Multiple Sclerosis (MS) - please introduce yourself

Let’s talk about living with multiple sclerosis.
As Community Director of Connect and moderator of the Brain & Nervous System group, I noticed that several people were talking about MS, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Grab a cup of tea, or beverage of you choice, and let’s chat. Why not start by introducing yourself?

@lisalucier

Hi, @bumble81 – You'll notice I moved your post here to an existing discussion, "Multiple Sclerosis (MS) – please introduce yourself." If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Since you were talking about understanding some results from a multiple sclerosis panel, I thought you might like to meet some of the members here and they might have some information to share from their experiences (please note, however, that we are not medical professionals).

I'd like you to meet @stitchit57 @camper @lilgrizz @sauvee @hopeful33250. I'd also like to ask @brightwings @babette @karlene and @zebraclaire97 to join this conversation for their input. You indicated that you were trying to figure out what your panel results meant, as the doctor won't see you without an unaffordable full spine MRI, and that the neurologist said your panel came back negative but you had the following: elevated protein 58 MG/DL. Standard range is 14 to 45 MG/DL. And slightly elevated Albumin,CSF of 32 MG/DL. Standard range being 13.9 to 24.6 MG/DL.

This information from Mayo Clinic on MS may also be helpful https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269.

Is your primary care doctor willing to discuss your lab results with you further, @bumble81? Have you received any treatment thus far for the panic-like episodes?

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The neurologist said he did not want to see me until I got the other MRI's. He said my test indicate I do not have MS. Did not give me any other information.

My panic episode have slowed. I'm am no longer have upwards of 20 a day but I do still have them just about daily. I call it panic because that is what the ER said it was. I do not'the really know how to explain it. It's a very bizarre feeling and fear is just one component of it. It doesn't respond to benzo, or antidepressants.

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@lisalucier

Hi, @bumble81 – You'll notice I moved your post here to an existing discussion, "Multiple Sclerosis (MS) – please introduce yourself." If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Since you were talking about understanding some results from a multiple sclerosis panel, I thought you might like to meet some of the members here and they might have some information to share from their experiences (please note, however, that we are not medical professionals).

I'd like you to meet @stitchit57 @camper @lilgrizz @sauvee @hopeful33250. I'd also like to ask @brightwings @babette @karlene and @zebraclaire97 to join this conversation for their input. You indicated that you were trying to figure out what your panel results meant, as the doctor won't see you without an unaffordable full spine MRI, and that the neurologist said your panel came back negative but you had the following: elevated protein 58 MG/DL. Standard range is 14 to 45 MG/DL. And slightly elevated Albumin,CSF of 32 MG/DL. Standard range being 13.9 to 24.6 MG/DL.

This information from Mayo Clinic on MS may also be helpful https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269.

Is your primary care doctor willing to discuss your lab results with you further, @bumble81? Have you received any treatment thus far for the panic-like episodes?

