Non arteritic ischemic optic neuropathy

Posted by Pedie @pedie, May 22, 2017

Over the past month 55 year old son has lost vision in one eye. He has seen an ophthalmologist, had an MRI, was told that nothing can be done. Are there any treatments for this.

Interested in more discussions like this? Go to the Eye Conditions group.

I have NAION in my left eye. A month ago, I had cataract surgery in my right eye – and all went well. I now understand my left (NAION) eye also has a cataract. I'm trying to decide if its worth risking the small amount of sight I have in that eye to do the surgery. Has anyone had cataract surgery on an eye where they suffered NAION? If yes, what was the outcome? Thanks!

REPLY
@mlbondurant

Hi Ms. Young. I’m the son Pedie was referring to. My right eye was diagnosed with Non Arteritic Ischemic optic neuropathy in May. I am in great health, work out and am a home builder. I have none of the risk factors: diabetes, hypertension, sleep apnea. And I don’t have atherosclerosis. The neuro ophthamologist said I had a “disk at risk”, or a smaller opening through which the optic nerve and capillaries have to pass to enter the eye. The swelling that caused the damage to the optic nerve has subsided and the neuro ophth. said the right eye would neither get better or any worse. It’s at 20/150. My main concern is doing all I can to protect the other eye. Any therapies, supplements, protocols that could help I’d love to know about. Thanks!

Jump to this post

Does pressure reducing drops treat naion

REPLY
@splq1955

Does pressure reducing drops treat naion

Jump to this post

@splq1955 – welcome to Mayo Clinic Connect.

Hoping members like @weezy1939 @drealtormia @pedie @greyhound3 @bgoren will share with you how they it their lives one with non-arteritic anterior ischemic optic neuropathy (NAION) have been treated.

Have you experienced any vision loss, splq1955?

REPLY
@splq1955

Does pressure reducing drops treat naion

Jump to this post

@weezy1939 MayoClinic doctor and my own eye doctor did not recommend anything except to take good care of my health. Lack of sight has caused me to slow down physically which then causes other problems. Hard to walk in crowds and winter weather so I am in Florida for a month where I can walk fast on beach and not bump into people. When I get back home I am having cataract surgery and hope it clears up what little sight I have. Have any of you had cataract surgery in eye with NAION? My doctor doesn't think it will help but hope I prove him wrong.

REPLY
@bgoren

I have NAION in my left eye. A month ago, I had cataract surgery in my right eye – and all went well. I now understand my left (NAION) eye also has a cataract. I'm trying to decide if its worth risking the small amount of sight I have in that eye to do the surgery. Has anyone had cataract surgery on an eye where they suffered NAION? If yes, what was the outcome? Thanks!

Jump to this post

@weezy1939 I had cataract surgery on both eyes last week and now the 10% vision I had is clear. I am wearing cheaters for now until I can have a refraction in 5 weeks. I need trifocals which I have worn for 30 years but for now I feel like I have won the lottery!

REPLY
@marcog

Hi all. I'm happy to see a discussion group on NAION. I was diagnosed with it April 2017, despite 10 years of a daily baby aspirin regimen. My neuro opthamalogist mentioned a stem cell study starting this January. Anyone else aware of this study?

Jump to this post

hi i was just diagnosed with NAION and would like to know about the stem cell research study going on can u ask your Dr sbout it?

REPLY

I'm sorry to hear this news too. I have compromised vision myself, my Mayo neuro ophthalmologist measured my loss of vision , I don't drive a car anymore, I use uber. Using uber is nice, I've met so many nice drivers!

REPLY
@swwo98

hi i was just diagnosed with NAION and would like to know about the stem cell research study going on can u ask your Dr sbout it?

Jump to this post

Hello @swwo98 and welcome to Mayo Clinic Connect.

I am sorry to hear about your recent diagnosis of NAION. I'm wondering how much your vision has been impacted by this diagnosis?

I see that on Mayo Clinic's website there is some information given about this disorder. Here is the link to that information, https://www.mayoclinic.org/search/search-results?q=NAION
I encourage you to read it.

I also found some research on stem cells from bone marrow to treat this disorder. Here is the link, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5723737/. This information is from the website of the NIH which is a reliable source as well.

What does your current doctor say about stem cell research for this problem?

REPLY
@Erinmfs

I'm sorry to hear this news too. I have compromised vision myself, my Mayo neuro ophthalmologist measured my loss of vision , I don't drive a car anymore, I use uber. Using uber is nice, I've met so many nice drivers!

Jump to this post

Hello @Erinmfs,

I'm glad to hear that you are adjusting to this new normal with compromised vision. It sounds like you taking a most positive approach at this time of life. Good for you!

REPLY

@weezy1939 I have had NAION in both eyes now for several years. I was told by Mayo doctor that nothing can be done to get sight back. I was also told one can get use to lack of sight which I have. When I saw your note I was taking a brake from knitting a hat for my great granddaughter. I also have a new hip so can walk a mile looking down at sidewalk.

REPLY

Check with NeuroOpthamologist to check optic nerve otherwise not sure same thing happened to me but i had cataract surgery when it was happening and i see blurry and light they say it might get better but who knows !

REPLY
@swwo98

Check with NeuroOpthamologist to check optic nerve otherwise not sure same thing happened to me but i had cataract surgery when it was happening and i see blurry and light they say it might get better but who knows !

Jump to this post

@swwo98 With NAION part of the optic nerve is destroyed and can not be reversed. I have 10% of my vision and with cataract surgery my 10% is clear. I do not have any perphial vision and can't see under my nose. Sounds like something weird happened during your cataract surgery. I wish you well!

REPLY
Please sign in or register to post a reply.
  Request Appointment