Was doing some research on Symptoms of Lyme Disease the other night and ran into similar symptoms of Mold Toxcity. Does anyone know anything about it?
Interested in more discussions like this? Go to the Autoimmune Diseases group.
I have toxic mold poisoning for 2-3 yrs . Inside one of our outside walls was full of toxic mold and we were unaware of it . We had 3 of the most toxic molds there is and the mold experts tested air quality outside it was 300ppm and inside 18,000 it was airborne and very bad . We moved in 3 days . Since I have lived through this hell and I have learned A lot about this . Bleach alone will not eliminate toxic black mold. Yes it will turn white and appear to go away but the bleach will not eliminate the spores. The spores will attach to all of your belongings . We had to throw away 95% of our belongings. If you don’t do this when you move you will take the mold with you . I had been to about 15 Drs when I was sick for the first 18 months and we had not discovered the mold yet, and they could not figure my case out . I had done so many tests and lab work and procedures done it was crazy. Then after we found the mold I have 3 more doctors and they are trying to help me . People will think you are crazy when you have this . There really is no cure but there are some actions you can take to help you contact me anytime by Text or email and I will be glad to share my experience .i want nothing out of it I just hope to help anyone I can because this is a horrible experience .
Jump to this post
I have been living through the hell of it for 11 months. Every day my primary focus is just to be okay and not end up in the hospital. I'm so clouded by it that it's hard to accomplish anything else at all, just surviving, barely.
I'm in income based apartments in Big Rapids Michigan and there is no agency with oversight to make them do anything about it. I've about lost everything from it, in and out of hospitals and doctors. I'm so shot out from it, people I meet just assume that I'm strung out on drugs, or mentally ill.
I can't find any recourse, I even contacted the EPA and no response.
If anyone has any insight or suggestions that have helped it would be greatly appreciated.
Contact your local Legal Aid Society. They can offer suggestions and recommendations at no cost to you
Thanks. I did months ago. It was a dead end due to covid and staffing issues.
Dear @sundance6 :
Do not take mold lightly. I worked in a building for 3 years that caused much hardship. Tenants in this building year in a year out left due to illness.
No one could figure out why. Most states do not even recognize mold as a harmful item. Shoot most doctors don't recognize mold as an issue. It wasn't until our functional medicine doctor made an issue about it that we started to focus in on it. Eventually we discovered he was right and there was mold in the building.
Mold can cause issues on your health and it creeps up slowly over time which makes it difficult to diagnose. Usually starts with some stiffness in the hips and irritability. You may get insomnia and maybe even some anxiety. Eventually it will cause shortness of breath and digestive issues. The worse part is that main stream medicine doesn't know how to tackle the situation. This is why doctors like Shoemaker and Brewer make a fortune because they cater to this illness but even their methods are not really perfect and in my opinion subpar. Mold is by far more harmful than our western medicine recognizes and society recognize. I know this first hand and have seen so much illness due to my experience in that building.
If you are experiencing shortness of breath, good luck getting help from doctors. They will do the normal routine. They will do a chest x-ray. Then they will make you do a pulmonary function test. After that an echo will be ordered. If you have a cardio doctor on your team they will probably order a stress test. They may tell you to get an 02 monitor (the little finger device) to check your 02 levels. If you are lucky a CT scan will be ordered or MRI. The crazy part is all of these will most likely test out fine. The reason I believe is mold effects your bloods ability to transport oxygen. Thus you have all the oxygen you need in the lungs (hence the perfect tests) but it isn't getting to your organs and thus you have air hunger.
The worse part of all of this, is once doctors have deemed you are fine in the lungs they will either tell you it is anxiety and put you on SSRI's which doesn't work or they will tell you it is GERD and put you on PPI's which in the long run will only make things worse. Both diagnosis are awful and in reality lazy medical practices because essentially the doctor is saying this is your fault when it isn't.
I'm not telling you this to dishearten you as I'm in search for the solution and I believe it is out there. What I do know is people need to know this information so they don't get cornered that it is just in their heads. It is not in your head. You will find Lyme is usually triggered due to mold (lots of research on this fyi). Shoot there is also research supporting that mold triggers autoimmune conditions. Stay positive, have faith, and may you have a speedy recovery!
