Long Term PAC and PVC Suffer. Need your support and guidance

Posted by rr1967 @rr1967, May 23, 2023

Hello everyone. Thank you for reading this below is my story:

I have been dealing with PVCs and PACs for almost 20 years. They flare up once per year usually. I have had Zio Patch monitors, tons of EKGs, a stress echo four years ago, two heart CT scans two decades ago, many ER visits, etc, etc. All results were normal with the exception of showing PACs and PVC. My burden has always been below 2% when they flare up.
25-e some stats:
1. I am 55 and in good health
2. Borderline blood pressure: usually around 120-130/75-85 most normal days.
3. Borderline type 2 diabetic.
4. I do suffer from chronic anxiety and depression. Twenty years ago I suffered many panic attacks for the course of a year. But they have gone away. Mostly I deal with almost daily anxiety and worry.
5. Non smoker, no drugs
6. I do drink alcohol ( wine or beer) on weekends with my wife, only at night.
7. I am at a healthy weight. Cholesterol and Triglycerides all normal.
8. Resting heart rate: 50-60. Cardio doc states that this heart rate is normal for me.

Well my most recent flare up started two weeks ago and they seem worse. I feel the extra beat the moment I wake up they go on all day until I go to bed. I went to the ER and they did another EKG and ran a bunch of blood work. Of course...all normal. Diagnosis: PACs. Electrolytes also all normal.

In the last week, I have noticed my skipped beats increasing when I move around, go grab groceries, go for a walk, even exercise. This has me more scared than ever. My regular doctor told me not to worry, but I am seeing an electrophysiologist (EP) tomorrow. I did see an EP two years ago and he told me I was fine and prescribed Flecianide to take as needed. I saw the side effects and they scared me off so I never tried them. Eventually, the extra beats went away.

I have also tried Metropolol and they did not work. They also made my heart rate slower so my cardio doc told me to stop taking them.

But as stated, they extra beats are back and I am more scared then ever, especially with them increasing with movement or exercise. I have never fainted or felt dizzy from these. I only catch my breath and feel extra alerted.

Finally, my palpitations also seem to increase considerably after I eat a meal. Is this normal?

Any advice, recommendations, encouragement, support please.

Thank you and my apologies for any typos or writing errors.
RR

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@jc76

@713j Yes take Co-Q-10. Back in 2016 the cardiologist (Mayo Jacksonville) who prescribed a statin to me recommended I take co-q-10 as you can get muscle aches from taking the statin.

Then my heart failure docotor (Mayo Jacksonville) a couple of years ago recommended I take Co-!-10 for my heart failure. He suggested 200 mg.

What I take is a combination of Ubiquinol and Co-q-10. Ubiquinol is a much easier absorbed version of Co-Q-10 but much more expensive. I take 1 soft gel of Ubiquionol 100 mg. in morning. Then I take 2 more of pills of the regular Co-Q-10 (one at lunch/dinner) at 100 mg each. So I am taking 300 mg a day.

You can find the Ubiquionol at some good prices at Qunol, and Life Extension. VitaCost is also a huge supplier of vitamins and supplements and carries almost all brands as well as their own. It can be expensive so you can see why I do a combination. I was using Puritan Pride but unless they were have special sale found their prices for Ubiquionol expensive. Their prices for Co-Q-10 though are pretty good.

I never had the muscle aches as was already taking Co-Q-10 when told to take it by first cardiologist. I am kind of a supplement/vitamin fanatic who reads and researches a lot. So by the time my doctors recommend something to me like fish oil, magnesium, etc., I am already taking it.

My wife when she got prescription for statin did get muscle aches. I suggested to her try co-q-10 and she did. She told me it did help reduce the muscle soreness and eventually soreness went away. The heart is a muscle so what ever the Co-Q-10 does for muscles probably does same for heart and why my heart failure doctor wanted me to use it.

