Lung nodules & scared!

Posted by pattymac @pattymac, Mar 19, 2017

March 1, 2017 at 7:44 pm
I had a Ct in December 2016,showed 3 nodules 6mm,5mm&4mm in right upper lobe! Last week I had a Ct bc of a different issue and ER Dr told me I had 1 nodule in my right upper lobe that was 8mm and subpleural and a tiny subleural nodule in my left lower lone and small scattered lymph nodes throughout the paratracheal region? What does this mean?Pulmononlogist called finally after a few weeks and finally radiology compared both Cts and was told I need Pet Scan which is next Tuesday. I feel frozen and numb! He said it was triangular in shape and something about right hiler? Gosh I can’t even think. Advice please

@pattymac

I able to pay it forward before I’m called home. I’m not saying I won’t have a possible bump in the road ahead but I have to let go of what I can’t control too.

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Love it Terri! Our own health and what we choose to think is so connected to our own decisions about what we are worth and how much we value ourselves. And often a health crisis brings the beautiful opportunity to improve, elevate, and decide what our level of self-love and self-acceptance are! Overthinking and sentencing do not speak to healing – we must move past the fear – but considering beautiful direction like this and pursuing it IS a part of our health and healing mentality. I never mind if someone disagrees with this belief, but I see marvelous people like you and others prove the power of positive thinking and action. Often, what we decide is exactly what comes to pass! Anything truly is possible, and where there is a will, there is ALWAYS a way! : ) Thank you for the great education – I looked at their site and history from your link last night! You are a gift. JM : )

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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@jms7, I have been pondering this but decided to just mention my thoughts .. you have such a positive attitude .. such a way with words ..just love how you put your thoughts down in a post .. such wise words of wisdom .. great advise. You are a wonderful addition to our group!

But I was thinking .. we just have to remember that as the USA was based on “separation of church and state” .. we must be respectful of the various spiritual values or lack thereof for members of Mayo Clinic Connect .. AND have the same “separate of church and Mayo Clinic Connect”. All members have a right to their own spiritual beliefs or lack thereof on our Connect Forum. Just thought I’d mention this because I KNOW your spirituality means a great deal to you and has been a source of great comfort .. I respect that. I also know that you mean well and want ONLY the best for our community. PLEASE keep up the good supportive help! Sending you a Hug! Katherine

Liked by tdrell

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@pattymac

I able to pay it forward before I’m called home. I’m not saying I won’t have a possible bump in the road ahead but I have to let go of what I can’t control too.

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@tdrell, Terri, you are a font of knowledge for our group .. thank you SO much! I have added your post to my Filing Cabinet! Yet again I am sending you a Big Hug! Katherine

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@pattymac

I able to pay it forward before I’m called home. I’m not saying I won’t have a possible bump in the road ahead but I have to let go of what I can’t control too.

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@pattymac, take a good look at Terri’s post .. CALL JNH using the info she gave you! Below from my File Cabinet are some posts Terri has made about JNH! Hugs! Katherine

++++++++++++++++++++++++++++

Q National Jewish: how long (approximately) does it take to get in once you have sent the records and the sputum sample? A I believe that once they check your insurance and make certain that all is okay, it was about 5 weeks or so for me. If your schedule is flexible, you could ask that if they have a cancellation to let you know and you might be able to get in sooner. Don’t be afraid to call them and ask that question; they are extremely kind and professional. FINANCIAL You will have an excellent experience please call the number on the site to see if you financially could go to NJH……for the first 50 years of their existence….1898 til 1958 they did not charge clients..I am on Medicare….they accepted it fully….3 months after my trip….l have yet to see a bill….they have a separate person who works out the financial part of the visit prior. I know it sounds too good to be true….but it is there to help people. l beg you to contact them to check
From member @tdrell, Terri : At National Jewish Health last week, all I did was show my Medicare card then my supplement card……no other mention of $/payments. I could focus my energy on the rigorous tests without worry about paying for pricey tests….especially as they were added.

