I have it toi and was dx at Mayo 12 years ago. Its congenital so mean you are born with it. I didnt have trouble until I turned 30 then started getting pancreatitis…got much worse now, 12 years later, was just at Mayo hospitalized for pancreatits and now they think I have sphincter or Oddi which is unbearably painful and will have EUS next week. Fear ERCP is next. Do not eat fat, less than 3 grams per meal. Wish you well
I have it toi and was dx at Mayo 12 years ago. Its congenital so mean you are born with it. I didnt have trouble until I turned 30 then started getting pancreatitis…got much worse now, 12 years later, was just at Mayo hospitalized for pancreatits and now they think I have sphincter or Oddi which is unbearably painful and will have EUS next week. Fear ERCP is next. Do not eat fat, less than 3 grams per meal. Wish you well
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