Living with Neuropathy - Welcome to the group

I'm so glad you finally got some relief! Thank you

Hi @kskill39, I noticed you haven't posted in awhile and was just wondering how you are doing with your feet and toes in particular. You mentioned they hurt with or without socks. I have a few hammer toes on each foot and sometimes the toenails seem to dig in and cause a little pain. I try to keep them trimmed but it can be difficult. Before I had to start wearing compression socks I found some really soft socks made from bamboo fiber that were really comfortable and seemed to make my feet feel much better.

Are you still having pain with your toes?

Thank you.

@kwfinnie @fredamm I wish a medication could be found to relieve the pain in my feet and ankles. Actually, instead of 7-9 pain pre IVig, I don't really notice the pain. It's there, and some things trigger it, like standing still, driving and sitting down, which seems kinda weird, but after sitting for a while, the pain decreases.

I do have balance problems, and sometimes I get dizzy. If I don't take action, I'd pass out. The balance tends to be when I stand up and turn. And I'd be in trouble if I had to do a sobriety test like you see on Cops. I have at this point mild autonomic neuropathy.

Some of the balance and dizziness could be related to my heart. I recently did a 7 day monitor, and it registered 1620 SVT episodes, the longest one lasting 26 minutes. It's a condition that causes tachycardia.

Time to have our nightly couples devotion, so I need to stop. The Lord bless you, as well.

Jim

I have a Hair salon. A lady came in saying she had Prenthial Nerapthy. Her feet hurt so bad. She also could not sleep. I told her my sister takes an old anti-depressant to sleep! This lady asked her Doc for Elivil..like my sister takes. Now her FEET DON"T HURT! So another lady came in, the same problem! I told her! She got the old anti-depressant Elivil from her Doc! Now her feet don't hurt! Just saying!!!!!

This Neuropathy is pretty interesting. In many ways it is elusive. I do take duloxetine (Cymbalta ) plus the pregabilin. Most of the time it relieves a good amount of the pain. Then, for some reason, can't pinpoint it, it will flare up. I try all the tricks mentioned in this sharing column. I even walked in the snow to cool off my feet. It felt good. As was said, standing still is the killer.
Good luck everyone. Stay calm and carry on. 🙂

The generic name for Elavil is amitriptyline. Neurologists commonly prescribe it for pain control in PN. It is what I take. I couldn't tolerate gabapentin or Lyrica. They affected my mood.

My pain management Dr put me on amitriptyline, for radiating nerve pain. What are some of the side effects of this drug over long term?

Hi @saylor479, Here's some information I found on side effects of Amitriptyline.

"Amitriptyline is safe to take for a long time. There do not seem to be any lasting harmful effects from taking it for many months or years." --- Amitriptyline: an antidepressant medicine - NHS: https://www.nhs.uk/medicines/amitriptyline-for-depression/

Neuropathy and Acupucture. Has anyone had success with it?