Does anybody have experience with SANEXAS for neuropathy?
Does anybody have experience with SANEXAS. It is touted as Electric Cell Signaling Treatment especially for peripheral neuropathy.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Hello @knucklehead4352 and welcome to Mayo Clinic Connect. I understand you are interested in hearing from members with experience with SANEXAS. I did a quick search on the site and found the following comments that you might find helpful by @erikas @dont
Do you have PN and where did you come across information on SANEXAS, if I may ask?
I had the Sanexas treatment for 8 weeks. 3 times a week. It did nothing for me. A huge disappointment for sure. I’m still in terrible pain with extreme burning in my legs and feet. The guy giving treatment to me took an instant dislike to me for some reason so I never really trusted him and perhaps it showed. But I tried and hoped for the best. Sorry I’m not helpful to all my friends on here who share this evil condition. I pray for y’all and myself daily! God bless all of us. 🙏❤️🇺🇸
Hi @knucklehead4352 — I would like to add my welcome to Connect along with @amandajro and @momalin. I looked into a similar treatment but declined since it was expensive with no guarantees. And then there is this….from the Foundation for Peripheral Neuropathy:
— Beware Expensive Treatments of Peripheral Neuropathy:
Note: Aug 20, 2022 – Link updated from Foundation for Peripheral Neuropathy website. Above link was converted and placed into an eCatalog here: https://www.foundationforpn.org/wp-content/uploads/2021/12/11.23.2021-Website-eCatalog.pdf
@johnbishop These look similar to the kinds of mixed bag products you sent me.
?? Can you expand? I'm not sure what products you mean.
Yes, I have PN. Large add in the Desert Sun newspaper in Palm Springs, CA.
I have had 24 treatments of sanexsas and when I started I had hot feet now I can hardly walk due to pain which I never had. They tell me the nerves are connecting and I should have 12 more. I have decided to seek other avenues as I am fearful the 12 more treatments would cripple me. If I could go back in time I would not do this. They apply 5 injections in ea foot and then the electrodes?
@sidemounts.. just happened to notice your post…. honestly it so upsets me when I read or hear of people with medical issues (I have a list too, different) seeking, searching for help .. only to have that promised relief either not work or make condition worse, or becomes worse for another reason….. talk about the uphill battle ! As my mum used to say we are on our feet a long time..
To have them so painful hurting to walk! I feel for you and hope you also have someone to guide you through this maze of remedies, cures and even relief. I know nothing about this treatment but I hope you or friend or relative can read the fine print…so disappointing when looking for anything to quell hot feet and now pain; wishing you the very best and hope to see that something somewhere has helped you…. J. 🌺
Hello @sidemounts and welcome to Mayo Clinic Connect. I am really sorry to hear about your experience and understand your hesitation to return for the remaining treatments. What has your neurologist said about how you have reacted this far in the treatment?
Have an upcoming appointment