Jump to this post

@bumble81
Hello, I am Bright Wings. I Accepted my diagnosis of MS in 1985. Note the word accepted…I was 35 before accepting what I had been told by many doctors before this last appointment.
I live very successfully with my MS. This is a dis-ease that does not go away. ACCEPTANCE of that is so important to the rest of your life.
So how do I live successfully with my MS? I RESPECT the fact I have it and I am going to have some good days and some more challenging days. That's the way it is.
I am PROACTIVE in protecting myself from being too hot or getting too cold, cuz it will come to mess me up for sure and steal my life as I know it and want it.
I GUARD my energy. Each of us has different ways the MS affects us. None of us will share the same story of our progression of symptoms. I often can not regenerate my energy after being too hot or cold or after stressful situations. It sucks when I run out of energy, cuz I know I don't get to play anymore for a while. Grin….
ATTITUDE is everything. I actively sought ways to learn to relax and let worries go…cuz worry sucks energy!!! Find the things that make you happy. Do them!!!!! When I am feeling sorry for myself, I am sucking my energy right out of me. Then my dis-ease takes over. I know I am making living with MS sound easy, it can be or not….its how you choose to live your life. Learning all these things has not been easy. It took many years to put this all together.
SLEEP is imperative to living a successful life with MS. When I don't get enough rest, my symptoms will get worse. I can not get back my energy as fast as when I am rested. Guarenteed…..
I REFUSE to allow this dis-ease to rule my life. So I live along side my MS. It is my constant companion. When I am EVER-OBSERVANT for conditions that are not beneficial for my MS, I don't go there…why, cuz then the MS takes over and I lose days weeks, months or years to the dis-ease. It's my choice. I would rather live my life with me being in control rather than my
dis-ease.
Ok, so that is how to live successfully with MS in a nut shell. By following the words in capitals, I get to be in charge of my life rather than this dis-ease taking control.
I use CBD to lessen the symptoms when they are present which is everyday. The cheapest and best brand I have found is Lazarus Naturals. On my worse days I use 1/2 tsp 3 x daily. The kind I use is CBD in coconut oil, 1200 mg of CBD. If you contact the company and send in a doctors note, now they have increased the discount to 60% over buying it at a store.
I will use CBD until the day I die! It changed my life that much. All my aches and pains went away. I receive no compensation from the company.
I write dis-ease each time because when I am living along side my MS, so many days I forget I have it.
I hope you will print this out and read it everyday.
My best to you, and who ever comes after this and reads it.
Now having written all that, I must also share the polar vortex got me. I am headed into the worse relapse in many many years. So I am being proactive to get myself into a better home that will be easier for me to control the temperature in the house cuz after an el Nino winter comes an incredibly hot summer. I almost died of cold inside my newly rented house a few weeks ago. So I am taking ACTION to get myself into a different home that is more MS friendly.
@lisalucier thanks for bringing me in here. I need to be here now.
BRIGHT WINGS not flying so high right now

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@brightwings

@bumble81
Hello, I am Bright Wings. I Accepted my diagnosis of MS in 1985. Note the word accepted…I was 35 before accepting what I had been told by many doctors before this last appointment.
I live very successfully with my MS. This is a dis-ease that does not go away. ACCEPTANCE of that is so important to the rest of your life.
So how do I live successfully with my MS? I RESPECT the fact I have it and I am going to have some good days and some more challenging days. That's the way it is.
I am PROACTIVE in protecting myself from being too hot or getting too cold, cuz it will come to mess me up for sure and steal my life as I know it and want it.
I GUARD my energy. Each of us has different ways the MS affects us. None of us will share the same story of our progression of symptoms. I often can not regenerate my energy after being too hot or cold or after stressful situations. It sucks when I run out of energy, cuz I know I don't get to play anymore for a while. Grin….
ATTITUDE is everything. I actively sought ways to learn to relax and let worries go…cuz worry sucks energy!!! Find the things that make you happy. Do them!!!!! When I am feeling sorry for myself, I am sucking my energy right out of me. Then my dis-ease takes over. I know I am making living with MS sound easy, it can be or not….its how you choose to live your life. Learning all these things has not been easy. It took many years to put this all together.
SLEEP is imperative to living a successful life with MS. When I don't get enough rest, my symptoms will get worse. I can not get back my energy as fast as when I am rested. Guarenteed…..
I REFUSE to allow this dis-ease to rule my life. So I live along side my MS. It is my constant companion. When I am EVER-OBSERVANT for conditions that are not beneficial for my MS, I don't go there…why, cuz then the MS takes over and I lose days weeks, months or years to the dis-ease. It's my choice. I would rather live my life with me being in control rather than my
dis-ease.
Ok, so that is how to live successfully with MS in a nut shell. By following the words in capitals, I get to be in charge of my life rather than this dis-ease taking control.
I use CBD to lessen the symptoms when they are present which is everyday. The cheapest and best brand I have found is Lazarus Naturals. On my worse days I use 1/2 tsp 3 x daily. The kind I use is CBD in coconut oil, 1200 mg of CBD. If you contact the company and send in a doctors note, now they have increased the discount to 60% over buying it at a store.
I will use CBD until the day I die! It changed my life that much. All my aches and pains went away. I receive no compensation from the company.
I write dis-ease each time because when I am living along side my MS, so many days I forget I have it.
I hope you will print this out and read it everyday.
My best to you, and who ever comes after this and reads it.
Now having written all that, I must also share the polar vortex got me. I am headed into the worse relapse in many many years. So I am being proactive to get myself into a better home that will be easier for me to control the temperature in the house cuz after an el Nino winter comes an incredibly hot summer. I almost died of cold inside my newly rented house a few weeks ago. So I am taking ACTION to get myself into a different home that is more MS friendly.
@lisalucier thanks for bringing me in here. I need to be here now.
BRIGHT WINGS not flying so high right now

