Lung nodules & scared!

Posted by pattymac @pattymac, Mar 19, 2017

March 1, 2017 at 7:44 pm
I had a Ct in December 2016,showed 3 nodules 6mm,5mm&4mm in right upper lobe! Last week I had a Ct bc of a different issue and ER Dr told me I had 1 nodule in my right upper lobe that was 8mm and subpleural and a tiny subleural nodule in my left lower lone and small scattered lymph nodes throughout the paratracheal region? What does this mean?Pulmononlogist called finally after a few weeks and finally radiology compared both Cts and was told I need Pet Scan which is next Tuesday. I feel frozen and numb! He said it was triangular in shape and something about right hiler? Gosh I can’t even think. Advice please

Ok that posted in sections

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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HI Patty yes do stay on! Declare the Victory in God’s name – sometimes He will give us so much to bear because He wishes to see us become all we are meant to be, including health-wise. He can’t do that if we are not challenged! This is a “chapter” you are going through. Please do not decide you have lung cancer, since as others have pointed out, drs. are not showing alarm, and plenty of us have endured severe and life-threatening lung issues. Trust in God’s timing. Go one step at a time, and give yourself what you need in each moment.
This is a wonderful chance to improve diet that supports lung health and healing, meditate, breathe, walk in the sunshine. There is nothing like serious health issues to make us more grateful. We each have a choice in what to do in every single moment. The opportunity to decide what we wish to cut out of our lives and what to bring in is a powerful opportunity to create the next chapter. Do you keep a healing/medical journal? It is a fascinating record of all you learn, feel, and are grateful for. It is powerful to write your thoughts and experiences in your own hand. Slow breathing and essential oils are a wonderful way to relax and gain control. Read some new material on home air quality and ways to improve lung health in your environment. Also, eastern/alternative medicine says we hold grief in our lungs. This makes so much sense, so healing ourselves can involve deep levels of self-care and expression. Most churches have fellowship and prayer groups – if you are not in one I urge you to consider joining one! Prayers from others are powerful. Loving support from sisters-in Christ is powerful. just some ideas you might like : )

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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If you don’t have chest pain or breathing issues, consider how lucky this is. Any of us who have had numerous life-threatening experiences with both know the terror of feeling like one is drowning and suffocating at the same time.

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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Those are all wonderful ideas and thank you. I definitely need to move out of this apt bc I still see some black mold in bathroom which landlord isn’t concerned with and I pointed out awhile ago. I’m trying to decide where I’m going to work on my bachelors at and may move out of state but it all depends on my health findings. Mayo Clinic called me back this am and sadly do not take my insurance as I thought but was surprised to hear they accept Minnesota and 2 other state programs? I would need 5,000 to just have appt & some testing done. So disappointed bc they are supposed to be the best.

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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Patty I’m so so sorry to hear this all, and extremely alarmed at the black mold issue!!! This is so alarming, and really should be mentioned to your Drs., in my humble opinion. Make sure you have proper health masks when you clean and vacuum, and research ways to remove the mold immediately. Don’t go near it without a mask on if at all possible. It may or may not be directly related to your lung issues. Either way it is a health risk! Then be careful of any chemicals used to clean or seal it, including bleach. I would pursue some information through your health provider re removing the mold and how unhealthy it is. You can look online but your health team will better advise you – I would contact someone ASAP. Mayo is great, but there are plenty of Drs.and hospitals with outstanding quality. Get some information through your docs/nurses on home air quality ASAP!

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@pattymac

Thank you and I’m staying on these discussion boards every night for support and so I don’t fall apart again. I’ve managed to compose myself today.Im using deep breathing, talked to my priest, my mentor whom ironically thinks I’m his and looked into my beautiful new Grandaughters eyes and decided I was lyosing my faith and needed to get it back. God didn’t bring me this far with going back to school,letting me spend so much time helping with grandchildren while son was in Iraq 3x,working for myself to fall now after a nasty divorce and losing most of my family(parents &4 brothers) not to be

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Ok lots of great ways to remove black mold in bathroom, search online. The deeper issue is why it is forming; ventilation issue, no fan? It can be easily cleaned, just wear a mask. Whatever it takes to keep that bathroom dry is better for your health!

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@pattymac

I went to my appointment today which turned out ok. He was very nice and so happy I had brought pet Scan disk with me. He needed it he said that the other Pulmonologist and he had talked but needed to see Scan. When I asked if he thought it was cancer, he said as of now it’s undefined? He thought we needed to do scope which he got me in next Wednesday. He didn’t have any earlier. But he also told me we’ll know what we’re dealing with when he’s done bc he has a pathologist that works with him right there @ hospital. I also lost 6 pounds ( which I need to), but I worry that it’s the cancer although I am sticking with my calories via MyFitnessPal and stressed? Prayers

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Pattymac….sounds like you are on right track….the week will go fast and you will get answers from the bronchoscopy….we will send our white light to you!! Terrid

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@pattymac

I able to pay it forward before I’m called home. I’m not saying I won’t have a possible bump in the road ahead but I have to let go of what I can’t control too.

