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Mold Toxicity

Posted by Sundance(RB) @sundance6, Jan 25, 2019

Was doing some research on Symptoms of Lyme Disease the other night and ran into similar symptoms of Mold Toxcity. Does anyone know anything about it?
Thanks,
Sundance

Interested in more discussions like this? Go to the Autoimmune Diseases group.

Mentor
John, Volunteer Mentor | @johnbishop | Mar 22 8:18am
In reply to @sanny "John, we are coming to Mayo as "the best." This is all over your marketing material,..." + (show)
@sanny

John, we are coming to Mayo as "the best." This is all over your marketing material, non? I want to know from Mayo, what are the labs that you all run to rule in/out if inflammation is present with mold TOXICITY patients…..making the differereniation between mold "sensitivity" or a small mold "allergy" versus mold TOXICITY. Please clarify. I assume if you refer me to another website that this means that you are not ready to weigh in on the issue. This is fine. I assume that you not responding means the same thing. If you don't know, you owe it to patients who are suffering to tell them that you don't have a clue and they need to seek out a true facility. Let me know when you are ready to update your website about the dangers of mold TOXICITY which is not tantamount to a mold allergy. One day you will understand and I pray that it doesn't come in the form of someone you love. God bless. Do the right thing.

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Good morning Phylis @sanny, Just a gentle reminder that I am a patient like most members on Connect. I do not work for Mayo Clinic. I am a volunteer and have no medical training or background. I'm most certainly not an expert in mold toxicity and how it's diagnosed or treated. I have shared links I've found that I think are reliable medical or scientific information. I am more than happy to learn about other information than what I've been able to locate if you have some to share.

If you want to know the purpose of Mayo Clinic Connect – https://connect.mayoclinic.org/blog/about-connect/tab/aboutconnect/

Blessings on your day…

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 22 8:27am

Hi @sanny, it sounds like you are concerned about the black mold in your home, especially since you run a daycare out of your home. This article from Healthline that @johnbishop referenced is particularly helpful in explaining the dangers and myths about mold and how to get rid of it and prevent it.
– What Is Black Mold?: Exposure, Symptoms, Treatment, and More https://www.healthline.com/health/black-mold-exposure

I'd also like to point out that Mayo Clinic Connect is an online community of patients and people share their experiences, find support and exchange information with others. It is not a place to get answers from medical professionals. See the disclaimer here https://connect.mayoclinic.org/blog/about-connect/tab/disclaimer/

"All information shared by members on the Mayo Clinic Connect is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community."

For information on mold allergies from Mayo Clinic, see this expert article: https://www.mayoclinic.org/diseases-conditions/mold-allergy/symptoms-causes/syc-20351519

Like you, John is a member of the community. He is particularly helpful and is a volunteer mentor, connecting members with others members. He also likes to help members find relevant information on the internet from reliable and evidence-based sources. He is not a Mayo employee or medical professional.

Back to the issue of black mold. "While being around mold may cause minor effects for some, like a stuffy nose or coughing, it can cause stronger reactions in people with asthma, mold allergies, or weakened immune systems."

I hope that you are successful in getting rid of the mold in your home for the health of everyone.

REPLY
jessie1665 | @jessie1665 | Apr 26 5:29pm
In reply to @chronicpaingirl15 "I find all of this interesting on the Mayo Clinic website. I just got off the..." + (show)
@chronicpaingirl15

I find all of this interesting on the Mayo Clinic website. I just got off the phone with them and I’m desperate for someone to give me an actual diagnosis even though after getting my urine analysis back and doing the VCS vision test, reading up on mold toxicity I KNOW this is what has caused my chronic pain.
My husband wants validation and a real doctor to give me a diagnosis and plan and I just want to make myself and my mom healthy. She has been diagnosed with early onset dementia and she is 64. Ive never been more certain in my life that this is my issue after living in chronic pain DAILY 24/7 since 2013, my head feels like it is going to explode, I can’t think anymore, I’m short of breath, I have GI issues that are intolerable and down right desperate to be a human again before I feel neurological damage is done for good. I was praying my call with the Mayo Clinic today was going to be it. It’s not.
Any help, I’d take it. What blood test to ask my doctors for, etc. they all look at me like I’m crazy.

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I am in the same boat as far as finding a clinic that administers tests for mold and mycotoxins. I have been researching for quite sometime now and as far as tests u can ask for there is an ELISA test that is a urine test and a mass spectometry test. There are a few more ive heard about but also in doing these tests, if u have been living with a mold problem for a long period of time, the mold can get into parts of your body and set up camp to where depending on your current health your body might have troubles detoxing from it and therefore not showing up in some of these tests. If thats the case, the doctors webinars ive watched all say they prescribe glutathione a few days in advance of taking these tests which force these toxins out in order to get a good idea of what your body is holding onto. There are also several blood tests that doctors can administer and they would serve as markers of a mold presence. doctor paulvin has a mold blog called mold 101 mold toxicity that goes in detail on different tests this site will give you a better insight on testing and also if u go on utube and watch any of Dr. Jill Carnahan's webnars on mold and mycotoxins, she gives great information! Hope that helps a little

REPLY
sim1 | @sim1 | May 16 4:08am
In reply to @sundance6 "John, Thanks, Seems Like I'm back to square One in my hunt to a cause as..." + (show)
@sundance6

John, Thanks, Seems Like I'm back to square One in my hunt to a cause as to what is wrong with me and many others! I thought it may be an avenue to persue but it dosen't look that way. Will continue the hunt! Have a Merry!
Thanks,
Sundance!

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Hi did you ever get an answer. I’m in the same situation. Neuropathy. Tests show mold exposure. But not sure of connected and can’t find much inline.

REPLY
starsky72 | @starsky72 | Jun 8 8:05pm
In reply to @glenb "I have toxic mold poisoning for 2-3 yrs . Inside one of our outside walls was..." + (show)
@glenb

I have toxic mold poisoning for 2-3 yrs . Inside one of our outside walls was full of toxic mold and we were unaware of it . We had 3 of the most toxic molds there is and the mold experts tested air quality outside it was 300ppm and inside 18,000 it was airborne and very bad . We moved in 3 days . Since I have lived through this hell and I have learned A lot about this . Bleach alone will not eliminate toxic black mold. Yes it will turn white and appear to go away but the bleach will not eliminate the spores. The spores will attach to all of your belongings . We had to throw away 95% of our belongings. If you don’t do this when you move you will take the mold with you . I had been to about 15 Drs when I was sick for the first 18 months and we had not discovered the mold yet, and they could not figure my case out . I had done so many tests and lab work and procedures done it was crazy. Then after we found the mold I have 3 more doctors and they are trying to help me . People will think you are crazy when you have this . There really is no cure but there are some actions you can take to help you contact me anytime by Text or email and I will be glad to share my experience .i want nothing out of it I just hope to help anyone I can because this is a horrible experience .

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Just found out that I have high levels of mold toxicity – would love to hear about some of those actions you can take – Sheldon

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Jun 9 7:18am
In reply to @starsky72 "Just found out that I have high levels of mold toxicity - would love to hear..." + (show)
@starsky72

Just found out that I have high levels of mold toxicity – would love to hear about some of those actions you can take – Sheldon

Jump to this post

Welcome @starsky72 and @jessie1665. Thank you @jessie1665 for suggesting the video webinar by Dr. Jill Carnahan. I thought I would share it here for you as it may be helpful for @starsky72 and others.

Can you share any more details about the mold toxicity?

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