Long Term PAC and PVC Suffer. Need your support and guidance

Posted by rr1967 @rr1967, May 23, 2023

Hello everyone. Thank you for reading this below is my story:

I have been dealing with PVCs and PACs for almost 20 years. They flare up once per year usually. I have had Zio Patch monitors, tons of EKGs, a stress echo four years ago, two heart CT scans two decades ago, many ER visits, etc, etc. All results were normal with the exception of showing PACs and PVC. My burden has always been below 2% when they flare up.
25-e some stats:
1. I am 55 and in good health
2. Borderline blood pressure: usually around 120-130/75-85 most normal days.
3. Borderline type 2 diabetic.
4. I do suffer from chronic anxiety and depression. Twenty years ago I suffered many panic attacks for the course of a year. But they have gone away. Mostly I deal with almost daily anxiety and worry.
5. Non smoker, no drugs
6. I do drink alcohol ( wine or beer) on weekends with my wife, only at night.
7. I am at a healthy weight. Cholesterol and Triglycerides all normal.
8. Resting heart rate: 50-60. Cardio doc states that this heart rate is normal for me.

Well my most recent flare up started two weeks ago and they seem worse. I feel the extra beat the moment I wake up they go on all day until I go to bed. I went to the ER and they did another EKG and ran a bunch of blood work. Of course...all normal. Diagnosis: PACs. Electrolytes also all normal.

In the last week, I have noticed my skipped beats increasing when I move around, go grab groceries, go for a walk, even exercise. This has me more scared than ever. My regular doctor told me not to worry, but I am seeing an electrophysiologist (EP) tomorrow. I did see an EP two years ago and he told me I was fine and prescribed Flecianide to take as needed. I saw the side effects and they scared me off so I never tried them. Eventually, the extra beats went away.

I have also tried Metropolol and they did not work. They also made my heart rate slower so my cardio doc told me to stop taking them.

But as stated, they extra beats are back and I am more scared then ever, especially with them increasing with movement or exercise. I have never fainted or felt dizzy from these. I only catch my breath and feel extra alerted.

Finally, my palpitations also seem to increase considerably after I eat a meal. Is this normal?

Any advice, recommendations, encouragement, support please.

Thank you and my apologies for any typos or writing errors.
RR

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@rr1967

Hello Brendas1954
My electrophysiologist and cardiologist have both told me that stress and anxiety are non-food related PVC and PAC triggers. Periods of high stress and anxiety will restart or increase PVCs and PACs in those people who have already have them. One of my close friend has a sister who is a doctor and during times of very high stress, hers will start as well. A few other people who I have talked to have also stated the same thing. Stress and anxiety will lead to an increase in PVCs and PACs in those people who already have them or it may be their first occurrence.
I know in the past couple of months, my stress levels have been high due to family issues, so I am not surprised that my palpitations have restarted.
Sadly, I am one of the few that can feel almost every PVC or PAC.

Thank you,
RR 1967

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@rr1967
Has your PCP or EP referred you to psyhcology division? I see a PA at Mayo Jacksonville Physchology Division. She is excellent and works with my EP, PCP, and heart failure doctors.

She prescribed escitalopram which is for anxiety. It has really helped. Years ago I was getting ICD shocks. I developed severe PTSD. I was put on Xanac, and Trazodone to be able to sleep at night and the excitalopram. I have come off the Xanac and Trazodone over a year now but she wants me to stay on the escitalopram for my anxiety over the PVCs and PACs.

My heart failure, EP, PCP, and PA at phsychiatric division have all worked together with medications, life style, etc. and my (knock on wood) ICD shocks have not happened. The pace clinic has adjusted my pacemaker and is working fine along with some new medications.

There is nothing wrong with asking about mental health and other medications to help cope with PACs, and PVCs and can medication help.

I will say again that all physicians should be addressing mental health along with physical health as they interact together. Mental health and coping with high stress medical issues affects quality of life and should be just as much priority as physical health.