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Thank you for the reply. As far as I know I do not have MS luckily. It sounds like you are managing your MS very well. I wish you the very best and continued good health:)

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@bumble81

Thank you for the reply. As far as I know I do not have MS luckily. It sounds like you are managing your MS very well. I wish you the very best and continued good health:)

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@bumble81
I invite you to stick around. I have been teaching how to control my panic attacks and the specific methods of giving yourself endorphins on another page. I have been working on a fairly tragic childhood since '86. I remember all the things that helped and share them here. The pages are named, "Withdrawing from Effexor". I invite you to check them out. Smiling at you,
Bright Wings

Liked by bumble81

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@bumble81

Thank you for the reply. As far as I know I do not have MS luckily. It sounds like you are managing your MS very well. I wish you the very best and continued good health:)

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@bumble81 – I note you are saying the doctor did tell you that you don't have MS following the MS panel. How frequently are you experiencing the episodes you talked about?

That sounds very difficult that the panic episodes do not respond to antidepressants or benzodiazepines. You might be interested in a few Connect discussions on panic/anxiety:
https://connect.mayoclinic.org/discussion/anxiety-or-panic-attack/
https://connect.mayoclinic.org/discussion/nervousness-and-worry/
https://connect.mayoclinic.org/discussion/over-the-counter-anxiety-medicine/

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I was diagnosed with RRMS in 2015, but started with Gastroparesis in 2014. Apparently, that's backwards! Since then, I've also been diagnosed with Trigeminal Neuralgia and Heart Failure. All but the heart failure is due to MS. All this at the young age of 49. My uncle and brother also have MS, but they have PPMS. They are in wheelchairs and I'm still mobile. Anyways, I've had Lemtrada, two rounds, hoping to slow the progression of MS. I tried Copaxone and Aubagio, but they did not help. I'm on a lot of other medications too. I'm a mom of 3 girls. One natural, special needs adult now, and we are raising 2 nieces, ages 8 and 10. I taught Special Education students for 21 years, but had to stop. So, I stay home and try to survive! I'm glad to have found another group for MS. I'm hoping to learn a lot here.

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Hello
I am new here. I was diagnosed with MS 5 years ago (I probably had it for an additional 8-9 years) symptoms then would only last a day maybe two and I would go back to being perfectly normal so partly my fault for not going to the doctor and advocatin however, whenever I would go to the doctor I was told I was stressed or working to hard. Fast forward to 2014 when I was working and things really got out of control and they didn’t go away. I feared I must have a brain tumor went for an MRI where they found multiple brain lesions with a suspected MS diagnosis. I went to Boston to have a battery of tests done and two months later I was diagnosed with MS. I sought out a second opinion from another Boston hospital as I have heard to many people either do not get diagnosed when they have MS or it takes forever or get diagnosed to find out years later they don’t have MS. The second doctor agreed with the diagnosis so I began getting my treatment and care a little closer to home. Life has thrown a few curve balls and due to different symptoms I have I can’t always drive the 40 minutes I need too get to my current neurologist office, so I decided to go see a neurologist at UMASS in Worcester thinking I was simply transferring my care from one neurologist to another. This neurologist is pretty sure I have MS however, I am what he calls a “grey” diagnosis because I don’t check off all the MS diagnosis criteria specifically, I did not have oligoclonal bands at diagnosis. All my other findings are compatible with an MS diagnosis. Symptoms, MRI I have juxtacortical lesions that are specific to MS only and many other areas of the brain as well thankfully so far no spinal lesions. I have vitamins D deficiency, and tested positive for having had at some point Epstein-Barr virus and my index is very high. This doctor has me questioning my diagnosis now, worrying about being that person who took forever to get a diagnosis devastated when I got an MS diagnosis and all that entails, took years to accept the diagnosis and now worrying the MS diagnosis will be suspended and here I go back into the black hole of the “I don’t know what you have” from doctors. I have not officially left me old neurologist and struggling to know what to do. Obviously if I was grossly misdiagnosed I would want to know that however, I don’t want to fall back into the unknown simply because I don’t check off every box for diagnosis. I am no longer working so I live off my SSDI and LTD if he undiagnosis me I will lose my financial means to survive and still can’t work. Lots of cognitive issues, fatigue, vision issues, muscle weakness and limbs get tired easily, and lots of pain. This doctors primary focus is on no oligoclonal bands. My original neurologist who did the spinal tap said bands help to definitively diagnosis patients she said from her perspective this test was mainly to rule out other diseases that can mimic MS. This new neurologist and he is accurate said 90% of MS patients have these bands. I also have hypogammagloulinemia (low IGA, IGG, IGM) I have tried to research whether this could provide false negative results in a spinal tap for oligoclonal bands and I can’t find any studies or answers. So now I sit here everyday worrying about taking a DMD and what they can do to me and I worry to not take them and have progression of MS if I even have MS, heads spinning after taking years to accept this diagnosis. Sorry this is so long I could really use some advice and wisdom.

