Long-Haul Covid and Asthma Diagnosis (anyone)?

Posted by otter2154 @otter2154, Sep 24, 2021

I was horribly sick for a several months last year (Nov, Dec and into Jan) with severe Covid-like symptoms. My PCP would not see me in person because of the Covid symptoms and only offered pep talks through video chat … so I suffered through it all at home. Finally got to a pulmo in Jan and after testing he immediately diagnosed me with moderate persistent asthma (I am 57).

Fast forward to today and I am doing much better. Still working with pulmo group and through addition testing they have ruled out COPD, Bronchiectasis, lung cancer, ILD’s, etc. And my current spirometry results show “stunning” improvement per my pulmo. So he remains adamant in his asthma diagnosis.

Now he agrees that I likely had severe Covid late last year and the asthma is my gift that keeps on giving from Covid. He also says that at this point it really doesn’t matter what triggered my asthma (Covid or whatever) because my lungs are fundamentally fine and suggests that it’s pointless to dwell on what might have caused this. Anyway, my asthma is seemingly improving, very slowly, over time … I have a few good days, and then a bad one where my chest tightens-up, breathing feels labored, and I produce sticky, white phlegm (annoying and tiring). Has anyone else received an asthma diagnosis post-Covid, and if so … do you see it improving over time?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 group.

@ellen307

Recoverying from Covid and Had infusion [ast week , still SOB and csome cough but doing better at least not in the hospital or ventilator Keep on plugging away

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Thank you Colleen. Takes time to fully recover 100%

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@ellen307

Thank you Colleen. Takes time to fully recover 100%

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Ellen, when first contracting COVID were you hospitalized and on a ventilator?

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@shmorri4424

I just found this group. I am scheduled for November 10th onsite visit to Rochester Mn. I am just reading back through the feed. Thank you. If anyone has been and could share some things learned even what didn't work and what it. How long should I plan for my 1st visit?
Thanks

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My visit was two days, a week apart. I had a bunch of blood work and tests for my lung function. In my case all the tests didn't really give the doctors anything to fix. I did see a physical therapist that was wonderful and gave me a lot of stretches. I was also instructed to start some form of exercise and slowly increase the amount that I do. While I was later told that walking is the best, I have been riding my bike in the house. I am anxious about getting outside and going too far and not being able to get back home. On the bike I add a minute every 10 days. I also attended the Post Covid Syndrome classes which were via Zoom. They were wonderful. They make it sound so easy – too easy. I was skeptical, but I followed the program and I am seeing improvement. I would suggest that if you have access to a pool for physical therapy to take advantage of that.

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@ldropps

My visit was two days, a week apart. I had a bunch of blood work and tests for my lung function. In my case all the tests didn't really give the doctors anything to fix. I did see a physical therapist that was wonderful and gave me a lot of stretches. I was also instructed to start some form of exercise and slowly increase the amount that I do. While I was later told that walking is the best, I have been riding my bike in the house. I am anxious about getting outside and going too far and not being able to get back home. On the bike I add a minute every 10 days. I also attended the Post Covid Syndrome classes which were via Zoom. They were wonderful. They make it sound so easy – too easy. I was skeptical, but I followed the program and I am seeing improvement. I would suggest that if you have access to a pool for physical therapy to take advantage of that.

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Thanks for you report – it is great to hear you are making progress.
As for your fear of walking too far, I have been through that when recovering from surgery and illness. My PT suggested walking in the house for 5 minutes to start, then increasing slowly. When I could confidently walk for 10 minutes, go outside and walk 5 minutes, then turn around and go home. At first I felt silly walking in the house, but it worked!
Sue

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@ldropps

My visit was two days, a week apart. I had a bunch of blood work and tests for my lung function. In my case all the tests didn't really give the doctors anything to fix. I did see a physical therapist that was wonderful and gave me a lot of stretches. I was also instructed to start some form of exercise and slowly increase the amount that I do. While I was later told that walking is the best, I have been riding my bike in the house. I am anxious about getting outside and going too far and not being able to get back home. On the bike I add a minute every 10 days. I also attended the Post Covid Syndrome classes which were via Zoom. They were wonderful. They make it sound so easy – too easy. I was skeptical, but I followed the program and I am seeing improvement. I would suggest that if you have access to a pool for physical therapy to take advantage of that.

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Thank you for sharing all of the information that you just did I really appreciate it

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Thank you for sharing your experience. I am very much struggling with post covid right now. It’s been 4 months since I was covid positive. I have been to the ER a few times since and plenty of Doctors and specialists. Nobody can find out what is wrong with me. My CT from my first ER visit looks fine and my spirometry test/diffusion tests were normal scores. I am currently on steroids expectorant and beta blocker inhaler. Along with some other meds and vitamins. Exhausted, I applied to the Mayo long haul clinic a few weeks ago and just found out I have been accepted for evaluation and treatment support. The wait list is a few months away. I’m am trying to stay positive and keep active as much as possible but I am beat down feeling most of the time. The stories that are shared here are helpful. I truly hope your recovery's are redeeming and graceful.