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@pattymac

I am wanting to know what the protocol is for finding out and then treating lung cancer? How many tests do we need to go through and how do we know which treatments to accept as the answer? When do I know when a second opinion is needed and where do I go in Indiana since my insurance doesn’t pay out of state. I could go to Mayo if I were wealthy but am not. So many hospitals and Drs tell you what they know from where they work at from what I understand. I get that bc that’s their hospital but this is my life and I have to advocate for myself. So if it means moving to be healthy, I will in a minute not panicking, so don’t worry:) Also, I think my posting issues come from posting from my iPhone bc now I am on my laptop and it seems to be fine. Thank you

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@pattymac, I know others have said NO ONE can say how another can deal with cancer .. BUT I will tell you how my husband and I HAVE deal with cancer VERY effectively!!
1. Have an attitude of gratitude for what we DO have .. get OVER ONLY looking at what we DO NOT HAVE .. IE “a life without the cloud of cancer hanging over out heads!”
2. A BIG THING .. deciding to ONLY deal with an issue if it was “IN our face” .. meaning an immediate issue/decision/choice/option .. otherwise we live our lives in DENIAL!! Big time! If it is NOT in front of our face .. it does NOT exist!! We go on with our lives as if it did NOT exist!
3. We “PUT OUR ENERGY INTO WHAT WE CAN CONTROL .. LET GO OF WHAT WE CANNOT CONTROL”

As a grandmother of 10 .. if I am frank with you .. what I see you doing is putting ALL KINDS of WASTED energy into things you CANNOT CONTROL! “Putting the Cart before the Horse!”

1. You are NOT a doctor .. LET GO of “I am wanting to know what the protocol is for finding out and then treating lung cancer?” WHEN you know your options .. AFTER discussing this with your doctors .. THEN you deal with your treatment options.
2. Same answer for “How many tests do we need to go through and how do we know which treatments to accept as the answer? ” You CANNOT know until you KNOW. LET GO!

WHAT YOU CAN CONTROL AND COULD PUT YOUR ENERGY INTO RIGHT NOW .. IN MY OPINION:
1. Calling JNH and getting an appointment
2. Gathering together the maximum number of records/doctor notes/tests you possibly can so they do not have to be repeated. You could post to @tdrell .. terri .. she did a good job of that
3. If you get to JNH .. in my opinion you do not need .. “When do I know when a second opinion is needed’ Luckily Terri gave you the answer to “I could go to Mayo if I were wealthy but am not. ”
4. Now in my opinion the MOST important thing is to focus on serenity .. there is SUCH a mind/body connection .. you MUST take care of your body with serenity as well as seeking proper medical care. All this panicky stress is VERY damaging to the body .. it will NOT promote healing. So even if you only go to youtube and google meditation exercises .. that would be a start. Be kind to that sweet body of yours .. be kind to yourself. Know that we are all here for you .. but ultimately YOU must be there for YOURSELF! Be kind to you. Sending you many Hugs from a Mom .. a Grammy and a Connect Friend! Katherine

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@pattymac

I able to pay it forward before I’m called home. I’m not saying I won’t have a possible bump in the road ahead but I have to let go of what I can’t control too.

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Pattymac…call

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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Any notes to Patty are to and for her only – they are written lovingly and specifically to her and for her. Anyone else who wishes to enjoy them in whatever way is meaningful to them is absolutely free to do so. She writes specifically of her priest, God, and of church, so I joyfully meet her on that level. This country was built on “In God We Trust,” thus many Jews and Muslims who know God’s love express it to others; if one of them mentions God in their fears or concerns here, I will also, period.
My understanding is that this incredible forum is for everyone, and that is what makes it what it is.
Of note is the topic of this incredible hospital, National Jewish, vs. National Atheist, that likely does not turn away anyone. How wonderful of Terri to share this! I will not cease my prayers, privately or publicly that Patty will excitedly go there, at no cost to her. She shared her situation, fears, and circumstances. She is all I need to remember in her needs. If one reads closely, she also mentions her son who has served 3x in Iraq. If there is some law in the Forum regarding ‘Patty or anyone mentioning church or God, or accepting or needing prayer, then it would be a dark day indeed, as many of those who are scared, rejoice at healing, value prayer by TOTAL loving strangers, mention church, or lung cancer survivors at their church, or suddenly request prayer would be silenced.
Interesting that any posts in this thread by Patty, me, or others mentioning God, have plenty of likes.
Now, back to my loving concern for Patty, who has shown such courage at baring so much vulnerability, and received a flood of powerful advisement, support, encouragement, as well as raised wonderful education from so many. I am awed at what I have learned.
As a retired veteran who presented, spoke for, and served this country, and who would die in a heartbeat for the freedom of this country, Semper Fi, God Bless America, and may God Bless and Protect Patty’s son, all who have served, and everyone here who wishes it.
Patty is welcome to email me privately anytime, and I will lovingly respond in any Christian way she needs or asks.

