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Posts (5913)

2 hours ago · Gratitude Discussion Group in Just Want to Talk

Today, I'm grateful that I could go to the Y for senior water exercise. It's a low key workout and I do it at my own pace and don't try to keep up with everyone else, but it feels good to come back, eat and take a nap. I truly believe that life is better in the water than on land!

2 hours ago · Gratitude Discussion Group in Just Want to Talk

I am sorry to hear of your friend's many losses, @parus. I'm glad that she has you for a friend, she will certainly need someone to talk with and share with and you are just the right person.

I'm glad that you shared about that. Yes, you are right, "We are all here to help one another."

2 hours ago · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello @patsyt68, I would like to join @johnbishop, in welcoming you to Connect.

If you are comfortable sharing more, please let us know a little more about yourself.

Is the tingling in your feet your only health problem? Do you take meds for other problems as well?

As the members on Connect get to know you better it is easier to share from our own experiences.

Will you post again and let us know how you are doing?

2 hours ago · undiagnosed neurological issues in Brain & Nervous System

Hello @bluehorizon and @barbbie
I would also like to suggest that you subscribe to a magazine (comes out every other month) called Brain & Life. It has great articles about various neurological disorders and it is completely free. It comes by email and also through the regular mail. Here is where you can subscribe, https://www.brainandlife.org/about-us/about-brain-life/about-the-publication/

At the top of their website, there is a place where you can "Subscribe For Free." I think you will find it interesting as well as helpful.

This same organization also offers YouTube videos. Here is the link for those, https://www.youtube.com/channel/UCFumXOetBWxQokiXkl8y1Wg.

As you continue your neurological education, you might feel more comfortable approaching these subjects with your medical team.

Will you let me know how you are doing?

3 hours ago · New member saying Hi in Digestive Health

Hello @afrochic, it is good to hear from you. I am glad to hear that your gastro endoscopy will be repeated again. That is probably important given your symptoms. It is unfortunate that you have not found more relief from medication and diet. Elevating the head of your bed is very helpful, I've done that for a number of years now.

Have you lost weight because of your problems with eating and nausea?
Is coming to the U.S. (to be seen at Mayo) a possibility for you if your symptoms do not improve under your current treatment?

11 hours ago · Adults On The Autism Spectrum in Mental Health

So good to hear from you, @mamacita, and know that you are doing better. Keep resting for a while longer. Even though you feel better now you want to give yourself more time before you start your "ordinary routine of slaying dragons and fighting werewolves."
Be well! We certainly missed your wise, kind posts and look forward to hearing from you again when you are able.

11 hours ago · Anxiety or Heart Issues? in Depression & Anxiety

@merpreb Great video! Thanks for finding and posting this.

11 hours ago · undiagnosed neurological issues in Brain & Nervous System

Hello @bluehorizon,
Welcome to Mayo Connect! I can certainly understand your concern over these symptoms. To begin with, please note that a lot of neurological disorders are not properly diagnosed until many years after the symptoms appear (this would include MS and PD) and rare neurological disorders might take a lot of investigation at top-notch medical facilities. Therefore, you need to keep persisting to get a diagnosis and to seek the best neurological care you can find.

Do you live near a multi-disciplinary medical center like a university medical school or a Mayo facility?

I feel a bit confused about a doctor saying that the "white spots" were related to aging, given that you are only age 43. I'm guessing that the MRI was done of the brain, is that correct or was the spinal cord included in the MRI? As, @barbbie, mentioned a more thorough neurological workup needs to be done as you investigate these symptoms.

I had early onset PD without the typical symptom of tremors, so it was hard to diagnose as well and I went over 15 years with the symptoms before the diagnosis became more evident. So I would encourage you to seek out a top-notch medical facility, to research a great deal about neurological disorders before you seek a second opinion, to write down all of your symptoms and their frequency. Be sure to include when they were more likely to occur, i.e, at night, after exercise, when you are tired, stressed, before or after meals, etc.

Check out the website for the MS https://www.nationalmssociety.org/What-is-MS and subscribe to their emails, you will learn a lot. Do the same for the Parkinsons's Foundation website and also the Michael J. Fox organization. They will all provide you with weekly and/or monthly emails and you will learn a great deal.

I'm looking forward to hearing from you again. Will you provide updates as to how you doing with your search for a diagnosis?