Hello @microgirl, Welcome to Mayo Clinic Connect. I read a post earlier in this discussion where @orangealert mentioned that mouthwashes and toothpaste containing sodium lauryl sulfate (SLS) can often make the symptoms worse. I don't have oral lichen planus but used to have a lot of canker sores frequently and switched to a toothpaste that does not contains SLS and it has helped me. @artist01@rashida and other member may also have suggestions.
You mentioned the appointment with the specialist not going very well. Have you thought about a second opinion at a major teaching hospital or health facility like Mayo Clinic?