What to expect at Mayo Clinic's Post COVID Treatment Program?

Posted by tknipp @tknipp, Sep 7 12:06pm

I just finished a week full of appointments in Mayo. I am post covid 10 months with pulmonary "Covid" fibrosis. I am scheduled for 2 Post COVID Treatment Programs this week and am unsure what they will entail? Does anyone know?

Hi @tknipp, good question. When you first come to Mayo Clinic’s Post COVID 19 Care Clinic, you begin by meeting with a provider who completes a thorough evaluation, including discussing your medical history and current symptoms, and doing a physical examination. We use the information learned during the evaluation to help develop a personal treatment plan.

Have you already done that with the full week of appointments you just had? May I ask which Mayo location you are at?

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Yes, I have done all of that and had an appointment with the nurse about PCCOC. I went to Rochester MN. Thank you so much for the info!

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I was told that I could not make an appt at this time for lupus/Ms symptoms. I have been going back snd forth to pcp, neurologist, retina specialist and others bit am still suffering from pain and numbness in back legs and feet .
I would like to get an appt at Mayo to try and get an answer

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@shirleyellis1936

I was told that I could not make an appt at this time for lupus/Ms symptoms. I have been going back snd forth to pcp, neurologist, retina specialist and others bit am still suffering from pain and numbness in back legs and feet .
I would like to get an appt at Mayo to try and get an answer

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Hi Shirley, To make an appointment at Mayo Clinic, you can self-refer (submit the appointment request yourself) or ask your physician to make a referral. Please see this webpage for contact information and frequently asked questions http://mayocl.in/1mtmR63

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@tknipp

Yes, I have done all of that and had an appointment with the nurse about PCCOC. I went to Rochester MN. Thank you so much for the info!

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Hi Tknipp, how are you doing?

Here's a video with Dr. Ganesh about the PCCOC (Post-COVID Care Clinic Treatment Program)

I suspect the nurse already shared this with you. Have you started the program now?

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@colleenyoung

Hi Tknipp, how are you doing?

Here's a video with Dr. Ganesh about the PCCOC (Post-COVID Care Clinic Treatment Program)

I suspect the nurse already shared this with you. Have you started the program now?

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No I hadn't seen the video. Very informative! I met with a nurse 2 days ago and start the two classes next week!

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@tknipp

No I hadn't seen the video. Very informative! I met with a nurse 2 days ago and start the two classes next week!

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Here's more information about what you can expect at the classes next week and beyond.

You will take part in 2 small group sessions virtually with a nurse, healthy living program staff, and other participants who have post-COVID syndrome. There are 4 hour-long sessions on each day. You'll learn about post-COVID syndrome and how to manage symptoms, as well as be able to share your experiences with each other.

At the end of the 2 days, you will be connected with a Wellness Coach for one-on-one coaching sessions for 12 weeks. A nurse will also stay connected with you for virtual follow up visits alongside the coaching sessions.

I'll be very interested to hear your experiences with the program. I hope you'll return to tell others. Please let fellow participants know that they can also continue to connect with you and others here on Mayo Clinic Connect's Post-COVID Recovery support group.

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What are the requirements for getting an appt at post COVID clinic? Specifically neurological issues?

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@srmorrison

What are the requirements for getting an appt at post COVID clinic? Specifically neurological issues?

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@srmorrison you will notice that I have moved your post into an existing discussion on Mayo Clinic's Post-Covid Treatment Program so you may connect with other members interested in the program as well such as @tknipp

The link below should provide you with a wealth of information on the program/clinic and what you can expect.

– Post-Covid Recovery Blog:
https://connect.mayoclinic.org/blog/post-covid-recovery/tab/next-steps/
What are the main symptoms that are driving your interest in this program?

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Dx with Covid July 2021, flu like symptoms, burning from inside out, fatigue, then vertigo. out 3 weeks. August was fine. September had uti, then same symptoms of Covid but worse and more severe and now its been one month, cant get better, all labs are WNL, urine samples are good after ABX, due to my age we checked FSH/TSH and they are normal, i feel horrible, currently being prescribed steroids high dose for 6 days, no help after 1st night last night, hopefully in 5 days i'm better, but this is awful! My doctor recommended i reach out to find help with post covid groups and specialists. help! thank you, Jodi

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@amandajro

@srmorrison you will notice that I have moved your post into an existing discussion on Mayo Clinic's Post-Covid Treatment Program so you may connect with other members interested in the program as well such as @tknipp

The link below should provide you with a wealth of information on the program/clinic and what you can expect.

– Post-Covid Recovery Blog:
https://connect.mayoclinic.org/blog/post-covid-recovery/tab/next-steps/
What are the main symptoms that are driving your interest in this program?

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We received our call to hopefully get husband into post Covid clinic but after answering all questions were told no appointments avayand to call back in February 😥 Hope he’s better by then.

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@ps1947

We received our call to hopefully get husband into post Covid clinic but after answering all questions were told no appointments avayand to call back in February 😥 Hope he’s better by then.

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How frustrating to get that news! Did they have any suggestions for things you can do at home while waiting?
Sue

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