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Pattymac……since it sounds like the door has closed for you to go to Mayos for evaluation, go on line to nationaljewish.org…..get their phone number and see if going there could occur……they provide financial assistance I believe.
They are in Denver….which has lots of air travel….for low rates.
I went for 7 days…..I am one of the 20% of those with MAC who do not require treatment at this point…..they used an extensive CAT Scan …..and results of 3 sputum cultures obtained during my January visit there….Dr Huitt and mycobacterium group felt that I was silently aspirating MAC from tap water I drank ….as a result of my GERD?
The medical care there was no doubt the best available. Terrid

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@pattymac

I able to pay it forward before I’m called home. I’m not saying I won’t have a possible bump in the road ahead but I have to let go of what I can’t control too.

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WOW Terri that is tremendous!!! Thank you for sharing this and I am overjoyed you had a clear course and clarity in diagnosis. I’m astonished at the specifics of your situation, the good and not-so-good. Are you doing better now? That is one sweet picture!

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@pattymac

I’m really scared now!

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@llwortman, Linda what a great response! Hugs! Katherine

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@pattymac

My Pulmonoligist here is referring me to one in Munster Indiana bc he said he doesn’t have equipment to do bronchoscopy here which is weird bc it’s same hospital affiliation? So Tuesday is my appt with him to set appt for biopsy and this is all frustrating and scary but I will also get a second opinion as well. I’m reading more about how chemo is very bad and really good nutrition is better too.Why would radiation be a choice if it only kills the good cells?

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@jms7, great and thoughtful post .. thank you for helping out while I was away! Hugs! Katherine

Liked by jms7

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@pattymac

I able to pay it forward before I’m called home. I’m not saying I won’t have a possible bump in the road ahead but I have to let go of what I can’t control too.

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Jms7… i wasnt in dire straights before I went to NJH in January for second opinion…..i had had a cough of 5 hours every evening for 2 years….local Doc did all tests and it was the bronchial washing from Bronchoscopy that grew MAC…..THe rush was to put me on the antibiotics….but i said no…not til I got the second opinion from experts at NJH. And they said no….my problem was my GERD and sleep apnea….will be getting new bed to sleep with head up….and also CPAP equipment?…thanks for asking Terrid

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@jms7

I LOVE using “Ezekiel” breads for croutons! They are very loaded in sprouted grains thus very nutritious. Slice into croutons and dry, then add the olive oil bit of vinegar, fresh basil, raw walnuts, heaven! LOL your 5-yr-old granddaughter! So sweet! More soon, good night! Focus on anything that makes you smile, because that is where the power is! Planning a healing meal does wonders for the heart and soul, and helps others too. : )

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@jms7, you’re making me hungry! Hugs! Katherine

Liked by jms7

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@marzz

Hello, I am sorry you are going through this right now. I am sending prayers your way. Please keep in mind that PET SCANS contain Glucose to help detect the cancerous cells BUT THAT IS SUGAR which feeds the cancer and makes it grow aggressively. PLEASE CONSIDER LIMITING THESE PET SCANS IF AT ALL! My sisters lung cancer spread VERY VERY AGGRESSIVELY in one week through her entire body, lymph nodes, liver, spine, intestines, abdomen, neck. SUGAR FEEDS CANCER!

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@marzz, PLEASE do NOT continue to repeat/spread this MISINFORMATION on sugar on different areas of Mayo Connect.

It is INCORRECT information on sugar and will cause concern for ill people .. it is NOT a nice thing to do. It causes Colleen to have to each time place the below information that gives the CORRECT information. I know this is what YOU believe .. but please educate yourself to the correct more current data . It would be a service to yourself .. and to Mayo Connect I hope you understand and desist. Katherine, Volunteer Mentor

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@jms7

I LOVE using “Ezekiel” breads for croutons! They are very loaded in sprouted grains thus very nutritious. Slice into croutons and dry, then add the olive oil bit of vinegar, fresh basil, raw walnuts, heaven! LOL your 5-yr-old granddaughter! So sweet! More soon, good night! Focus on anything that makes you smile, because that is where the power is! Planning a healing meal does wonders for the heart and soul, and helps others too. : )

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LOL!!!! And more LOL!!! : ) yeah yum yum!!!! I sauté up some salmon, olive oil, lemon juice, and spinach then put it in a pasta bowl LOL so it all mixes together. I call it the power lung meal! Oh, then some organic chard with some dark chocolate for dessert. MMmmmm magnesium and antioxidants for lung power. LOL you are so funny Kate! : )

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