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It is a waste of money to buy Ubiquinone vs Ubiquinol. Ubiquinone is not bio available when a person is older than their 40s. Saving a few bucks on an item that is not absorbed is just a waste. I take 800 mg ubiquinol a day. Japanese researchers looked into very high doses of ubiquinol (4K mg/day) and found it useful for heart failure. I gave my 7 year old 40# dog 200 mg a day to cure her heart murmur. Look at additives in your supplements. Qunol uses an emulsifier called polysorbate 80 which is a neurotoxin. Blue bonnet uses an emulsifier called carrageen with destroys healthy naturally occurring probiotic called akkermansia muciniphila.
Magnesium citrate is used to helped the bowels. Magnesium taurate is used for heart issues. There are I think 7 or 8 different kinds of magnesium.
"Supplemental ubiquinol in patients with advanced congestive heart failure". https://pubmed.ncbi.nlm.nih.gov/19096107/
Abstract

Patients with CHF, NYHA class IV, often fail to achieve adequate plasma CoQ10 levels on supplemental ubiquinone at dosages up to 900 mg/day. These patients often have plasma total CoQ10 levels of less than 2.5 microg/ml and have limited clinical improvement. It is postulated that the intestinal edema in these critically ill patients may impair CoQ10 absorption. We identified seven patients with advanced CHF (mean EF 22%) with sub-therapeutic plasma CoQ10 levels with mean level of 1.6 microg/ml on an average dose of 450 mg of ubiquinone daily (150-600 mg/day). All seven of these patients were changed to an average of 580 mg/day of ubiquinol (450-900 mg/day) with follow-up plasma CoQ10 levels, clinical status, and EF measurements by echocardiography. Mean plasma CoQ10 levels increased from 1.6 microg/ml (0.9-2.0 microg/ml) up to 6.5 microg/ml (2.6-9.3 microg/ml). Mean EF improved from 22% (10-35%) up to 39% (10-60%) and clinical improvement has been remarkable with NYHA class improving from a mean of IV to a mean of II (I to III). Ubiquinol has dramatically improved absorption in patients with severe heart failure and the improvement in plasma CoQ10 levels is correlated with both clinical improvement and improvement in measurement of left ventricular function.

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@jc76

@rr1967
Have you had a echocardiogram? It can check the EF of your heart. That would be good to know as a good EF should reduce your stress.

I have tons of PVCs. They cause me a lot of stress which causes more PVCs. Was this relayed to you? Stress as well as eating can trigger PVCs. I find if I exercise my PVCs go down.

I have a ICD/Pacemaker since 2006. I have many shocks but now I like having the ICD/Pacemaker in my chest as without it I would not be typing this. I do not have exercise restrictions the opposite to keep the heart as strong as can be. I take Entresto and Carvididol. Two great heart medications that can really helped those with HF.

Too long I went not treating my HP and I think over the decades caused the HF. My BP now is the opposite as is usally around 100-60. So a little dizzy if stand up to soon. But deal with it to reduct pressure on heart if you have high BP.

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Hello JC76.
I had a stress echo about 4 years ago...all was perfectly normal. I have been told many times that stress will increase PVCs and PACs. I have found that exercise does little to reduce my extra beats. I get scared when I have several in a row and it happens for an hour or so. I have been told that this is not Afib, but just a run of PACs or PVCs.
Thank you!
RR

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@rr1967

Hello JC76.
I had a stress echo about 4 years ago...all was perfectly normal. I have been told many times that stress will increase PVCs and PACs. I have found that exercise does little to reduce my extra beats. I get scared when I have several in a row and it happens for an hour or so. I have been told that this is not Afib, but just a run of PACs or PVCs.
Thank you!
RR

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My cardiologist recently told me that stress really isn’t related to pvc’s. Omg … who do you believe! When my stress level was high that was when they started. Now that the stress is decreased, so did the pvc’s!

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@brendas1954

My cardiologist recently told me that stress really isn’t related to pvc’s. Omg … who do you believe! When my stress level was high that was when they started. Now that the stress is decreased, so did the pvc’s!

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Did you go for a sleep study? I was referred by the cardiologist. Awaiting results.

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@rr1967

Hello JC76.
I had a stress echo about 4 years ago...all was perfectly normal. I have been told many times that stress will increase PVCs and PACs. I have found that exercise does little to reduce my extra beats. I get scared when I have several in a row and it happens for an hour or so. I have been told that this is not Afib, but just a run of PACs or PVCs.
Thank you!
RR

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rr1967
We all need to find something that helps reduce stress. For me that is exercise. For others like you it probably is something else that you enjoy. Brining down the stress level is going to help. My EP, HF, and PCP all tell me to exercise not only because it reduces my stress but helps with heart failure and keeping me fit.

