New Transplant Blog Posts

Hello everyone,
We hope this finds everyone well today! We have started this discussion today to announce a new blog post. Every week, we will reply to this discussion to let you know when something new is published. Watch for new information often!

Have a productive and enjoyable week!
– Kristin

@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@rosemarya – Sorry I must be missing something. I scrolled up and could not find the blog re mental health that you referenced. Do you have a link for that?

Lynn

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@rosemarya – Forget it. I found the link, just had to look harder and go to a previous page. Sorry for being lazy.

Lynn

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@contentandwell

That is sad to hear that someone who worked so hard to get in shape would have a stroke – perhaps all the work she put into her health will give her a good recovery. Hope so at least. Keep us posted as you hear more.

Teresa

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@lcamino Lynn, I had little time this weekend and my devices were being ornery so I haven’t much time to respond to things.
I just googled that kidney — holy cow, I never realized they could be that big! You say ” (cysts will keep growing) after I get a transplant unless they remove my kidneys.” If you get a transplant will they not definitely remove your own kidneys?

As far as weight problems are concerned we should start some one-on-one messages encouraging and comparing how we are doing in weight loss. I have gained 10 pounds — they gotta go, this after just eating a handful of M&Ms. πŸ™

JK

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@rosemarya Thanks, Rosemary. You are very dear to say that. We try, for sure.
I am still reeling from the news about the other water aerobics woman. The latest updates have said she is improving somewhat and was able to sit in a chair today. She is at MGH, same hospital where I had my transplant so when she is ready for visitors I plan to visit her. To me that ride is old hat at this point, but to many up here the hour+ ride to Boston is unimaginable so I doubt many will do that. I know how much short visits can brighten up your day.
JK

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@hopeful33250 Thanks Teresa. It really wake you up to how fragile life is at our ages. She is 68.
JK

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@contentandwell, Yes, I think she will enjoy your short visit:-) I really think/believe that this is the ‘new life’ that we feel after transplant and recovery. We really know how much the ‘little’ things mean.
Do you go back to that hospital ever? I mean have you been there since your transplant? I don’t know if your visits to your MGH surgeon are in same or different building. Just be prepared because it might be emotional for you if it is your first time back.
I do hope that she continues to recover.
Plan to go on a nice day. And treat yourself to a lite lunch πŸ™‚
Rosemary

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@contentandwell

Yes, I hear you!

Teresa

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@rosemarya Rosemary, I actually see my transplant surgeon in a different building about a block away. I do see my medical oncologist in that building and recently saw the doctor I see for pulmonary hepatology (I was sort of borderline before transplant but am fine now so no more visits with him), and a dermatologist who specializes in transplant patients there, so yes I have been back numerous times. Honestly, it has not been emotional. The doctors there are not directly with my transplant.

I do feel a rising of gratitude when I see my transplant surgeon. I think he’s wonderful and feel so fortunate to have gotten my transplant when he was the one on call for that. I am sure the others are excellent also, I have had dealings with one other whom I saw initially and she visited me a couple of times when I was in the hospital, and she is probably excellent too but to me, Dr. Elias is the best.

Great idea, I love to lunch in Boston. Having traveled alone for both business and pleasure when I was single I don’t mind eating alone in restaurants, but of course if anyone else from the class wants to join me they will be welcome to do so. When I go to Boston for appointments my husband insists on coming. I thought great, we could combine dr. visits with a nice lunch but he always wants to get right home. πŸ™
JK

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@contentandwell – It depends on each person if they remove the kidneys at the time of transplant. My uncle’s PKD kidneys were never removed and my Dad’s were removed post transplant to manage pain since they were each the size of a football. I don’t know the reasoning behind the decision except I do know that doing a nephrectomy at the time of the transplant is a longer and more complicated surgery. I don’t think all centers will do a nephrectomy at the time of a transplant. I know the Mayo Clinic will do it but I don’t know what goes into that decision. I guess I’ll find out!

Lynn

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@contentandwell – I can’t help but notice you mentioned seeing a “medical oncologist”. Is that a result of your transplant? Just want to make sure there is not something else we should be praying for in regards to your health.

Maybe if you suggest a restaurant to your husband as a celebration for something he might make an exception this time. Might be worth a try.

Lynn

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@lcamino, Lynn that’s interesting. I just assumed if they gave you new kidneys they took the old ones, as they do in liver transplants. I still shudder when I think of how far gone my liver was when they dissected it.
JK

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@lcamino I have a medical oncologist because I had malignant lesions in my liver. They removed them with ablation. That happens I think in about 11% of people with cirrhosis. Since they were very close to the edge of my liver it was a tough removal and when they dissected my liver they discovered that there were a few malignant cells still there so now I have to continue to have MRIs and to see her to make sure the cells did not metastasize. For now everything is OK. I am going with the thought that it will continue to be since if not there is nothing I can do about it anyway so why agonize? If it has spread the prognosis is not good apparently so that is not going to happen. You know my slogan, “I’m gonna live forever, so far, so good”,
JK

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@lcamino, Yes, Lynn, you will learn so much when you are referred to the Kidney transplant dept. Rosemary

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@contentandwell

@lcamino Lynn, I’ll be there for you. Should I be a nag? πŸ˜‰ My husband used to go a gym all the time but then fell away from it. When I started going so regularly he was shamed into going again — I did not nag him. He does not go as often as I do but he does go about 3 times a week, which is good.
JK

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@contentandwell
Well, JK, maybe not live forever, but at the very least live it to the fullest !
Rosemary

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