Pattymac......since it sounds like the door has closed for you to go to Mayos for evaluation, go on line to nationaljewish.org.....get their phone number and see if going there could occur......they provide financial assistance I believe.
They are in Denver....which has lots of air travel....for low rates.
I went for 7 days.....I am one of the 20% of those with MAC who do not require treatment at this point.....they used an extensive CAT Scan .....and results of 3 sputum cultures obtained during my January visit there....Dr Huitt and mycobacterium group felt that I was silently aspirating MAC from tap water I drank ....as a result of my GERD?
The medical care there was no doubt the best available. Terrid

WOW Terri that is tremendous!!! Thank you for sharing this and I am overjoyed you had a clear course and clarity in diagnosis. I'm astonished at the specifics of your situation, the good and not-so-good. Are you doing better now? That is one sweet picture!

Jms7... i wasnt in dire straights before I went to NJH in January for second opinion.....i had had a cough of 5 hours every evening for 2 years....local Doc did all tests and it was the bronchial washing from Bronchoscopy that grew MAC.....THe rush was to put me on the antibiotics....but i said no...not til I got the second opinion from experts at NJH. And they said no....my problem was my GERD and sleep apnea....will be getting new bed to sleep with head up....and also CPAP equipment?...thanks for asking Terrid

Wow I just learned so much. Blessed dreams : )

@pattymac, Patty, I love the saying "Put my energy into what I can control .. let go of what I CANNOT control .. the outcome!"
Hugs! Katherine

JEWISH NATIONAL HEALTH https://www.nationaljewish.org/treatment-programs/directory/ntm

I looked at this site and looks wonderful. I am sure they wont take my insurance though.

Hi @pattymac, It never hurts to give a call and find out for sure. Sometimes you have to jump through some hoops to get coverage, but often it can be done. Teresa

Pattymac......please call the number on the site to see if you financially could go to NJH......for the first 50 years of their existence....1898 til 1958 they did not charge clients.....
I am on Medicare....they accepted it fully....3 months after my trip....l have yet to see a bill....
they have a separate person who works out the financial part of the visit prior.
I know it sounds too good to be true....but it is there to help people. l beg you to contact them to check.terrid

Love it Terri! Our own health and what we choose to think is so connected to our own decisions about what we are worth and how much we value ourselves. And often a health crisis brings the beautiful opportunity to improve, elevate, and decide what our level of self-love and self-acceptance are! Overthinking and sentencing do not speak to healing - we must move past the fear - but considering beautiful direction like this and pursuing it IS a part of our health and healing mentality. I never mind if someone disagrees with this belief, but I see marvelous people like you and others prove the power of positive thinking and action. Often, what we decide is exactly what comes to pass! Anything truly is possible, and where there is a will, there is ALWAYS a way! : ) Thank you for the great education - I looked at their site and history from your link last night! You are a gift. JM : )