Liked by Ryman, ginak

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@pattymac I encourage you to read and then re-read @katemn post. She makes very good points. If we worry about something that has not yet occurred we do a great disservice to our body and mind. Do your best to take some steps at positive thoughts and relaxing activities until you get through all of the testing and have a firm diagnosis. Best wishes. Teresa

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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Dear @katemn and @jms7,
Let me start by saying thank you to both of you. You are respected members of the Connect community, who have shared your personal medical experiences and reached out to help others on this public forum.

It is our goal to keep the Mayo Clinic Connect community safe, supportive, inclusive, and respectful as stated in the Community Guidelines https://connect.mayoclinic.org/community-guidelines/ First and foremost, Connect is a place to share your patient and caregiver experiences, your health goals, to ask questions, and to give and get support from others. For some members, faith is a part of health and healing. For others, this may not be the case.

@jms7, thank you for bringing your faith into the conversation only when the person you are supporting expressed their beliefs. I appreciate your sensitivity around expression of religious beliefs.
@katemn, I appreciate your pointing out the need for balance. In providing support for one person, we must keep in mind that each message is read by many. To benefit the maximum number of people, messages should be inclusive.

If you wish to discuss this matter further, please contact me privately by private message or by using this form https://connect.mayoclinic.org/contact-a-community-moderator/

In the meantime, let us all continue to provide our experiences, information and support and to all members.

Thank you
Colleen
Community Director

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@pattymac

I am wanting to know what the protocol is for finding out and then treating lung cancer? How many tests do we need to go through and how do we know which treatments to accept as the answer? When do I know when a second opinion is needed and where do I go in Indiana since my insurance doesn’t pay out of state. I could go to Mayo if I were wealthy but am not. So many hospitals and Drs tell you what they know from where they work at from what I understand. I get that bc that’s their hospital but this is my life and I have to advocate for myself. So if it means moving to be healthy, I will in a minute not panicking, so don’t worry:) Also, I think my posting issues come from posting from my iPhone bc now I am on my laptop and it seems to be fine. Thank you

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Thank you! Received dx a week ago of husband’s IPF and thru many discussions, have decided to purposefully go this exact route you so wonderfully explained.  Totally appreciate you sharing your attitude/experience, and I’m sure we’ll be re-reading your post often.Kathy&nbsp

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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Hugs,
   Katherine

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I was just looking@ online portal for the Pulmonologist I had just seen in Munster Indiana and my diagnosis he stated was:
1. Hilary mass
2. Mediastinal lymphadenopathy
Wtheck does that mean?

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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@pattymac Since you do not have symptoms that does sound encouraging. Stay positive! Teresa

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@pattymac

I was just looking@ online portal for the Pulmonologist I had just seen in Munster Indiana and my diagnosis he stated was:
1. Hilary mass
2. Mediastinal lymphadenopathy
Wtheck does that mean?

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Hi Patty,
These are questions you should ask with your health care team. It is important to talk about pathology results with a health care professional who has all the data and your medical history.

Were you given a number to call? Can you post a question to a professional through your patient portal?

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@pattymac

I was just looking@ online portal for the Pulmonologist I had just seen in Munster Indiana and my diagnosis he stated was:
1. Hilary mass
2. Mediastinal lymphadenopathy
Wtheck does that mean?

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I just looked @ portal again and no way to respond and this is the Pulmonologist that said it’s undefined? This looks like a stage 3?

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