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Posts (37)

Fri, Mar 20 3:00pm · Is my Lung Disease Stable or Unstable or NED? in Lung Cancer

So happy! Stable. Heading home. Back in 3 months. Best wishes to all.

Thu, Mar 19 1:15pm · Is my Lung Disease Stable or Unstable or NED? in Lung Cancer

@merpreb I’m feeling fine! I know it’s frustrating that they never seem to stop. But I’m happy that they’re able to treat them. So many others never had that option

Thu, Mar 19 1:11pm · Is my Lung Disease Stable or Unstable or NED? in Lung Cancer

@meka I’m so happy you were able to get your SBRT started today. Isn’t it amazing how fast and easy it is. That’s where I had my SBRT was at Charlton. Best wishes to you. I’m feeling happy to have made it up before they ramp down. Keep in touch!

Thu, Mar 19 12:02pm · Is my Lung Disease Stable or Unstable or NED? in Lung Cancer

@merpreb I just got back to our hotel. The area we’ve been watching is still growing even though the past uptakes on PET in September and December were very low. I’m scheduled for another PET in the morning. I’ve never seen the Mayo so empty. I’m glad I came up. 🤞we can get this area resolved this trip. I am also hoping @meka is doing well.

Mon, Mar 16 7:40am · Multifocal Adenocarcinoma of the lung, continual recurrences in Lung Cancer

@meka thinking of you this morning. Stay positive and know we are sending you warm wishes. SBRT is really a breeze compared to surgery.

Sun, Mar 15 2:08pm · Multifocal Adenocarcinoma of the lung, continual recurrences in Lung Cancer

My recovery was great! Little tired but not too bad. Most annoying side effect was thigtness above my chest. Felt like there was a steel plate in there sometimes. Not always. It lasted about 4 months.

Sun, Mar 15 8:36am · Is my Lung Disease Stable or Unstable or NED? in Lung Cancer

@merpreb sorry, I should’ve added that I have a CT scan and follow up with my Dr on the 19th at Mayo. As I’m wishing for @bluelagoon I’m hoping for a short stay. My husband was diagnosed with RA in September and also has his appointment. Nice thing about Mayo as they work us both in together. My area they are watch has grown but the uptake on the PET has not. I will
Post again when I know more. I realize we are a small group those of us with multifocal. As frustrating as that may be at times, in many ways we are very lucky 🍀.