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@rjader1266, @luckydog
Welcome to the crazy world of MS. I, like you guys chased my symptoms to make a difinative diagnosis with multiple docs….spent a fortune doing it. Made myself crazy listening to different docs…diagnosed and undiagnosed many times….that why in my latest post here I say I accepted my diagnosis at age 35.
That was 1986.
In 2006, I had to go on a cruise with my mom. 3 1/2 month long cruise…..It blew my MS up. With no time to rest and all the excitement of the ports of calls and shore excursions, along with living with my greatest abuser for all those months, I had EXTREME Changes in my body and especially vision.
Back to seeing new Neuro docs…..
I chose to go for my first and last dose of MS medication. Rebif….
I vowed to never take another dose of med after the changes in my personality from the med. For me the side effect of the med was RAGE, OH DID I MENTION RAGE?????????
I am the sweetest person, but not after the medicine.
My life calmed down after I realized I do have MS and that's the way it is. I learned I had to calm down and start looking for ways to make it easier for me to live along side my MS Cuz it was going to be with me for the rest of my life…
I realized each time I worried, I was sucking my energy and making my MS worse….
I started studying different methods of relaxation to give myself peace. Becoming an expert at obtaining peace ALL thru the day, allows me to live a triumphant life…with MS.
Keep coming back…..
My best suggestion I have is to accept you have this diagnosis. Each of you have been on the diagnostic merry go round long enough….and this is your choice.
My best wishes to each of you. Bright Wings

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I have been working with a kinseologist. Last week he shared with me about Collodidal Gold from the health food store. ($9.56)
I went out and got it.
All winter I have been suffering from cycles of shivering, so intense even my bones were shivering. I could not regenerate my energy. Also I would completely lose my appetite, which is not compatible with life. I can't tell you how many meals I ate that just tasted like wood.
So yesterday, I finally chose to use it. I put 2 drops under my tongue and then took 2 more drops an hour later. Oh my, the shivering started big time…way exaggerated from normal. About 2 hours later, they faded away and I have not felt anymore shivering or the rest of the symptoms.
About 3 hours after taking, suddenly I sat up, my upper spine straightened and felt tingles near my bra strap. Wow, have not been able to straighten that curve since 2013 when I damaged that area trying to pick up a very drunk girlfriend for 1/2 hour.
So what this gold product does is repair the electrical system of the brain.
That's pretty cool, right????
I took another 4 drops last night…I feel good today, rested AND I have energy.
I am so grateful. Bright Wings

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@brightwings

@rjader1266, @luckydog
Welcome to the crazy world of MS. I, like you guys chased my symptoms to make a difinative diagnosis with multiple docs….spent a fortune doing it. Made myself crazy listening to different docs…diagnosed and undiagnosed many times….that why in my latest post here I say I accepted my diagnosis at age 35.
That was 1986.
In 2006, I had to go on a cruise with my mom. 3 1/2 month long cruise…..It blew my MS up. With no time to rest and all the excitement of the ports of calls and shore excursions, along with living with my greatest abuser for all those months, I had EXTREME Changes in my body and especially vision.
Back to seeing new Neuro docs…..
I chose to go for my first and last dose of MS medication. Rebif….
I vowed to never take another dose of med after the changes in my personality from the med. For me the side effect of the med was RAGE, OH DID I MENTION RAGE?????????
I am the sweetest person, but not after the medicine.
My life calmed down after I realized I do have MS and that's the way it is. I learned I had to calm down and start looking for ways to make it easier for me to live along side my MS Cuz it was going to be with me for the rest of my life…
I realized each time I worried, I was sucking my energy and making my MS worse….
I started studying different methods of relaxation to give myself peace. Becoming an expert at obtaining peace ALL thru the day, allows me to live a triumphant life…with MS.
Keep coming back…..
My best suggestion I have is to accept you have this diagnosis. Each of you have been on the diagnostic merry go round long enough….and this is your choice.
My best wishes to each of you. Bright Wings

