Multiple Sclerosis (MS) - please introduce yourself

@disneyfan

I'm sure you do miss your job. I am glad to hear that you are feeling better.

Teresa

Hi Teresa,

I posted last night on my FGFR3 post on my latest thoughts. Thanks. Darlia

I was just diagnosed with MS. Anyone out there? 🙂

Welcome to Connect, @1445.
You'll notice that I moved your message to this discussion group where members are talking about living with multiple sclerosis. I encourage you to click VIEW & REPLY in the email notification and read through the past and recent posts where you'll meet @ydawson @chefbrown @ricksraleigh @tashanharrell @pinkbooks9 @kcowan16 @disneyfan @raegun67 and others.

We look forward to getting to know you. Would you be comfortable sharing what led to your diagnosis of MS? How are you doing?

I was diagnosed dec

I was diagnosed Dec,finally MS meds march have been through 3diffrent drs. Now have one that says the pain I feel is not MS because MS doesn't cause pain its stress causing the pain. So do I find yet another Dr?

Hello @tashanharrell

I am sorry to hear of your recent MS diagnosis and difficulty with pain. I did a little online research and found this information about MS and Pain. This comes from the MS Society and their information is pretty reliable. It does appear as if pain is definitely a symptom of MS. http://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Pain. As you can see, there is also some info about meds that can help with MS pain.

Also, here is some info from Mayo Clinic, and they mention pain from muscle stiffness and/or muscle spasms, http://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/dxc-20131884

We would like to get to know you better, if you feel comfortable sharing more about yourself, please let us know what led to your MS diagnosis? Were you having balance/gait problems? Were you diagnosed with a MRI or a lumbar puncture?

Teresa

Hello @tashanharrell,

I do not have MS but do have a few other autoimmune health issues. Dr. Terry Wahls got me started looking into my diet by her MS story. I've always known diet was important but never really focused on changing my lifestyle until a little over a year ago when I read her book about her diet and how it's helped with her MS symptoms. I thought you might find her TED Talk interesting. She has several on YouTube. Here is the link to her TED Talk - How I Went From Wheelchair to Walking By Changing My Diet:

John

Have been busy getting my daughter ready for school(she started 8/23) and watching the eclipse with both of my daughters. Yesterday I went shopping at 2 stores with my daughters and when we came home my oldest daughter mowed the grass and I weeded the yards and the gardens. My youngest daughter got all the laundry ready to wash and loaded the dishwasher. Before I went outside I put in a load of laundry and when I came inside I started the dishwasher. I finished the laundry and folded it before bedtime. After dinner I went outside and filled all the bird feeders. My legs have been feeling a lot better since my 2nd infusion of Ocrevus. I still have the pain from my hips up along with all my ailments. I was wondering if anyone has experienced these symptoms I am having. One side of my face is numb and I can barely hear with that ear. When I chew something I can hear it in my ear and also in my head. My glands feel like they are swollen or hard. Has anyone ever had anything like this?

@disneyfan

While we wait for others to respond to your post, have you asked your doctor if these are typical symptoms following your infusion of Ocrevus?

Teresa