Loss and Grief: How are you doing?

Posted by Teresa, Volunteer Mentor @hopeful33250, Jan 16, 2018

When my dad passed away several years ago I lost my keys 4 times in one month, I would wake up at 3 a.m. several days every week feeling startled. Sound familiar? These are reactions to grief. Grief is a very personal experience - everyone grieves differently – even in the same family because the relationship of a father is different than that of a wife or a granddaughter. Unfortunately, often we grieve alone. Sometimes we don’t want to “bother others” with our grief, and sometimes friends and family tell us that we should be over it by now. After all the person we lost was ill for a long time or was very old and “it was their time” or “they are in a better place now.” Sound familiar?

Grieving is often described as the "work of grief." It does feel like hard work doesn’t it? Grief can be difficult because of the many factors related to the loss. If the loss followed a prolonged, serious illness you undoubtedly did some “anticipatory grief work” prior to the actual death of the loved one. If the loss, however, was sudden, i.e., accident related, suicide, a result of crime, etc. the sense of grief is coupled with shock.

The relationship that you had with the loved one also affects your grief experience, i.e. was your relationship close or had it been strained? Do you feel guilt that you were not closer or do you feel guilty because you don’t feel you did enough to help while your loved one was ill?

Sometimes anger plays a part in the grief process. Did your loved one get poor medical treatment or a wrong and/or late diagnosis? Did your loved one not follow your doctor’s orders with regard to their health (diet, smoking, attention to meds or exercise)? All of these factors contribute to your experience of grief.

Also, some losses are not so evident to others. These would include a miscarriage or a stillborn. Sometimes these losses are not considered as relevant to others as the loss of a person who has lived a longer life. In the case of a miscarriage, others might not even be aware of your loss.

You may think of that person on anniversary dates (their birthday, date of their death) or you might think of them constantly. Unfortunately, sometime people say things that can multiply grief. Have you ever heard someone say, “you should be over this by now?” or “I had a similar experience and I’m OK.” Well, most likely their similar experience was not the same as yours. Thinking you should be over it might compound your grief with feelings of guilt or frustration.

Whether a recent loss, or a loss you experienced a long time ago, let’s talk about it. Whatever your experience, I'd like to hear your stories and together find a way to relocate that loved one so that we can experience peace in our lifetime.

Together let us support each other in our grief journey.

Teresa

Interested in more discussions like this? Go to the Loss & Grief Support Group.

@sunnymygirl

Hi there, it’s been several months since my last response. It will soon be a year since my sister passed. I still miss her laugh, wisdom and her love. She was one of a kind. Her sense of humor and her pranks. To many stories to tell. As i go through my grief I find that my coping skills are improving. I’m laughing, living, eating and loving. I’m so thankful that I’ve had my family and good therapists to help me pick through all the jumbled mess in my head and realize that I can get through her loss. Your stories and your comments helped so very much. I appreciate all of you. I know that with time, we will get through this loss. Thanks

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Hello @sunnymygirl and thank you for checking in with an update. Your positive spirit and the wonderful memories of your sister are gifts that you have that will help you to survive this anniversary time. I appreciate your posting!

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@reibur1951

I was asked by Teresa, Volunteer( https://connect.mayoclinic.org/member/95110aa007ad79b253a017a5ebcc51b86505f8b82/ )
to move from https://connect.mayoclinic.org/discussion/melodysplastic-syndrome-unspecified-myelofibroisis-1/?pg=2#comment-116386

We knew it was inevitable that the Blood transfusion were only biding time - that there could eventually be a reaction to them or they would no longer work.:-

I knew something critical was happening with 6 in the last four weeks May 29-June 19 and a count of 6.5, 7.2, 6.4, 6.8 - like i said on the other thread what irked me was his comment of giving 6 units of blood all at once if he wanted them; then the trip to the ER on June 21-22 really topped it off I have no idea how I kept my cool and my thoughts to myself.... Tho its not in same location and under different name my mother worked in that hospital from 1954-1974; and her sister moved up from southern Indiana and started working there from 1968-1974 I was appalled at he being refused transport to I U Medical Center or Methodist given excuses that did not hold water - even after I said we would pay for the transport fees in necessary!

I feel we done our best on Monday June 25th getting him out of the house and down to I.U. Methodist E.R. I transported him myself in my personal vehicle with the heip of the son-in-law and son... we probably done the unconscionable in the son told him he was going if I called him back over as he and the son was physically going to carry him out I told the son-in-law to be back at 11:30 and we were gone... we had talked with son's oncologist research nurse and she had laid the ground work for our arrival at Methodist ER so we would not be refused and she talked to him what she said i am not sure but he called me back and asked about if paper work was ready he was sitting up in bed I faked that as I was not sure what he was talking about he acted like he was goign to start saying something and I just looked at him a told him the decision was his - he had to decide one way or another as his son had given up and was no longer willing to fight his lung cancer and walked out of the room - son-in-law came shortly after i told him what i had done next thing i knew he was frantically waving at me to get back there he had his pants up to knees but son-in-law could not hold him steady enough to get them up rest of way I had bought a rollator after son was diagnosed with lung cancer as I knew a wheel chair would not always be available they rolled out of beddroom inthat down the hall and when got to kitchen door of all things HE WANTED TO WALK DOWN THE THREE STAIRS and probably out to the car but he got lifted down it and rolled to the car in it.... he slept all the way to Indy tho he claims he only had his eyes closed...he made no attempt to talk so I know he did sleep all the way....