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Thank you for responding, I thought I had come to full acceptance that I have MS until this particular neurologist threw the words of doubt at me after almost six years after diagnoses. Trying to get my head right again, I am pretty confident I have MS however, if truly not having bands is a huge red flag I my need to consider this however, I already had sooooooo much testing five years ago and it wasn’t fun and cost me lots of money out of pocket, that’s a road I don’t want to go down again. This is such a difficult disease to diagnose and to live with physically and emotionally I just feel like I am back at square 1 constantly wondering if I really have MS or something that looks like MS. I have researched every disease that mimics MS and I don’t fit those diseases so everything takes me back to MS 😫

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@rjader1266

I was diagnosed with RRMS in 2015, but started with Gastroparesis in 2014. Apparently, that's backwards! Since then, I've also been diagnosed with Trigeminal Neuralgia and Heart Failure. All but the heart failure is due to MS. All this at the young age of 49. My uncle and brother also have MS, but they have PPMS. They are in wheelchairs and I'm still mobile. Anyways, I've had Lemtrada, two rounds, hoping to slow the progression of MS. I tried Copaxone and Aubagio, but they did not help. I'm on a lot of other medications too. I'm a mom of 3 girls. One natural, special needs adult now, and we are raising 2 nieces, ages 8 and 10. I taught Special Education students for 21 years, but had to stop. So, I stay home and try to survive! I'm glad to have found another group for MS. I'm hoping to learn a lot here.

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I am so sorry you now have heart failure that must be very scary for you, do they think the MS caused issues with your heart or could it be a DMD that impacted your heart?

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@luckydog

Hello
I am new here. I was diagnosed with MS 5 years ago (I probably had it for an additional 8-9 years) symptoms then would only last a day maybe two and I would go back to being perfectly normal so partly my fault for not going to the doctor and advocatin however, whenever I would go to the doctor I was told I was stressed or working to hard. Fast forward to 2014 when I was working and things really got out of control and they didn’t go away. I feared I must have a brain tumor went for an MRI where they found multiple brain lesions with a suspected MS diagnosis. I went to Boston to have a battery of tests done and two months later I was diagnosed with MS. I sought out a second opinion from another Boston hospital as I have heard to many people either do not get diagnosed when they have MS or it takes forever or get diagnosed to find out years later they don’t have MS. The second doctor agreed with the diagnosis so I began getting my treatment and care a little closer to home. Life has thrown a few curve balls and due to different symptoms I have I can’t always drive the 40 minutes I need too get to my current neurologist office, so I decided to go see a neurologist at UMASS in Worcester thinking I was simply transferring my care from one neurologist to another. This neurologist is pretty sure I have MS however, I am what he calls a “grey” diagnosis because I don’t check off all the MS diagnosis criteria specifically, I did not have oligoclonal bands at diagnosis. All my other findings are compatible with an MS diagnosis. Symptoms, MRI I have juxtacortical lesions that are specific to MS only and many other areas of the brain as well thankfully so far no spinal lesions. I have vitamins D deficiency, and tested positive for having had at some point Epstein-Barr virus and my index is very high. This doctor has me questioning my diagnosis now, worrying about being that person who took forever to get a diagnosis devastated when I got an MS diagnosis and all that entails, took years to accept the diagnosis and now worrying the MS diagnosis will be suspended and here I go back into the black hole of the “I don’t know what you have” from doctors. I have not officially left me old neurologist and struggling to know what to do. Obviously if I was grossly misdiagnosed I would want to know that however, I don’t want to fall back into the unknown simply because I don’t check off every box for diagnosis. I am no longer working so I live off my SSDI and LTD if he undiagnosis me I will lose my financial means to survive and still can’t work. Lots of cognitive issues, fatigue, vision issues, muscle weakness and limbs get tired easily, and lots of pain. This doctors primary focus is on no oligoclonal bands. My original neurologist who did the spinal tap said bands help to definitively diagnosis patients she said from her perspective this test was mainly to rule out other diseases that can mimic MS. This new neurologist and he is accurate said 90% of MS patients have these bands. I also have hypogammagloulinemia (low IGA, IGG, IGM) I have tried to research whether this could provide false negative results in a spinal tap for oligoclonal bands and I can’t find any studies or answers. So now I sit here everyday worrying about taking a DMD and what they can do to me and I worry to not take them and have progression of MS if I even have MS, heads spinning after taking years to accept this diagnosis. Sorry this is so long I could really use some advice and wisdom.

