New Transplant Blog Posts

Hello everyone,
We hope this finds everyone well today! We have started this discussion today to announce a new blog post. Every week, we will reply to this discussion to let you know when something new is published. Watch for new information often!

Have a productive and enjoyable week!
– Kristin

Sometimes the PCP is just not qualified, about the immunosuppressants, Medicare covers them for 36 months , that goes back to some legislation several years back, they are usually covered by a secondary insurance…depending on your situation you can get part D Medicare for drug coverage.

Sorry the other drugs are covered…etc.

@kequick

Morning everyone! @keggebraaten and I are at our Jacksonville campus today attending a transplant summit with a number of our physicians and administrators from all three sites. What a treat to be with colleagues we don't get to see very often and hear updates about our various transplant programs. We had the opportunity yesterday to talk about Mayo Clinic Connect and all of our wonderful members – you! We encouraged our physicians to invite their patients to join us here and connect with other transplant patients who have walked in their shoes 🙂

Anyway, I popped in to flag the new blog post we just published, which is a roundup of two posts from last year our transplant pharmacists helped us develop. The posts were very popular when we posted them last year, which is why we're sharing them again for anyone who missed them the first time around. Have a great day! https://connect.mayoclinic.org/newsfeed-post/transplant-medications-everything-you-need-to-know/?hd_preview=ba6226983ea3102ed585cd3cd4b5578d

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@kequick I have this printed out! It is very helpful.
JoDee

@ca426

Sorry the other drugs are covered…etc.

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@ca426 I had my transplant about 18 months ago. My immunosuppressants have been paid for by Medicare B. Are you saying that B will only pay for 3 years? I do have Medicare D for drug coverage but that is more apt to not be paid for as completely and these drugs are pretty costly I hear.
Regarding PCPs not being qualified, these pharmaceuticals are prescribed by my transplant surgeon, my PCP has nothing to do with them. My transplant team will not prescribe drugs that are not transplant related, they leave that to the PCP.
JK

@ca426

Sorry the other drugs are covered…etc.

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@ca426 Charlie, I am confused about your posts. My immunosuppressants are currently being paid for by Medicare B. You indicate that they only pay for three years and then it goes over to Medicare D. With Medicare D is it well covered or will we have to pay a lot more for these drugs? I thought we were done with exorbitant drug prices when I got my transplant and finally was able to no longer take xifaxan. If I recall before getting on Medicare you could research which Medicare D plans paid the most for the drugs you use. I guess I may have to do this now.
Thanks.
JK

Good morning friends,
I hope this first day of spring finds you in good spirits. We might have snow in Minnesota today, so our good spirits might have to wait until tomorrow. 🙂
In today's blog post, we celebrate National Kidney Month. This month, pay some extra attention to your kidneys and learn about their function and how to keep them healthy. If you are in need of a kidney transplant, have you taken advantage of the National Kidney Month hype to talk to your friends and family about kidney donation?
https://connect.mayoclinic.org/newsfeed-post/celebrate-national-kidney-month/

I’m having a kidney transplant at Mayo Rochester April 6th with my daughter being the donor. I am so fortunate since my age prevents me from being on a waiting list. Although it’s probably the scariest challenge I’ve faced, I’m very grateful to have it done while I’m still feeling good and it’ll be done at an excellent place.My daughter is a very enthusiastic donor and looking forward to a few weeks of r&r..

@cmael

I’m having a kidney transplant at Mayo Rochester April 6th with my daughter being the donor. I am so fortunate since my age prevents me from being on a waiting list. Although it’s probably the scariest challenge I’ve faced, I’m very grateful to have it done while I’m still feeling good and it’ll be done at an excellent place.My daughter is a very enthusiastic donor and looking forward to a few weeks of r&r..

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@cmael, Welcome to Mayo Connect! Thank you for joining our discussion and for sharing this incredible good news! This has to be the most exciting way to celebrate National Kidney Month ever!
May you and your daughter be forever blessed with peace and health.

I want to invite you to a discussion: Kidney transplant – The Journey from the Donor Side.
https://connect.mayoclinic.org/discussion/kidney-transplant-from-the-donor-side/

Rosemary

@cmael

We will be looking forward to hearing from you later in April!

Teresa

@cmael

I’m having a kidney transplant at Mayo Rochester April 6th with my daughter being the donor. I am so fortunate since my age prevents me from being on a waiting list. Although it’s probably the scariest challenge I’ve faced, I’m very grateful to have it done while I’m still feeling good and it’ll be done at an excellent place.My daughter is a very enthusiastic donor and looking forward to a few weeks of r&r..

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Thank you so much! I meant to also mention that since I’ve been reading the various posts, it has really helped calm some of my fears. My daughter gave me a t shirt that says “I’m a warrior. I’m stronger than I’ve ever been”. Got to remember that.

@cmael

I’m having a kidney transplant at Mayo Rochester April 6th with my daughter being the donor. I am so fortunate since my age prevents me from being on a waiting list. Although it’s probably the scariest challenge I’ve faced, I’m very grateful to have it done while I’m still feeling good and it’ll be done at an excellent place.My daughter is a very enthusiastic donor and looking forward to a few weeks of r&r..

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@cmael How wonderful! If you don't mind revealing this, how old are you? Sending prayers for good health and blessings for you and your daughter.

@cmael

I’m having a kidney transplant at Mayo Rochester April 6th with my daughter being the donor. I am so fortunate since my age prevents me from being on a waiting list. Although it’s probably the scariest challenge I’ve faced, I’m very grateful to have it done while I’m still feeling good and it’ll be done at an excellent place.My daughter is a very enthusiastic donor and looking forward to a few weeks of r&r..

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Thank you! I’m 75, although that number always seems a bit of a shock to me :). I’m sure others near my age feel the same way.

@cmael

I’m having a kidney transplant at Mayo Rochester April 6th with my daughter being the donor. I am so fortunate since my age prevents me from being on a waiting list. Although it’s probably the scariest challenge I’ve faced, I’m very grateful to have it done while I’m still feeling good and it’ll be done at an excellent place.My daughter is a very enthusiastic donor and looking forward to a few weeks of r&r..

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@cmael, Awesome! You are a wonderful example of the beauty of living kidney donation.

@cmael

I’m having a kidney transplant at Mayo Rochester April 6th with my daughter being the donor. I am so fortunate since my age prevents me from being on a waiting list. Although it’s probably the scariest challenge I’ve faced, I’m very grateful to have it done while I’m still feeling good and it’ll be done at an excellent place.My daughter is a very enthusiastic donor and looking forward to a few weeks of r&r..

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@cmael, Your daughter needs a "Hero" t-shirt!

@cmael

I’m having a kidney transplant at Mayo Rochester April 6th with my daughter being the donor. I am so fortunate since my age prevents me from being on a waiting list. Although it’s probably the scariest challenge I’ve faced, I’m very grateful to have it done while I’m still feeling good and it’ll be done at an excellent place.My daughter is a very enthusiastic donor and looking forward to a few weeks of r&r..

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Yes, she does!

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