Good morning. I was diagnosed with a rare kidney disease that is typically secondary to Lymphoma, lupus or myeloma. After extensive testing and biopsies over 2.5 years, it was concluded, I did not have any of the cancers and the kidney disease is primary. The monoclonal -B cells clone themselves, as it says, and break down the filtering system in your kidneys. I
am in Stage 3 of kidney disease. Previous studies showed that treatment with CyborD was effective. Is there anyone else on this particular chemo? If not, I would just like to connect with others who are trying to continue with their lives while managing chemo and all that brings with it. I am 66, single, and still working full time. I used to be VERY active but am feeling isolated because working and managing this disease consumes my time and energy. In order to accommodate my weekly trips to Mayo (from the Cities), I needed to request a schedule change to four ten hour days. My weekends have been spent trying to get normal chores done and dealing with the side effects of the chemo. Would love to hear from and talk with others.
Liked by Merry, Volunteer Mentor