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Multiple Sclerosis (MS) - please introduce yourself
Let's talk about living with multiple sclerosis (MS).
Welcome to the support group dedicated to multiple sclerosis to bring all those with this diagnosis or whose loved one has MS — or wondering if they or a loved one has MS — together. This also provides a great opportunity for those who have questions for those who share this diagnosis.
This MS support group is a welcoming, safe place for people to connect and share experiences; ask questions about doctor visits, symptom relief, the diagnostic process and available treatments; and encourage and check in on others in similar situations.
To be part of the MS group, you can:
- Follow the group. Following this group will allow you to receive regular updates in your Connect Daily Digest about group activity.
- Browse the discussion topics. From the group's home page, look through the discussion titles and see where you may have tips or ideas to contribute or a question to ask others.
- Use the group search to find discussions that interest you. If you want to find a specific, MS-related topic, this is the quickest way to see what's available in the group discussions.
- Introduce yourself. Giving a brief background on yourself, when and how you were diagnosed, and what treatments you've had so far will help others in the group get to know you and determine what they might ask you about your MS experiences.
Regardless of where you may be on your journey with MS today, you’re invited to join this group and connect with others.
Why not start by introducing yourself? What has your MS experience or the experience of your loved one been like? What symptoms and treatments have you or your loved one had, and have they helped? Do you have any questions you'd like to ask others who have MS or who've walked alongside someone with the disease?
Grab a cup of tea, iced coffee, or beverage of you choice, and let's chat.
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@disneyfan
I'm sure you do miss your job. I am glad to hear that you are feeling better.
Teresa
Hi Teresa,
I posted last night on my FGFR3 post on my latest thoughts. Thanks. Darlia
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1 ReactionI was just diagnosed with MS. Anyone out there? 🙂
Welcome to Connect, @1445.
You'll notice that I moved your message to this discussion group where members are talking about living with multiple sclerosis. I encourage you to click VIEW & REPLY in the email notification and read through the past and recent posts where you'll meet @ydawson @chefbrown @ricksraleigh @tashanharrell @pinkbooks9 @kcowan16 @disneyfan @raegun67 and others.
We look forward to getting to know you. Would you be comfortable sharing what led to your diagnosis of MS? How are you doing?
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1 ReactionI was diagnosed dec
I was diagnosed Dec,finally MS meds march have been through 3diffrent drs. Now have one that says the pain I feel is not MS because MS doesn't cause pain its stress causing the pain. So do I find yet another Dr?
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1 ReactionHello @tashanharrell
I am sorry to hear of your recent MS diagnosis and difficulty with pain. I did a little online research and found this information about MS and Pain. This comes from the MS Society and their information is pretty reliable. It does appear as if pain is definitely a symptom of MS. http://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Pain. As you can see, there is also some info about meds that can help with MS pain.
Also, here is some info from Mayo Clinic, and they mention pain from muscle stiffness and/or muscle spasms, http://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/dxc-20131884
We would like to get to know you better, if you feel comfortable sharing more about yourself, please let us know what led to your MS diagnosis? Were you having balance/gait problems? Were you diagnosed with a MRI or a lumbar puncture?
Teresa
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1 ReactionHello @tashanharrell,
I do not have MS but do have a few other autoimmune health issues. Dr. Terry Wahls got me started looking into my diet by her MS story. I've always known diet was important but never really focused on changing my lifestyle until a little over a year ago when I read her book about her diet and how it's helped with her MS symptoms. I thought you might find her TED Talk interesting. She has several on YouTube. Here is the link to her TED Talk - How I Went From Wheelchair to Walking By Changing My Diet:
John
Have been busy getting my daughter ready for school(she started 8/23) and watching the eclipse with both of my daughters. Yesterday I went shopping at 2 stores with my daughters and when we came home my oldest daughter mowed the grass and I weeded the yards and the gardens. My youngest daughter got all the laundry ready to wash and loaded the dishwasher. Before I went outside I put in a load of laundry and when I came inside I started the dishwasher. I finished the laundry and folded it before bedtime. After dinner I went outside and filled all the bird feeders. My legs have been feeling a lot better since my 2nd infusion of Ocrevus. I still have the pain from my hips up along with all my ailments. I was wondering if anyone has experienced these symptoms I am having. One side of my face is numb and I can barely hear with that ear. When I chew something I can hear it in my ear and also in my head. My glands feel like they are swollen or hard. Has anyone ever had anything like this?
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1 Reaction@disneyfan
While we wait for others to respond to your post, have you asked your doctor if these are typical symptoms following your infusion of Ocrevus?
Teresa