Non arteritic ischemic optic neuropathy

Posted by Pedie @pedie, May 22, 2017

Over the past month 55 year old son has lost vision in one eye. He has seen an ophthalmologist, had an MRI, was told that nothing can be done. Are there any treatments for this.

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@weezy1939

I am having a hard time trying to figure out how to use this sight to reply. You can find my message above

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@weezy1939 just add @sign persons handle like example @lioness before text

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@lioness

@weezy1939 just add @sign persons handle like example @lioness before text

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@weezy1939 lioness I am having a hard time seeing the computer screen so lets see if I did this right

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@weezy1939 YES YOU DID. MAYBE ASK FOR REPLIES IN LARGE PRINT. IT MIGHT HELP

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There are so many different eye problems but I haven't seen one recently about non arteritic ischemic optic neuropathy, which I have in both eyes. Does anyone know someone with this? I don't have peripheral vision nor can I see anything under my nose.

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@weezy1939

There are so many different eye problems but I haven't seen one recently about non arteritic ischemic optic neuropathy, which I have in both eyes. Does anyone know someone with this? I don't have peripheral vision nor can I see anything under my nose.

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Hi @weezy1939, I moved your post to the discussion on Non Arteritic Ischemic Optic Neuropathy so that you can reconnect with the members you were talking with previously, like @lioness @marcog @pslabels @mlbondurant and others.

Weezy, how are you doing?

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@colleenyoung

Hi @weezy1939, I moved your post to the discussion on Non Arteritic Ischemic Optic Neuropathy so that you can reconnect with the members you were talking with previously, like @lioness @marcog @pslabels @mlbondurant and others.

Weezy, how are you doing?

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@weezy1939 Hi weezy how are you doing? I have M. D. ,Glucoma but so far my peripheral vision is o.k. The eye drops for glucoma pains my L. Eye so sent letter to Dr.see if she wants me to come in for check I rather do this but haven't heard from her yet. Hope your doing well 😊 That has to be hard no peripheral vision. Ate you getting along alright?

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@weezy1939

There are so many different eye problems but I haven't seen one recently about non arteritic ischemic optic neuropathy, which I have in both eyes. Does anyone know someone with this? I don't have peripheral vision nor can I see anything under my nose.

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Hello Weezy 1939….I was diagnosed with NAION last July…end of the month, 2018….in my left eye….I"ve lost central and to the inner eye vision, only seeing above, below and peripheral to the right….my problem is I'm very nearsighted in that eye so vision is limited, however I do have sight in my right eye and am very afraid it will happen in that eye as well. I can't imagine having it in both. Did your's come on simultaneously, or separately? and did it come quickly, or overnight?

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@colleenyoung

Hi @weezy1939, I moved your post to the discussion on Non Arteritic Ischemic Optic Neuropathy so that you can reconnect with the members you were talking with previously, like @lioness @marcog @pslabels @mlbondurant and others.

Weezy, how are you doing?

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You asked how I was doing in July but have not looked at connect. I am legally blind with 10% of my vision. This is my new world and I have adapted to it. I am surprised how rare this condition is. My eye doctor said in 30 years of practice he has only seen this happen 3 times

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@weezy1939

You asked how I was doing in July but have not looked at connect. I am legally blind with 10% of my vision. This is my new world and I have adapted to it. I am surprised how rare this condition is. My eye doctor said in 30 years of practice he has only seen this happen 3 times

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Welcome back, @weezy1939. I'd like to introduce you to new member @greyhound3 who has some questions for you. Click VIEW & REPLY in the email notification and see their message above. Greyhound asks: Did your vision loss come on simultaneously, or separately? and did it come gradually, quickly, or overnight?

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@greyhound3

Hello Weezy 1939….I was diagnosed with NAION last July…end of the month, 2018….in my left eye….I"ve lost central and to the inner eye vision, only seeing above, below and peripheral to the right….my problem is I'm very nearsighted in that eye so vision is limited, however I do have sight in my right eye and am very afraid it will happen in that eye as well. I can't imagine having it in both. Did your's come on simultaneously, or separately? and did it come quickly, or overnight?

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Hi, @greyhound3, I lost most of my vision in right eye overnight in 2011. I lost my peripheral vision and all except upper right. Most of the time I forgot about the loss of vision in that eye except after almost two accidents I looked to my right several times at a stop sign.This past winter I lost vision in my left eye gradually and thought my lack of eyesight was due to cataracts which I do have. I don’t have any peripheral vision and can’t see under my nose . Please keep in touch as this condition seems to be extremely rare.

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I lost vision in my left eye with an NAION event at the end of May. I have a severe cataract in my right eye (was just getting ready to have the cataract surgery when the NAION event occurred). I'm now considering having cataract surgery in December (6 months from the NAION event). I'm trying to determine what the level of risk is for kicking off and NAION event in my "good" (cataract) eye when I do the surgery. While my life is impacted, it would be much worse if I have an NAION event in my second eye. I've been trying to research about this – and am having challenges finding anything. I would appreciate any suggestions on where I may find information related to this, to help me in my final decision whether to have the cataract surgery or not. Thank you!

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@bgoren

I lost vision in my left eye with an NAION event at the end of May. I have a severe cataract in my right eye (was just getting ready to have the cataract surgery when the NAION event occurred). I'm now considering having cataract surgery in December (6 months from the NAION event). I'm trying to determine what the level of risk is for kicking off and NAION event in my "good" (cataract) eye when I do the surgery. While my life is impacted, it would be much worse if I have an NAION event in my second eye. I've been trying to research about this – and am having challenges finding anything. I would appreciate any suggestions on where I may find information related to this, to help me in my final decision whether to have the cataract surgery or not. Thank you!

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Hi @bgoren, I have reread you note many times trying to figure out how to answer you. I have NAION in both eyes and have cataracts.
I too have to make the decision if I should have them removed. My eye surgeon told me there is only a 1% chance something could go wrong and I have to make the decision whether to have it or not. I still can't decide. I read there is only a small chance of getting NAION in both eyes and it didn't happen to me for 8 years. In my right eye I have vision in upper right corner and in left eye I have vision in my lower left corner. It is amazing how a person can get use to the lax of sight. Have you been seen by a Mayo doctor or a eye surgeon?
They can give you an answer.

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