Multiple Sclerosis (MS) - please introduce yourself
Let's talk about living with multiple sclerosis.
As Community Director of Connect and moderator of the Brain & Nervous System group, I noticed that several people were talking about MS, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.
Grab a cup of tea, or beverage of you choice, and let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Brain & Nervous System Support Group.
I have MS on March 1st 13 years. On 2/24 I woke up with the worst headache & I never get. I did have a active brain lesion. I couldn’t see & did everything I was suppose two. My left eye is better but still can’t see out of my right eye. I have become so weak. I won’t know what to do until Monday & I just keepi panicking. Any one else have this happened ?
I can only imagine how frightening these new symptoms must be. It's hard not to panic. But of course, it doesn't help, does it?
I've searched the discussions and haven't found specific conversations where people with MS are talking about sudden sight loss. However, I would like to introduce you to a few Connect members and conversations.
In these threads, you'll meet @jessejames4534 @carolyns and @lal2
It's been a few hours since you first posted this message. Has there been any change? Do you have an appointment to see a doctor tomorrow?
Hi @anisha1232 @ricksraleigh @chefbrown @tlgreg60 @rockypoint67 @sebley12 @manysilver @jessejames4534 @carolyns and @lal2 I’d like to invite you to the new discussion about multiple sclerosis to make it easier for you to meet other Connect members living with and talking about MS. Pull up a chair and tell us a bit about yourself.
Hello my name is Yulander I have an autoimmune diseases called Multiple Sclerosis. I have been a healthcare provider over 20+ years and I have seen how Multiple Sclerosis have crippled people throughout my career. Today they have no cure but the good thing is the medicine they have helped keep people alive and to continue to work with relapsing and remission. Next week I will be starting my new medication with the ability to continue to work. However, Multiple Sclerosis is a demyelinating disease in which the insulating covers of nerve cells in the brain and spinal cord are damaged. This damage disrupts the ability of parts of the nervous system to communicate, resulting in a range of signs and symptoms, including physical, mental, and sometimes psychiatric problems.
Hi Yulander, welcome to Connect.
I’m so glad you found us. I actually moved your message to the Brain & Nervous System group so that you could meet others talking about MS. Just a few days ago @ricksraleigh joined our community looking to connect. What perfect timing.
Yulander, when were you first diagnosed with MS? How do you manage work and relapses?
Hi Yulander! I have also seen the effects of progressive MS with my mom! Now, I have Relapsing/remitting MS and continue to be a fighter! WE WILL OVERCOME THIS DISEASE!
Hi my name is Yulander!
Yes we wil overcome this disease!
Hi Yulander, Welcome to Connect. Can you share what the new medication is?
I don’t have MS but do have an autoimmune disease – small fiber peripheral neuropathy which was diagnosed this past March. A book that I found interesting that is written by someone who has MS started me on my journey of possible diet and nutrition changes that I can make to help my autoimmune disease and slow down progression. You may find it interesting also – http://terrywahls.com/about/about-terry-wahls/.
Hi John, Tysabri this medication treat MS and Crones disease!