Non arteritic ischemic optic neuropathy

Posted by Pedie @pedie, May 22, 2017

Over the past month 55 year old son has lost vision in one eye. He has seen an ophthalmologist, had an MRI, was told that nothing can be done. Are there any treatments for this.

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Hi, @weezy1939 and @bgoren – both of you were talking about considering the possibility of cataract surgery. What are your thoughts after more consideration?

@greyhound3 – what is next for your treatment for the non-arteritic anterior ischemic optic neuropathy (NAION) you mentioned?

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@lisalucier

Hi, @weezy1939 and @bgoren – both of you were talking about considering the possibility of cataract surgery. What are your thoughts after more consideration?

@greyhound3 – what is next for your treatment for the non-arteritic anterior ischemic optic neuropathy (NAION) you mentioned?

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@weezy1939 My next appointment is in mid-Dec and need to make a decision by then. This is my first winter coming up with loss of sight in both eyes and I am not looking forward to short days. I see so much better outdoors that I am going to go to Florida for a month late Jan. it is a resort that I have stayed at many times so familiar with it and area. If I have cataract surgery it would be more like March.

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@weezy1939

Hi @bgoren, I have reread you note many times trying to figure out how to answer you. I have NAION in both eyes and have cataracts.
I too have to make the decision if I should have them removed. My eye surgeon told me there is only a 1% chance something could go wrong and I have to make the decision whether to have it or not. I still can't decide. I read there is only a small chance of getting NAION in both eyes and it didn't happen to me for 8 years. In my right eye I have vision in upper right corner and in left eye I have vision in my lower left corner. It is amazing how a person can get use to the lax of sight. Have you been seen by a Mayo doctor or a eye surgeon?
They can give you an answer.

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Thank you for your reply! I'm sorry to hear you have NAION in both eyes. I understand with NAION in one eye, there is 5% risk of kicking off NAION in my other eye when I have cataract surgery. This is not a high risk, but it is scary to consider. This is why I'm vacillating – should I have the cataract surgery or not?

I understand a cataract is also developing in my NAION eye. However, I have so little vision in that eye I'm not sure it is worth having the surgery for that eye.

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@weezy1939

@weezy1939 My next appointment is in mid-Dec and need to make a decision by then. This is my first winter coming up with loss of sight in both eyes and I am not looking forward to short days. I see so much better outdoors that I am going to go to Florida for a month late Jan. it is a resort that I have stayed at many times so familiar with it and area. If I have cataract surgery it would be more like March.

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@weezy1935 Hi I wanted to let you know that I had both eye cataract,s taken off. It was a easy operation .I was partially sedated and didn't see anything or felt that Dr was operating on me. When I recovered from the twilight sleep my friend and I went for lunch. You will have eyedrops that are necessary as they are antibiotic drops but its really no big deal. I was surprised at how much better I could see in fact I could drive my car without glasses but I need them for reading as I have astigmatism also.

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@lisalucier

Hi, @weezy1939 and @bgoren – both of you were talking about considering the possibility of cataract surgery. What are your thoughts after more consideration?

@greyhound3 – what is next for your treatment for the non-arteritic anterior ischemic optic neuropathy (NAION) you mentioned?

Jump to this post

I understand with NAION in one eye, there is 5% risk of kicking off NAION in my other eye when I have cataract surgery. This is not a high risk, but it is scary to consider. This is why I'm vacillating – should I have the cataract surgery or not? I'd like to hear of NAION patients who have had cataract surgery to learn from them.

I understand a cataract is also developing in my NAION eye. However, I have so little vision in that eye I'm not sure it is worth having the surgery for that eye.

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@lioness

@weezy1935 Hi I wanted to let you know that I had both eye cataract,s taken off. It was a easy operation .I was partially sedated and didn't see anything or felt that Dr was operating on me. When I recovered from the twilight sleep my friend and I went for lunch. You will have eyedrops that are necessary as they are antibiotic drops but its really no big deal. I was surprised at how much better I could see in fact I could drive my car without glasses but I need them for reading as I have astigmatism also.

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Was anything special done to promote a good outcome for the cataract surgery considering you are an NAION patient?

Thank you for sharing your experience!

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@bgoren

Was anything special done to promote a good outcome for the cataract surgery considering you are an NAION patient?

Thank you for sharing your experience!

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@bgoren I'm sorry if I gave you the wrong impression I didn't have NAION in my eyes I only responded to the post where weezy1935 was talking about cataract surgery I wanted to let her know how mine went . I'm sure the Dr you go to can advice you on this matter

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I was just diagnosed with NAION I am 61, lost vision in my right eye. I heard there is clinic in Berlin, Germany doing therapy and electrical stimulation to relieve it. Does anyone know anything about this? It is called Fedorov

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@jamienolson

Hello @mlbondurant! Welcome to Mayo Clinic Connect. Thank you for posting.

I was able to find a direct link to a clinical study being done at Mayo Clinic on patients diagnosed with Acute Non-Arteritic Anterior Ischemic Optic Neuropathy. http://www.mayo.edu/research/clinical-trials/cls-20253809?_ga=2.31784446.1138617771.1501254969-1319936131.1497643163.

If reaching out to the Mayo Clinic is an option for you please refer to this link for appointment information. http://mayocl.in/1mtmR63

@mlbondurant, can you tell me what you have been doing thus far to protect your eye? Did your Ophthalmologist give you any suggestions?

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is the study closed? Did they find out anything?

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@drealtormia

I was just diagnosed with NAION I am 61, lost vision in my right eye. I heard there is clinic in Berlin, Germany doing therapy and electrical stimulation to relieve it. Does anyone know anything about this? It is called Fedorov

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@weezy1939 I have NAION in both eyes.Have you seen a Mayo doctor? I have been told nothing can be done. Have you been told Fedorov can help NAION or other eye problems?

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@weezy1939 I went to Bascom Palmer, here in Florida. No hope. Asked them about the Federov clinic in Berlin, no comment. I am going to fill out the info and see if I find out more. Maybe they will have verified testimonials. It is not surgery or injections, just electrical stimulation and therapy.

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@drealtormia

@weezy1939 I went to Bascom Palmer, here in Florida. No hope. Asked them about the Federov clinic in Berlin, no comment. I am going to fill out the info and see if I find out more. Maybe they will have verified testimonials. It is not surgery or injections, just electrical stimulation and therapy.

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@weezy1939 I was told the nerves? or what they are called and there are thousands of them have been destroyed. My NAION happened in right eye in 2011 so until this past winter I lived with that. Many people live with one eye and most of the time I forgot that I had very limited eyesight in right eye. It's unusual I was told that it happens in both eyes and I hope that is the case for you. My eye doctor who has been practicing for thirty years has only seen it 3 times in both eyes. Best of luck to you

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