Connect
Multiple Sclerosis (MS) - please introduce yourself
Let's talk about living with multiple sclerosis (MS).
Welcome to the support group dedicated to multiple sclerosis to bring all those with this diagnosis or whose loved one has MS — or wondering if they or a loved one has MS — together. This also provides a great opportunity for those who have questions for those who share this diagnosis.
This MS support group is a welcoming, safe place for people to connect and share experiences; ask questions about doctor visits, symptom relief, the diagnostic process and available treatments; and encourage and check in on others in similar situations.
To be part of the MS group, you can:
- Follow the group. Following this group will allow you to receive regular updates in your Connect Daily Digest about group activity.
- Browse the discussion topics. From the group's home page, look through the discussion titles and see where you may have tips or ideas to contribute or a question to ask others.
- Use the group search to find discussions that interest you. If you want to find a specific, MS-related topic, this is the quickest way to see what's available in the group discussions.
- Introduce yourself. Giving a brief background on yourself, when and how you were diagnosed, and what treatments you've had so far will help others in the group get to know you and determine what they might ask you about your MS experiences.
Regardless of where you may be on your journey with MS today, you’re invited to join this group and connect with others.
Why not start by introducing yourself? What has your MS experience or the experience of your loved one been like? What symptoms and treatments have you or your loved one had, and have they helped? Do you have any questions you'd like to ask others who have MS or who've walked alongside someone with the disease?
Grab a cup of tea, iced coffee, or beverage of you choice, and let's chat.
Like
Helpful
HugInterested in more discussions like this? Go to the Multiple Sclerosis (MS) Support Group.
Connect
@darlia I completely understand your frustration with not having call backs from doctors offices and they don't know what the scans they ordered mean. I am in agreement with everyone else that a trip to Mayo might be beneficial into to finding out what is wrong with you. I had to make that trip myself to find out what was wrong with me.
-
Like -
Helpful -
Hug
3 ReactionsI had a rough weekend and I am just now feeling up to writing. Our church had their annual Prairie Fest and we were there from 5-10:30 on Friday, on Saturday from 12-10:30, and on Sunday from 11-5 after church. My arms were so sore today I couldn't put on my socks because I could barely raise my arm and my muscles hurt. My legs were numb and so stiff it hurt to bend my knees. I had shooting pain down my neck and back and my fingers were stiff with tingling pain. I had headaches that wouldn't go away even with meds. My face is numb on one side and I can barely hear out the ear on that side. I am feeling tired so I will close for now.
-
Like -
Helpful -
Hug
1 ReactionWow! Reading what you published here is like looking in the mirror! But I HAVE NOT been diagnosed with MS! (Yet!)
My life is the same. Including the not knowing what it feels like to NOT have pain. I always snicker at the medical appts/tests and procedures when they ask you "do you have any pain?" Ha ha ha!! I NEVER get to say no. Okay, if I'm just waking up from maybe yes!
But as for this keep n keeping on. This old world will get better some day. The Bible promises this!
Cyber Hugs to you!
PS.. I've been to Mayo in Scottsdale. AZ in 2010. If I can I'll make an appt there for this Winter
-
Like -
Helpful -
Hug
2 ReactionsHello Rob @disneyfan
Thanks for checking in with us. Hmm, Prairie Fest - I haven't heard of that before - can you tell us some more?
I am sorry to hear of your symptoms after being busy, however, neurological disorders are like that. In order to keep your symptoms at bay it is important to moderate your activity level with resting. It really does involve achieving a different lifestyle but it is well worth the adjustment in order to avoid the extreme symptoms you describe in your post. Here is some info from the National MS Foundation regarding fatigue and MS http://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Fatigue
How are you feeling this morning?
Teresa
-
Like -
Helpful -
Hug
1 ReactionHello Darlia @darlia
Nice to hear from you.
I am glad to hear that Mayo in Scottsdale is familiar to you. Will you keep us posted and let us know how you are feeling?
Teresa
-
Like -
Helpful -
Hug
1 Reaction@kcowan16
Thanks for your encouraging words. How are you feeling these days?
Teresa
-
Like -
Helpful -
Hug
1 Reaction@hopeful33250. I am ok most days. I am getting use to taking my Plegridy injections every two weeks. In the back of my mind I am worried that I might have another flare when the seasons change and what new or old symptoms will appear. Hopefully the meds will be in my system good enough to prevent this from happening.
-
Like -
Helpful -
Hug
1 Reaction@kcowan16
Yes, I hope that the meds will help you to take on the seasonal changes without any difficult flares. Here are some websites that talk about MS flare-ups: http://www.nationalmssociety.org/Treating-MS/Managing-Relapses and http://www.webmd.com/multiple-sclerosis/ms-flare-causes
Teresa
-
Like -
Helpful -
Hug
1 ReactionHi @disneyfan, I find that I have to limit my activities to make sure I don't over do it. My body does the same thing to me when I don't take things slow and easy. It is so easy to get wrapped up in the fun without realizing it's going to cause some pain and soreness later.
Hoping you recover quickly. John
-
Like -
Helpful -
Hug
1 ReactionToday I am feeling much better just have a headache and earache besides the usual pains. This festival is something our church has and the name is just what we call ours because it is built on a prairie that we maintain. I am doing laundry because my wife starts school tomorrow and my daughter starts next week. I have a hard time during school season because before I got this PPMS I was a special education teacher. I really miss the classroom and the kids.
-
Like -
Helpful -
Hug
1 Reaction