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@jc76

@rr1967
Has your PCP or EP referred you to psyhcology division? I see a PA at Mayo Jacksonville Physchology Division. She is excellent and works with my EP, PCP, and heart failure doctors.

She prescribed escitalopram which is for anxiety. It has really helped. Years ago I was getting ICD shocks. I developed severe PTSD. I was put on Xanac, and Trazodone to be able to sleep at night and the excitalopram. I have come off the Xanac and Trazodone over a year now but she wants me to stay on the escitalopram for my anxiety over the PVCs and PACs.

My heart failure, EP, PCP, and PA at phsychiatric division have all worked together with medications, life style, etc. and my (knock on wood) ICD shocks have not happened. The pace clinic has adjusted my pacemaker and is working fine along with some new medications.

There is nothing wrong with asking about mental health and other medications to help cope with PACs, and PVCs and can medication help.

I will say again that all physicians should be addressing mental health along with physical health as they interact together. Mental health and coping with high stress medical issues affects quality of life and should be just as much priority as physical health.

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Hello JC76. Yes my EP did discuss the mental health part of it. I met with a therapist and now I take a low dose of Remeron and Hydroxyzine at night. Along with CBT, my mood has improved and my anxiety has reduced. However these all day PVCs simply shatter my existence and I become terrified and sad all day long.

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@jc76

@rr1967 If you doctor has reviewed the ingredients and says no harm I would try it. That was the best thing to do was have your doctor look at the ingredients and inform you.

I did this with my EP and that is when they mentioned the postassium. I take some other medications that can raise postassium levels so you can see why important to have your doctor look at it to ensure not contradictory to other medications of supplements.

The only thing I am disapointed in the heartcalm is that is uses Co-Q-10 insteast of Ubiquinol. Ubiquinol is a much better form of Co-Q-10. I do take taurine, Ubiquinol. Magnesium Citrate, so got most of the ingredients already. I do see that HeartCalm using a mixture of different forms of magnesium.

I was advised to take magnesium to help with PVCs. I was already taking so did not add it and PVCs kept getting worse. Then I noticed the form of magnesium was not what my EP recommended and I switched to it. Wow, immediate improvement. I was wearing a heart monitor to see where PVCs were coming from when I noticed I was not taking the form of magnesium I was advised to take.

Good luck and if it was me and my doctor said no harm with the HeartCalm I would try it.

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Hello jc76.
My EP recommended that I simply start taking a basic magnesium supplement at 400mg daily instead of the Heart Calm. So I started yesterday and I take it with dinner. The brand is Natural Factors which was recommended by on LPs and it is called Magenesium Bisglycinate which is supposed to absorb well and be easier on the digestive system. I am hoping that this and the low dose of Metropolol will help reduce the frequency of my PVCs and PACs. I know that they will never go away, but a reduction would really help my mood and fear level.
Thank you,
RR1967

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Can I take Heart Calm if I am already taking a beta blocker for PVCs

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@jc76

@rr1967
Has your PCP or EP referred you to psyhcology division? I see a PA at Mayo Jacksonville Physchology Division. She is excellent and works with my EP, PCP, and heart failure doctors.

She prescribed escitalopram which is for anxiety. It has really helped. Years ago I was getting ICD shocks. I developed severe PTSD. I was put on Xanac, and Trazodone to be able to sleep at night and the excitalopram. I have come off the Xanac and Trazodone over a year now but she wants me to stay on the escitalopram for my anxiety over the PVCs and PACs.

My heart failure, EP, PCP, and PA at phsychiatric division have all worked together with medications, life style, etc. and my (knock on wood) ICD shocks have not happened. The pace clinic has adjusted my pacemaker and is working fine along with some new medications.

There is nothing wrong with asking about mental health and other medications to help cope with PACs, and PVCs and can medication help.