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@sueinmn

Wow! You found the right doc! You may want to ask about whether he thinks nebulizing sodium solution would help get the mucus out. When my congestion from asthma/bronchiectasis is bad, it is very helpful to do before I walk or exercise.
My spirometry results are always "within normal range" but it doesn't stop me from being short of breath when the mucus builds up. Another thing to discuss, especially as cold and flu season approaches, is whether using Mucinex LA (12 hour guaifenesin) twice a day would help. It is a mucolytic, and thins the mucus to make it easier to get rid of.

I am glad you are improving, Sue

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Hello, thank you for sharing your story. I am having similar symptoms but haven’t been diagnosed yet with anything particular. You have bronchiectasis and asthma? How do those two differentiate in symptoms as far as how they effect your day to day? I’m currently self diagnosing myself. If you don’t mind me asking, if not not it’s not a problem. Thank you for your time and God Bless.

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I had covid in August 2021 and have had the shortness of breath issues. My pulmonary doctor has run several test and I have finally been diagnosed with asthma from covid. On a scale of 1 to 4 I am at the high end of 3 and on 2 inhalers. I have a high heart rate, brain fog, and my eye sight has gotten worse. Has anyone else gotten the asthma? Thanks Fredia

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@fab66

I had covid in August 2021 and have had the shortness of breath issues. My pulmonary doctor has run several test and I have finally been diagnosed with asthma from covid. On a scale of 1 to 4 I am at the high end of 3 and on 2 inhalers. I have a high heart rate, brain fog, and my eye sight has gotten worse. Has anyone else gotten the asthma? Thanks Fredia

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Welcome, @fab66. You'll notice that I moved your question about post-COVID asthma to this existing discussion (https://connect.mayoclinic.org/discussion/long-haul-covid-and-asthma-diagnosis-anyone/) that @otter2154 started where they asked a very similar question "Has anyone else received an asthma diagnosis post-Covid, and if so … do you see it improving over time?"

I moved your question so that you can read through the past posts and connect with Otter, @baker00l @sueinmn @ellen307 @shmorri4424 @eric211 and others.

Fredia, are the inhalers helping?

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Hello! Yes, I had significant chest pain and shortness of breath 24/7 after COVID (June 2020). I was diagnosed with asthma one year post COVID (June 2021) and began using inhalers with good results. Diagnosis was revised to reactive airways at 18 months post COVID, but treatment is the same.
My asthma/reactive airways symptoms improved the first 2 months after beginning inhalers, but no further improvement has occurred in the last 6 months. I still require both the maintenance and rescue inhalers every day. I also have good days and then days with tons of phlegm and slight cough. Wondering why the phlegm increases. Anyone have any thoughts on that?

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@sueinmn

Full disclosure: I did not have Covid. However, I have asthma and bronchiectasis and had deeply seated, long time mycobacteria and pseudomonas lung infections that weren't diagnosed until June 2018, by which time I had diminished from an "energizer bunny" to a "couch potato" – I couldn't walk a block without pausing. Then I started 19 months of antibiotic therapy – using up to 4 antibiotics at the same time – needless to say, unpleasant although one infection resolved and the other improved, but the meds were killing me. Those were stopped in December 2019, and it took until April 2021 to feel like I was back to normal.
My takeaway – lung damage can heal, or lungs can learn to compensate, but it takes a VERY long time. And pushing may not work, so you need to listen closely to your body.

You can find a lot of help here: https://connect.mayoclinic.org/blog/post-covid-recovery/ Some of the videos there speak about using a very slow rate in exercise increase to be more successful. That is, throw out the old "10% increase every 10% days" mantra
Sue

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Hello, your story is very inspiring. Thank you and I’m glad to hear your feeling better. Did you have a lot of sputum discharge? I was wondering how they knew you had infection and how to treat it. I feel like I have a chest infection but my doctor doesn’t think so. I have burning, frequent pain, and phlegm that seems to be giving me congestion but doesn’t produce if I cough. It’s going on 2 months now for me and I have experienced savers fatigue in the meantime. Other then the antibiotics was there any other things that were helpful in your recovery? I’m looking for something to try because I’m struggling at the moment and waiting on a diagnosis/treatment option. Thank you for your time.

Best Regards,
Eric

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@colleenyoung

Welcome, @fab66. You'll notice that I moved your question about post-COVID asthma to this existing discussion (https://connect.mayoclinic.org/discussion/long-haul-covid-and-asthma-diagnosis-anyone/) that @otter2154 started where they asked a very similar question "Has anyone else received an asthma diagnosis post-Covid, and if so … do you see it improving over time?"

I moved your question so that you can read through the past posts and connect with Otter, @baker00l @sueinmn @ellen307 @shmorri4424 @eric211 and others.

Fredia, are the inhalers helping?

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The inhalers are helping some. I just hope the asthma is just short term.

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