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gratefulone
@gratefulone

Posts: 3
Joined: Apr 09, 2017

MS and Myasthenia Gravis and CIDP and POEMS not related?

Posted by @gratefulone, Aug 3, 2017

I have CIDP/POEMS and my daughter has MS/Myasthenia Gravis and we are told that they are not related with each other. Does anybody else have a family history of these diseases?

REPLY

I also would like to know more about this disease. I had a friend several years ago who was diagnosed when she was 30. I lost touch with her through several moves. I’ve always wondered where she is, how she is doing, and what her life is like.
abby

Husband just diagnosed with myasthenia graves. He is 68 fairly healthy he was sitting gettin hair cut last mon suddenly couldn’t speak words slurred speech we went to er first diagnosis stroke mini stroke etc now leaning to MG. He is still in hospital day 7 has some improvement swallowing is big issue he couldn’t now can some still can’t eat or drink goes straight to lungs. Undergoing infusion to build immune system. Need any input out there we r at st Vincent’s small hospital south of orange park have a good Nero guy just settling into diagnosis looking for support

Hello @jeanette1,

I’m so sorry to learn about your husband’s diagnosis; thank you for sharing and for reaching out to the Connect community for support. We have a few discussions about myasthenia graves (MG) which you may wish to view:
– Myasthenia Gravis* https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/
– Myasthenia Gravis https://connect.mayoclinic.org/discussion/myasthenia-gravis-2b0f14/
– Body Builder Regains Energy After Surgery for Myasthenia Gravis https://connect.mayoclinic.org/newsfeed-post/body-builder-regains-energy-after-surgery-for-myasthenia-gravis-1/

I’m also tagging @gretagean @socalgal @iggeez1416 @whtwater @bea2377 @sunshine56 @saur1994 @dschmidt @lynnes, who have talked about MG on Connect and can share experiences with you.

@jeanette1, what is your biggest concern with your husband’s health at the moment?

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