Just try to find something you like to do and enjoy it.

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@brendas1954

My cardiologist recently told me that stress really isn’t related to pvc’s. Omg … who do you believe! When my stress level was high that was when they started. Now that the stress is decreased, so did the pvc’s!

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@brendas1954 I think your experience with your PVCs answers your question.

My HF, EP, PCP all say to reduce stress as will affect your PACs and PVCs. Those are Mayo Jacksonville and my EP is world reknown EP who gives seminars to others along with writing several books. He is now involved with extensive research.

Stress more PVCs less strss less PVCs. Exactly what happens to me!

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@brendas1954

My cardiologist recently told me that stress really isn’t related to pvc’s. Omg … who do you believe! When my stress level was high that was when they started. Now that the stress is decreased, so did the pvc’s!

Jump to this post

Stress matters significantly - I believe stress can kill. I had a doctor tell me as well that stress doesn't play that big of a part. When I get stressed, my blood pressure goes through the roof - I tend to be an axious person by nature and stress definitely matters!

I'm not able to attach a link, but there is an article from medical news today that confirms stress management is part of taking care of our heart disease. I have taken up doodle art - it's mindless and empties my brain of worry, which calms me down. I also exercise and make a point of eating healthfullyl.

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@jc76

@brendas1954 I think your experience with your PVCs answers your question.

My HF, EP, PCP all say to reduce stress as will affect your PACs and PVCs. Those are Mayo Jacksonville and my EP is world reknown EP who gives seminars to others along with writing several books. He is now involved with extensive research.

Stress more PVCs less strss less PVCs. Exactly what happens to me!

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Sometimes but not always . Woman’s hormones play a huge role in PVC’s . Whether on period or pregnancy. Mine went up by 1000’s sorting those times .
Also now at 62 I’ve had horrendous gastric issues that kick up mine . Gastro Cardiac Syndrome. I do take Heart ♥️ Calm Supplements from Vital Biologics for years when it gets bad . Three diff magnesium w Q-10 and potassium. Google it .
It works well .

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Several posters have mentioned the heart calm. I did research it and the ingredients are the ones that are rcommended for helping with PACs and PVCs.

@rozy288 I take all these supplements separately already with exception of potassium. I wanted to take it but my EP stated I was at the high end of normal on postassium per my blood test and recommended I not take more. For me the one supplment that seems to have affected my PACs and PVCs is magnesium. And that supplement recommendation came from my Mayo EP.

Regarding the Co-Q-10. You will see a lot of discussion on types of Co-Q-10. Many researches including supplement companies show that Co-Q-10 is hard for body to absorb unlike Ubiquinol (spell) which is a higher more absorbent form of Co-Q-10. It is more expensive though but I take both.

The only confusion I have on magnesium is my Mayo EP recommended Citrate type and I see some posters saying a a different type is better for PVCs and PACs. I am going to ask my EP their opinion. My citrate version seeems to be working but this is me and we are all different.

Good luck, I am lucky I don't have gastric issues but my wife does so and it affects her quality of life drastically.

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@spmgka

Stress matters significantly - I believe stress can kill. I had a doctor tell me as well that stress doesn't play that big of a part. When I get stressed, my blood pressure goes through the roof - I tend to be an axious person by nature and stress definitely matters!

I'm not able to attach a link, but there is an article from medical news today that confirms stress management is part of taking care of our heart disease. I have taken up doodle art - it's mindless and empties my brain of worry, which calms me down. I also exercise and make a point of eating healthfullyl.

Jump to this post

I made several posts regarding the mental health side of treatments and stress just as important to patient as physical. I think sometimes medical doctors only look at medical side and not mental health but both affect each other and success of treatments.

I am lucky to be at Mayo Jacksonville where my psychiatric PA works very closely with my cardiologist, heart failure, and EP specialists to address and treat mental health issues as well as physical as both affect each other. I see her every 6 months but is available via portal and phone any time I need to address an issue or need assistance.

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