We are doing okay except wondering what we will do come winter... this place is a 1975 mobile home with major problems and a "dead horse" there are things in the works but he dragged his feet on proceeding till Feb. it could be as late as Oct. or Nov. before anything solid is known.

I have managed to get the cremation done and paid for... got into a fiasco with graves owned by his mother and him the township trustee claimed still owed money on and would not show son-in-law the books so after basically having a gun held to us and blackmailed I just went elsewhere to buy grave sites for the creamery house monument for him, his wife & 2 sons; the grave sites and the foundation is paid for... The grave sites ate up some of the monument money and I paid for the foundation out of my household money (SS) as not to cut into it anymore so will be very short on money this month but what the hell (oops) have been ever since all this started with him in Nov. 2016 and then add the sons trips to Indy since Oct.

We do expect to hear him yell for something.... miss him on the trips to Indy as he really was a real trooper with all going on with him he never refused to go until the last one for the CT-scan on the 25th he told us on Sunday we could go and he would stay home alone - but I canceled out immediately leaving a message on the oncologist research nurse cell phone.

The past two years he never really gave up but he did not want to go places only to the drs office; i did get him out to Walmart if i went but other than that he preferred to stay home.... before that we would go to the Eagles, American Legion and hear the local bands.

Like I said it was inevitable and I knew it... It was his time and he is relieved out of his suffering.... he never complained about health issues maybe he should of more... Its been a rough rough almost 2 years (all started Nov 7 2016) but so far we have managed to survive... I got to survive I promised him I would take care of his son, get him to his cancer treatments.... God will take care of us and provide for us...

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@reibur1951 You are so wise to have contingency plans! It sounds as if you have enough opportunities and choices that something will surely show up when you need it.

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@reibur1951

I was asked by Teresa, Volunteer( https://connect.mayoclinic.org/member/95110aa007ad79b253a017a5ebcc51b86505f8b82/ )
to move from https://connect.mayoclinic.org/discussion/melodysplastic-syndrome-unspecified-myelofibroisis-1/?pg=2#comment-116386

We knew it was inevitable that the Blood transfusion were only biding time - that there could eventually be a reaction to them or they would no longer work.:-

I knew something critical was happening with 6 in the last four weeks May 29-June 19 and a count of 6.5, 7.2, 6.4, 6.8 - like i said on the other thread what irked me was his comment of giving 6 units of blood all at once if he wanted them; then the trip to the ER on June 21-22 really topped it off I have no idea how I kept my cool and my thoughts to myself.... Tho its not in same location and under different name my mother worked in that hospital from 1954-1974; and her sister moved up from southern Indiana and started working there from 1968-1974 I was appalled at he being refused transport to I U Medical Center or Methodist given excuses that did not hold water - even after I said we would pay for the transport fees in necessary!

I feel we done our best on Monday June 25th getting him out of the house and down to I.U. Methodist E.R. I transported him myself in my personal vehicle with the heip of the son-in-law and son... we probably done the unconscionable in the son told him he was going if I called him back over as he and the son was physically going to carry him out I told the son-in-law to be back at 11:30 and we were gone... we had talked with son's oncologist research nurse and she had laid the ground work for our arrival at Methodist ER so we would not be refused and she talked to him what she said i am not sure but he called me back and asked about if paper work was ready he was sitting up in bed I faked that as I was not sure what he was talking about he acted like he was goign to start saying something and I just looked at him a told him the decision was his - he had to decide one way or another as his son had given up and was no longer willing to fight his lung cancer and walked out of the room - son-in-law came shortly after i told him what i had done next thing i knew he was frantically waving at me to get back there he had his pants up to knees but son-in-law could not hold him steady enough to get them up rest of way I had bought a rollator after son was diagnosed with lung cancer as I knew a wheel chair would not always be available they rolled out of beddroom inthat down the hall and when got to kitchen door of all things HE WANTED TO WALK DOWN THE THREE STAIRS and probably out to the car but he got lifted down it and rolled to the car in it.... he slept all the way to Indy tho he claims he only had his eyes closed...he made no attempt to talk so I know he did sleep all the way....

We are doing okay except wondering what we will do come winter... this place is a 1975 mobile home with major problems and a "dead horse" there are things in the works but he dragged his feet on proceeding till Feb. it could be as late as Oct. or Nov. before anything solid is known.

