Mayo Clinic Connect
anyone had any experience with either of these? My cultures have beeen clear for over 3 mos from MAC but now diagnosed with a rare fungus ” ochronis something and now Novardia
@dixer, do you mean nocardiosis? Here’s some information about this infectious disease affecting either the lungs (pulmonary nocardiosis) or the whole body (systemic nocardiosis) from the Centers for Disease Control and Prevention http://www.cdc.gov/nocardiosis/
Liked by Ali Skahan
my husband has an appointment in Sept. to see a pulmonary dr. . He has not been diagnosed.
Thank you Coleen!
Welcome to this discussion @murlu. Does your doctor suspect that your husband has a lung fungus or infection? Can you tell us a bit more?
no after I was clear of MAC i was recently diagnosed with Ochroconis (Dactylaria) gallopava then just recently with Nocardia farcinica . I Was placed on noxafil for the fungus but had to stop due to severe reaction. They are now looking into a med for the nocardia
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We have not seen the dr. as of yet. But they plan on a lung pucture to get a sample
Hello again @dixer, do you know what the new medication is that they’ll be giving you? Please keep us posted on how it works out for you, as well as the results after your husband has his appointment. We’re here to listen!
Thanks Alaskhan will do but it is Murlu whose husband is sick
Apologies, thank you for catching @dixer! @murlu please keep us posted on your husband after his appointment.
Liked by Colleen Young, Connect Director
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