Not diabetic with Chronic Pain with Idiopathic SFN, tried everything
I am running out of ideas, I have researched this disease inside and out. I have tried everything under the sun, From holistic acupuncture, chiropractic, to foods, to medication, PT, you name it I have probably have tried it.
I am now seeing a Pain Psychologist, Pain Management, a regular psychologist for my depression and anxiety. I noticed as soon as I get on my feet my legs start to hurt, meaning my calves are burning, throbbing, aching, and my feet feel like they are swollen but they’re not. They feel like heavy metal that I can’t lift my feet. Sometimes in the car, I feel like I can’t drive anymore and I am only 43 years old. This started when I was 35 I think, but wasn’t fully diagnosed or I should say didn’t believe me until 5 years ago after my small nerves are completely dead now.
I have even tried Medical Cannabis it gave me major panic attacks at first, but now I think my body is getting used to it, but it has to be only the THC and it only lasts for like an hour and that’s taking 4 pills. I am also on 1 morphine pill which is long-acting, more like not. Takes a little bit of the pain away for like 40 minutes if I am standing, then 2 hydrocodone later in the evening and afternoon. takes the pain away a little bit but not enough to enjoy life with my family, can’t walk up and down the stairs, can’t clean the house, or stand very long. the girls want me to take them shopping, but I can’t. they don’t understand and I get more upset at myself.
I researched medications that will work, I can’t seem to find anything, or my Pain management MD we don’t have the right combination or something isn’t right. I don’t understand how these people in the SFN foundation can go hiking, go on vacations with their families, etc. I can lye in bed and that’s about it.
My provider says to pace myself, but it’s kind of hard when you have two kids and a family to run and now I am trying to find a job. Hopefully, more PT, because I don’t think I can do an FT job now and come home and clean, cook, and spend time with the kids.
Please help with what meds have worked and not. I have tried Lyrica, Gabapentin, the antidepressants, some made my RLS worse at night. Nothing is taking this 24/7 pain away and I just want to cut my legs off seriously.