I worked in an older school for 27 years. A new schooll was built so old school was sold, when making into condos they found mold and running water underneath the hardwood floor in one of the two rooms I taught in everyday. I was sick in that room, could not figure out why, was forced to retire, I believe it was from the mold. After I moved out of the two rooms the rooms turned all black mold! Many years they touched up or painted both rooms, probably the mold showing through. I've gone to a couple hundred doctors trying to find out why I am always sick, I believe it was the mold in those rooms
I was told it was mental, anxiety and all kinds of crazy things by doctors . During a year, 1985, when I was very ill and couldn't teach I went on a hypoglycmia diet with no sugar and felt much better. I'm still sick but staying on a good whole food diet helps.
diomit, Thanks for the info. I just moved into a 100-year-old ranch house. I'm sure it has suffered from mold. It's 200 yards from a small river in Northern New Mexico. What I have done is find some Charcoal bags to hang around the house. I also went out and got Air Purifiers for each room. Seems to help.
My 26 year old nephew is so sensitive to mold that he is unable to work. He has been in treatment for over a year but is so debilitated that he can’t function. Please advise on jobs that guarantee a good working environment,
Welcome @riowill, I'm sorry to hear that your nephew is unable to work due to mold sensitivity. Mold toxicity can be a problem anywhere you work if it's not addressed when found in the workplace. There is some information on the Job Accommodation Network that might be helpful – Breaking the Mold with Workplace Accommodations: https://askjan.org/blogs/jan/2017/12/breaking-the-mold-with-workplace-accommodations.cfm
You mentioned your nephew has been in treatment over a year but still is not able to function. Is he actively looking for a job?
He worked for a year outdoors for a landscape company until he had a reaction. He just accepted a job as an Amazon driver but was reacting after day 3 so had to quit. He needs work he can do from home.
Sorry…..I don't mean to be combative, but if Mayo says that black mold is not dangerous…..it is not dangerous. They are the best. And the best part, we are documenting this and their position. Others say that black mold is dangerous, but Mayo is not one to take a position which speaks volumes. Either it is or is not. Mayo………if you don't know……say that you don't know. That is fine. Too many of us believe what we read on the internet and that is full of fake information. Please weigh in. Thanks.
John, you seem like a nice man. Do you think a mold "allergy" is the same as mold "toxicity?" And I would appreciate hearing the difference between the two. Sounds like Mayo is passing buck. Take a position if you claim to be a leading cutting edge facility. We are waiting. Most importantly, please let me know the symptoms of Mold Toxicity. Look forward to hearing from you given your vast experience. It is critically important.
@chronicpaingirl15, I'm not sure if this will help but it's the search results for mold toxicity on the OSHA website. It shows 400 or so links to documents dealing with mold toxicity.
John, we are coming to Mayo as "the best." This is all over your marketing material, non? I want to know from Mayo, what are the labs that you all run to rule in/out if inflammation is present with mold TOXICITY patients…..making the differereniation between mold "sensitivity" or a small mold "allergy" versus mold TOXICITY. Please clarify. I assume if you refer me to another website that this means that you are not ready to weigh in on the issue. This is fine. I assume that you not responding means the same thing. If you don't know, you owe it to patients who are suffering to tell them that you don't have a clue and they need to seek out a true facility. Let me know when you are ready to update your website about the dangers of mold TOXICITY which is not tantamount to a mold allergy. One day you will understand and I pray that it doesn't come in the form of someone you love. God bless. Do the right thing.
In some people, the spores trigger an allergic reaction. Other people develop mild to serious lung infections. The most serious form of aspergillosis — invasive aspergillosis — occurs when the infection spreads to blood vessels and beyond.
Depending on the type of aspergillosis, treatment may involve observation, antifungal medications or, in rare cases, surgery.
From further information, see: Mold allergy https://www.mayoclinic.org/diseases-conditions/mold-allergy/symptoms-causes/syc-20351519
Connect with thousands of patients and caregivers for support and answers.
Already have an account? Sign In