Jump to this post

Hi, @luckydog – that sounds very difficult, both with the symptoms like cognitive issues, fatigue, vision issues, muscle weakness, limbs that get tired easily and lots of pain. I do not have MS, but I've had the experience of doctors going back and forth about whether I have asthma off and on for years. It's frustrating and troubling.

Glad you have met @brightwings and received some insights from her MS experiences. As you are facing worry the MS diagnosis will be suspended and about going "back into the black hole of the 'I don’t know what you have'” from doctors, plus the concern you'll lose your financial means to survive if the doctor changes the diagnosis, I also wanted to invite into this conversation a few other members whose support might be helpful, like @hopeful33250 @johnbishop and @jenniferhunter.

What physical symptom is the most challenging for you right now, @luckydog?

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@luckydog
I hear you on the expense of the testing. Been there, don't want to do it again.
Ok, so what will the difference be if you have this darn dis-ease or not?
Bright Wings

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Hi @luckydog – When I'm trying to find new or research type medical information a lot of times I will use Google Scholar (https://scholar.google.com/). Most of the time the information I find is way over my head but sometimes you can glean some information that may be helpful for learning a little more about a condition. I did a search on Google Scholar using the phrase "low IGA, IGG, IGM +spinal tap for oligoclonal bands" to see what it would find and was surprised by the amount of links. Here is a link to the search results:
https://scholar.google.com/scholar?hl=en&as_sdt=1%2C24&as_vis=1&q=low+IGA%2C+IGG%2C+IGM+%2Bspinal+tap+for+oligoclonal+bands&btnG=
I also found a few articles on MS that may help you learn a little more about the condition.

6 Ways to Help You Cope and Accept Your Diagnosis
https://multiplesclerosisnewstoday.com/2018/02/07/ms-six-ways-to-help-you-cope-and-accept-your-diagnosis/

MS and your emotions
https://www.mstrust.org.uk/life-ms/wellbeing/ms-and-your-emotions

I have several autoimmune conditions and was kind of down when I was diagnosed with each of them. What has helped me get through them is learning as much as I can, doing what I can to help improve the symptoms that are within my capability, and accepting what I can do nothing about…not that I like it.

Hoping you find some answers…

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@johnbishop

Hi @luckydog – When I'm trying to find new or research type medical information a lot of times I will use Google Scholar (https://scholar.google.com/). Most of the time the information I find is way over my head but sometimes you can glean some information that may be helpful for learning a little more about a condition. I did a search on Google Scholar using the phrase "low IGA, IGG, IGM +spinal tap for oligoclonal bands" to see what it would find and was surprised by the amount of links. Here is a link to the search results:
https://scholar.google.com/scholar?hl=en&as_sdt=1%2C24&as_vis=1&q=low+IGA%2C+IGG%2C+IGM+%2Bspinal+tap+for+oligoclonal+bands&btnG=
I also found a few articles on MS that may help you learn a little more about the condition.

6 Ways to Help You Cope and Accept Your Diagnosis
https://multiplesclerosisnewstoday.com/2018/02/07/ms-six-ways-to-help-you-cope-and-accept-your-diagnosis/

MS and your emotions
https://www.mstrust.org.uk/life-ms/wellbeing/ms-and-your-emotions

I have several autoimmune conditions and was kind of down when I was diagnosed with each of them. What has helped me get through them is learning as much as I can, doing what I can to help improve the symptoms that are within my capability, and accepting what I can do nothing about…not that I like it.

Hoping you find some answers…

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Thank you so much for your response and for taking the time to provide me these links I will check this out and hope I can find some answers to help reassure myself.

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