I have managed to get the cremation done and paid for... got into a fiasco with graves owned by his mother and him the township trustee claimed still owed money on and would not show son-in-law the books so after basically having a gun held to us and blackmailed I just went elsewhere to buy grave sites for the creamery house monument for him, his wife & 2 sons; the grave sites and the foundation is paid for... The grave sites ate up some of the monument money and I paid for the foundation out of my household money (SS) as not to cut into it anymore so will be very short on money this month but what the hell (oops) have been ever since all this started with him in Nov. 2016 and then add the sons trips to Indy since Oct.

We do expect to hear him yell for something.... miss him on the trips to Indy as he really was a real trooper with all going on with him he never refused to go until the last one for the CT-scan on the 25th he told us on Sunday we could go and he would stay home alone - but I canceled out immediately leaving a message on the oncologist research nurse cell phone.

The past two years he never really gave up but he did not want to go places only to the drs office; i did get him out to Walmart if i went but other than that he preferred to stay home.... before that we would go to the Eagles, American Legion and hear the local bands.

Like I said it was inevitable and I knew it... It was his time and he is relieved out of his suffering.... he never complained about health issues maybe he should of more... Its been a rough rough almost 2 years (all started Nov 7 2016) but so far we have managed to survive... I got to survive I promised him I would take care of his son, get him to his cancer treatments.... God will take care of us and provide for us...

Jump to this post

I am not sure what the "contingency plans" are but there are enough houses for sale.... tho he and his son was and is totally country but if houses fall through it may have to be rent in town for winter months I have not looked into any other nearby country but keeping eye on both these so far in over 3-6 months they have not moved so hoping.... will manage some how just hate to think os being here another winter with the problems and just wood heat the cost of the wood/electric combine was way too much and was not totally warm and i stayed up 24/7 to insure it and going to friends cbc blood test/transfusion on little or no sleep at all which was not bad it was within 40 miles but doing it and goign to Indy which was an all day thing and 200 mile round trip but i survived it I just keep praying as i go past the first sign the wind power house that its still available as soon as i hear anything i am sure the wheels will turn fast... or rather hoping they will most is ready here except for packing up china closet, and bedroom closet which right now has boxes atacked in front of it... i call it "box heaven"

REPLY
@lisalucier

Hello, @shortshot - please let me express my sympathies to you on the loss of your your daughter-in-law, Joy. I'm very sorry to hear.

That is a lot going on with her passing and also the wedding of your grandson. A span of emotions, too, I'm sure.

Will you have a chance to rest and have some quiet reflection time after the wedding party?

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Hi, My #2 son and two of his grown Kids/ 44 & 38 drove me to the wedding party. It was a nice day and we had a nice time. Almost home my son asked what I was going to do with my eldest son. I told him nothing and if he thought I was going to give the oldest any money, Itold hime no and if he contests my will he will gent nothing.. I have had a not so good of time since my husband passed. (may 4) and then my oldest wants this and that and being the oldest he should have this. I just said he will not get anything while I'm still alive. Oh happy day! lots of fun by all. I'm tired. more later. Thanks for caring. Nancy shortshot)

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In reply to @reibur1951 "Prayers.." + (show)
@reibur1951

So sorry nice way to deflate a nice day... Sad the death brings out the worst in families... I pray things get better for you Lets just say let Karma work and hope your around to see it....

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@sunnymygirl

Hi there, it’s been several months since my last response. It will soon be a year since my sister passed. I still miss her laugh, wisdom and her love. She was one of a kind. Her sense of humor and her pranks. To many stories to tell. As i go through my grief I find that my coping skills are improving. I’m laughing, living, eating and loving. I’m so thankful that I’ve had my family and good therapists to help me pick through all the jumbled mess in my head and realize that I can get through her loss. Your stories and your comments helped so very much. I appreciate all of you. I know that with time, we will get through this loss. Thanks

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Thanks IndianaScott

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@sunnymygirl

Hi there, it’s been several months since my last response. It will soon be a year since my sister passed. I still miss her laugh, wisdom and her love. She was one of a kind. Her sense of humor and her pranks. To many stories to tell. As i go through my grief I find that my coping skills are improving. I’m laughing, living, eating and loving. I’m so thankful that I’ve had my family and good therapists to help me pick through all the jumbled mess in my head and realize that I can get through her loss. Your stories and your comments helped so very much. I appreciate all of you. I know that with time, we will get through this loss. Thanks

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Thank you hopeful33250

REPLY
In reply to @reibur1951 "Prayers.." + (show)
@reibur1951

@reibur1951 So true about the loss of a family member can bring out the worse in some people.

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@lisalucier

Hello, @shortshot - please let me express my sympathies to you on the loss of your your daughter-in-law, Joy. I'm very sorry to hear.

That is a lot going on with her passing and also the wedding of your grandson. A span of emotions, too, I'm sure.

Will you have a chance to rest and have some quiet reflection time after the wedding party?

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@shortshot Hi Nancy,

I'm so sorry that the trip home took some emotional detours. You certainly did not deserve that! Take it easy today and write more later.

REPLY
In reply to @reibur1951 "Prayers.." + (show)
@reibur1951

Complicated grief. Grief is love turned inside out. Dr Ron Rubenzer. Your well-being is my commitment.

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