce a sufficient amount of cortisone so I take a 5 mg prednisone daily. The arthritis always hurts but I can live with it.

Jump to this post

If you are seeing a rheumatologist for rheumatoid arthritis, you might be interested in a discussion group on Connect about that problem. Here is the link, https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/.

It sounds as if you have a good medical team on your side. Having an endocrinologist as well as a rheumatologist is a great combination given the health issues you face.

Take a look at the discussion on RA and feel free to post there as well.

REPLY
Please sign in or register to post a reply.
  Request Appointment