Multifocal Adenocarcinoma of the lung, continual recurrences

Posted by Merry, Volunteer Mentor @merpreb, Dec 11, 2018

We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.

For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.

This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.

Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn’t know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don’t even know where they start..

Multifocal Adenocarcinoma has sub types and it’s management is based on whether it’s indolent or very virulent.

These are very simplistic explanations. Even doctors are confused by it and it’s only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).

The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It’s enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.

@merpreb

@catlover1943– Sallie please keep me updated. I'm thinking of you. Stay safe.

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Good morning @catlover1943. How are you doing? Happy New Year.

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@meka; @bluelagoon; @linda10; @sakota– Happy New Year. How are you all doing? Meka, you have an appointment coming up soon, right? I'm waiting for the radiologist to put his report on my portal, but I feel good!

I have been over careful if that's a word with COVID-19. I hope that you have all escaped it. It's very bad in my state.

Are you all well?

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@merpreb

@meka; @bluelagoon; @linda10; @sakota– Happy New Year. How are you all doing? Meka, you have an appointment coming up soon, right? I'm waiting for the radiologist to put his report on my portal, but I feel good!

I have been over careful if that's a word with COVID-19. I hope that you have all escaped it. It's very bad in my state.

Are you all well?

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Hi everyone, yes I am over here for another CT, also fibromyalgia check and throat check.
Been a crazy year, seems last March was years ago.
Have had two emergency visits since radiation, first in June, breathing/fatigue/blood clot??? Treated for possible pneumonia. Continued problems with pain breathing, feeling like baseball in chest. Ct at home detected possible 4x2x1.4 neoplasm wanted to do biopsy, Mayo recommended against. All problems thy insist is a little scarring and increased copd changes.
October after starting stilarto(sp), developed more .back pain into severe spasms and another ER visit.
Again, looked for blood clot, not, unknown reason again. Drugs, pinpoint ladicain injections got the spasms stopped. Pain continued, went to physical therapy, no relief. Finally got seen by pain specialist at home and received a costacondral trigger point injection. Acute pain has lessoned, discomfort and baseball still there. I just don't know.

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@meka– It sounds as if you have had a pretty rough ride. Not very enjoyable. Did you fall up against something that might have injured your breast bone (sternum?)
https://www.medicinenet.com/costochondritis_and_tietze_syndrome/article.htm
https://www.mayoclinic.org/diseases-conditions/costochondritis/symptoms-causes/syc-20371175
How long ago did you have the shots?

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Good morning everyone. I found out something really important. Multifocal Adenocarcinoma is not staged like regular cancer because our lesions do not metastasize. Each lesion is considered a primary tumor that begins as ground glass, as we all know.

I found this out when I recently had 2 teleconferences, one with my oncologist and the other with my surgeon. My last, and recent CT scan shows no new lesions and both doctors think that I can move the currency of CT scan to longer than 6 months.

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@merpreb

Good morning everyone. I found out something really important. Multifocal Adenocarcinoma is not staged like regular cancer because our lesions do not metastasize. Each lesion is considered a primary tumor that begins as ground glass, as we all know.

I found this out when I recently had 2 teleconferences, one with my oncologist and the other with my surgeon. My last, and recent CT scan shows no new lesions and both doctors think that I can move the currency of CT scan to longer than 6 months.

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@merpreb Congrats on "graduating" to the next level!

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@meka

Hi everyone, yes I am over here for another CT, also fibromyalgia check and throat check.
Been a crazy year, seems last March was years ago.
Have had two emergency visits since radiation, first in June, breathing/fatigue/blood clot??? Treated for possible pneumonia. Continued problems with pain breathing, feeling like baseball in chest. Ct at home detected possible 4x2x1.4 neoplasm wanted to do biopsy, Mayo recommended against. All problems thy insist is a little scarring and increased copd changes.
October after starting stilarto(sp), developed more .back pain into severe spasms and another ER visit.
Again, looked for blood clot, not, unknown reason again. Drugs, pinpoint ladicain injections got the spasms stopped. Pain continued, went to physical therapy, no relief. Finally got seen by pain specialist at home and received a costacondral trigger point injection. Acute pain has lessoned, discomfort and baseball still there. I just don't know.

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@merry Hello all! Happy New Year everyone! I’m doing well. Was up at the Mayo on January 7th for my follow up CT. The radiated area is stable. No shrinkage, but no growth either. 1 new 4mm GGO. Back in three months. I was hoping to graduate to 6 but not at this time. So happy to hear you’re past 6 months now Merry. Maybe someday I’ll make it back to 6 My 10 year Cancerversary is next month. Stay well everyone ♥️

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@linda10

@merry Hello all! Happy New Year everyone! I’m doing well. Was up at the Mayo on January 7th for my follow up CT. The radiated area is stable. No shrinkage, but no growth either. 1 new 4mm GGO. Back in three months. I was hoping to graduate to 6 but not at this time. So happy to hear you’re past 6 months now Merry. Maybe someday I’ll make it back to 6 My 10 year Cancerversary is next month. Stay well everyone ♥️

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@linda10– Hey Linda. Stable is good! Our lungs just love making these things! My CT is 9 months. They gave me an option for a year but emotionally, and yes after all this time, I feel better seeing them and being tested sooner. I hope that you have avoided COVID-19 and that you will be vaccinated soon if you haven't been already. We miss you!

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@merpreb

Good morning everyone. I found out something really important. Multifocal Adenocarcinoma is not staged like regular cancer because our lesions do not metastasize. Each lesion is considered a primary tumor that begins as ground glass, as we all know.

I found this out when I recently had 2 teleconferences, one with my oncologist and the other with my surgeon. My last, and recent CT scan shows no new lesions and both doctors think that I can move the currency of CT scan to longer than 6 months.

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Congratulations Merry, makes my day to hear good news.

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@merpreb

@linda10– Hey Linda. Stable is good! Our lungs just love making these things! My CT is 9 months. They gave me an option for a year but emotionally, and yes after all this time, I feel better seeing them and being tested sooner. I hope that you have avoided COVID-19 and that you will be vaccinated soon if you haven't been already. We miss you!

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@merry It’s so hard to gauge these things. Right now 6 months looks good to me. I’m feeling well and so far have avoided getting the covid. I must admit I haven’t changed a thing about my life. I know some people are terrified and won’t even leave their homes. I have lived with the covid here exactly as I have lived my life with cancer-one day at a time. I suppose we all deal with things differently and I believe each individual must walk to their own beat. I just received my appointment card for my next scan in April. Spring hopefully will be here by then. My best to all our fellow survivors ♥️

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I have been monitored for almost 4 years and have many many GGO and Solid nodules in every lobe of both lungs . Only one wedge resection done one year ago. Surgeon didn’t take any lymph nodes and for 3 years just monitoring even though many many new ones have popped up. Not feeling confident with any of my doctors. Would you recommend a doctor. I will travel anywhere.

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@merpreb

Good morning everyone. I found out something really important. Multifocal Adenocarcinoma is not staged like regular cancer because our lesions do not metastasize. Each lesion is considered a primary tumor that begins as ground glass, as we all know.

I found this out when I recently had 2 teleconferences, one with my oncologist and the other with my surgeon. My last, and recent CT scan shows no new lesions and both doctors think that I can move the currency of CT scan to longer than 6 months.

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Wow. Fantastic news.

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