Mom diagnosed with adenocarcinoma of pancreatic head. Advice??
Hi all. My mother was just diagnosed with pancreatic adenocarcinoma about a week ago. This is obviously devastating to my family but we are doing the best we can to remain in good spirits. My mom was found to have a cystic mass with an intrinsic mass within it, located in the head of her pancreas and blocking her bile duct.
She was experiencing some hallmark sx (jaundice, dark urine, change in stool color, fatigue, vague epigastric fullness). She was brought to the ER and underwent CT Abd/Pelv which found the mass. Her bilirubin was up to 14 and her AST, ALT, glucose, etc were all extremely elevated. Once we discovered her diagnosis my mom underwent an emergency ERCP for a biliary stent and biopsy. Since, she has felt better and the symptoms have mostly subsided.
Like stated above, biopsy results report adenocarcinoma. It's not certain that there is spread to lymph nodes but local LN near the pancreas were inflamed. It doesn't appear that any blood vessels or other organs are involved, although she still needs a chest CT to confirm no mets. Now we are looking into options near us in WNY..
Does anyone have experience with any pancreatic surgeons or oncologists at Roswell Park Cancer Institute in Buffalo, NY or Wilmot Cancer Institute in Rochester, NY? Those that are survivors or have a close loved one that went through pan can, what are some things you wish you knew prior to the surgery or chemo that you weren't aware of? Any other advice? It can be difficult to think straight these days and we feel like we are floating/living a different world. It's hard to believe this is real sometimes.
Both surgeons believe the tumor is resectable and suggest Whipple procedure followed by 6 months of FOLFIRINOX chemotherapy. One surgeon recommends a "pyloric preserving whipple procedure", the other traditional. We honestly liked both surgeons/sites, and feel confident in either. This makes a hard decision even harder. If anyone has prior experiences, advice, or other ideas for us to consider we'd really appreciate it. <3