I will say again that all physicians should be addressing mental health along with physical health as they interact together. Mental health and coping with high stress medical issues affects quality of life and should be just as much priority as physical health.

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@jc76 what are ICD shocks?

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@windyshores

@jc76 what are ICD shocks?

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@windyshores
ICD refers to Inplanted Cardiac Defibrillator.

Mine will speed up my heart when ventricles goes into tacacardia and if that does not work it will give me an electrical shock to heart. That, at least for me, has worked about a dozen times.

With changes to my pacemaker programming and new medication I have not had any shocks or even elevated pacing for over 6 months. I am knocking on wood when I write this.

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@chantalf

Can I take Heart Calm if I am already taking a beta blocker for PVCs

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@chantalf
These are questions you should asked your cardiologist, EP, or PCP. They can determine if a supplement is adversary or helpful with all your medical conditions, especially your heart and what you are taking for your heart.

I know a pain but it is what I do. Most of time they say no problem but several times advised I not take that particular supplement and/or a specific form of it would be better.

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@rr1967

Hello jc76.
My EP recommended that I simply start taking a basic magnesium supplement at 400mg daily instead of the Heart Calm. So I started yesterday and I take it with dinner. The brand is Natural Factors which was recommended by on LPs and it is called Magenesium Bisglycinate which is supposed to absorb well and be easier on the digestive system. I am hoping that this and the low dose of Metropolol will help reduce the frequency of my PVCs and PACs. I know that they will never go away, but a reduction would really help my mood and fear level.
Thank you,
RR1967

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@rr1967 You did the right thing asking your EP about what to take. What will work and what is good for one individual may not be for another individual. I think that is important on MCC.

Mine wanted me to take Magnesium Citrate. I was taking another form of Magnesium and was not helping. So I switched to the citrate and wow they did not go completey away but drastically reduced. There are so many addititives to magnesium it can be confusing of what you should take and that is great you went to your EP. It is the same thing I did as the magnesium supplement I was taking was not citrate. Citrate is absorb very quickly in digestive system and is sometimes used to help with BM and constipation.

And you are right on about if it can reduse the PVCs and PACs it really affectgs your mental outlook and moods. Good luck. Sounds like you have a good EP and well up on supplements and what is best form of magnesium for you.

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@rr1967

Hello JC76. Yes my EP did discuss the mental health part of it. I met with a therapist and now I take a low dose of Remeron and Hydroxyzine at night. Along with CBT, my mood has improved and my anxiety has reduced. However these all day PVCs simply shatter my existence and I become terrified and sad all day long.

Jump to this post

rr1967
Can you talk to your EP and see if they can refer you to psychiatric medication specialist. I go to Mayo Psychiatric department and see a PA who speicalizes in psychology medications. She works with my EP and heart failure doctor before prescribing any medications.

She prescribed Escitalopram 10 mg many years ago to help with my anxiety. This medication was cleared by my heart failure and my EP okay for me. It has really helped reduced my anxiety over the PVCs and PACs.

I am not familiar with the medications you were prescribed but I take my Escitalopram in morning as it meant to be an all day medication. You can always asked your EP about it. What is good for one patient may not be appropriate for another.
Good luck. Also when you get anxiety at night time have you explore doing the deep breathing technique to help reduce anxiety?

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I had a follow up with my EP today. I recently went through a 3 + month period of 22% PAC heart burden. He said ablations for PACs are all but impossible because unless they are firing very rapidly like every 2 or 3 second that cannot be found and ablated. Luckily they have really calmed down. I have considerably fewer of them and a low more normal sinus and bradycardia sinus and far far fewer possible Afib (according to the Kadia which cannot tell a PAC from Afib.
I have changed some supplements including some probiotics that affect the heart and very high doses of ubiquinol. I'll see if this keeps up. For those of you with 2% burden you have no idea what 22%. burden is like. Its freaking awful. I also had a 2% PVC burden which adds up to 1/4 of my heart beats are dysfunctional.

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