Pain and chronic diarrhea: Need diagnosis and treatment

Posted by slb50 @slb50, Sep 5, 2021

I have had severe pain on right lower side with chronic diarrhea eince April ive had a ct, mri of pelvis and abdomen blood tests stool cultures most were negative pain is 10 when its there no pattern Help ive lost 17 lbs and can't function like this also horrible cramps and sometimes urgency i live n Tn been to several drs no answers mri confirmed pancreatic divisium

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@slb50 …. I won’t get into my long long history of last 7.5 years of daily chronic digestive disorders. It’s too much to write . It basically has ruined my life . Seen 5 Gastro’s in 2 states (NC and FL). I’m a medical mystery after a million tests and some diagnoses. They can’t help me . So I finally got a televisit after 7 months w/ Mayo Clinic Jacksonville Gastro tomorrow!!! I’m praying 🙏 I will go there and get some new tests over a few days and they can finally help me find some relief. I’ve tried it ALL !! Why don’t you contact Mayo Clinic and see about getting a televisit. You’ll need your records sent from previous Dr’s and test results . It takes a while to get even televisit but it may be worth it . If not them then Cleveland Clinic in Ohio . Best wishes for both of us .!!

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@rozy288

@slb50 …. I won’t get into my long long history of last 7.5 years of daily chronic digestive disorders. It’s too much to write . It basically has ruined my life . Seen 5 Gastro’s in 2 states (NC and FL). I’m a medical mystery after a million tests and some diagnoses. They can’t help me . So I finally got a televisit after 7 months w/ Mayo Clinic Jacksonville Gastro tomorrow!!! I’m praying 🙏 I will go there and get some new tests over a few days and they can finally help me find some relief. I’ve tried it ALL !! Why don’t you contact Mayo Clinic and see about getting a televisit. You’ll need your records sent from previous Dr’s and test results . It takes a while to get even televisit but it may be worth it . If not them then Cleveland Clinic in Ohio . Best wishes for both of us .!!

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Praying for a diagnosis snd healing!🙏🏻❤️

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Hi @sib50, I add my welcome. I wasn't familiar with pancreas divisum, so looked it up and found this information from the National Pancreas Foundation:
– Pancreas divisum https://pancreasfoundation.org/patient-information/ailments-pancreas/pancreas-divisum/

If you would like to consider Mayo Clinic, here's more information on how to request an appointment http://mayocl.in/1mtmR63

Are these symptoms new for you? Do you keep a journal documenting when they happen and their severity? Sometimes keeping a log or journal of your symptoms can help doctors discover a pattern that can help with diagnosis.

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@colleenyoung

Hi @sib50, I add my welcome. I wasn't familiar with pancreas divisum, so looked it up and found this information from the National Pancreas Foundation:
– Pancreas divisum https://pancreasfoundation.org/patient-information/ailments-pancreas/pancreas-divisum/

If you would like to consider Mayo Clinic, here's more information on how to request an appointment http://mayocl.in/1mtmR63

Are these symptoms new for you? Do you keep a journal documenting when they happen and their severity? Sometimes keeping a log or journal of your symptoms can help doctors discover a pattern that can help with diagnosis.

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Yes been dealing with this for over 24 years

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@slb50

Yes been dealing with this for over 24 years

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Hi @slb50, If you are like me, I sometimes read over some information and miss parts of what I have read. Did you see the recommendation by @rozy288 and @colleenyoung about seeking help at a major health facility like Cleveland Clinic or Mayo Clinic in their posts in this discussion above? You have been dealing with the pain and symptoms for a long time with no real help or answers and I also think if it were me, I would seek help at a major teaching hospital or health facility.

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I was diagnosed with pancreatic divisium after two acute attacks. It took numerous CT, MRIs and finally an endoscopic ultrasound of the pancreas which is a specialized test. Luckily my pancreas has not been damaged. The hospital stays were horrible and the pain scale was past a 10. I realize now I will never eat the way I did, which is probably good, because it was not healthy. I know now my pancreas developed wrong in the womb. I can picture the way it looks in my mind so I know I must be careful. It does not drain properly. My doctor said if I have another attack he would recommend a sphincterotomy but not now because I’m not in pain. He said sometimes they work and sometimes not. I feel so bad for you. I know how bad the pain can be. Morphine does not touch it when I have an attack. I hope something can be done for you. 🙏🏻🙏🏻

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Just wondering if anyone has a reaction to artificial sweeteners? I've had some chronic diarrhea to the point of being almost incontinent recently and tuned in to some information about getting diarrhea from artificial sweetners, sucralose and stevia/Truvia and also maltodextrin which is made from wheat and other ingredients (I'm GF intolerant). Thanks!

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@billjudis

Just wondering if anyone has a reaction to artificial sweeteners? I've had some chronic diarrhea to the point of being almost incontinent recently and tuned in to some information about getting diarrhea from artificial sweetners, sucralose and stevia/Truvia and also maltodextrin which is made from wheat and other ingredients (I'm GF intolerant). Thanks!

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Another cause can be red dye #40

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