Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for saylor479 @saylor479

My pain management Dr put me on amitriptyline, for radiating nerve pain. What are some of the side effects of this drug over long term?

Jump to this post

Hi @saylor479, Here's some information I found on side effects of Amitriptyline.

"Amitriptyline is safe to take for a long time. There do not seem to be any lasting harmful effects from taking it for many months or years." --- Amitriptyline: an antidepressant medicine - NHS: https://www.nhs.uk/medicines/amitriptyline-for-depression/

REPLY

Neuropathy and Acupucture. Has anyone had success with it?

REPLY
Profile picture for suzirtist @suzirtist

Neuropathy and Acupucture. Has anyone had success with it?

Jump to this post

I tried acupuncture with no success.

REPLY
Profile picture for preknight @preknight

I tried acupuncture with no success.

Jump to this post

Me too! Nothing has worked and I am miserable wiith constant foot and leg pain..like being at a campsite with my feet and legs in the fire---continuous!!!!!! Is there ANYTHING that would help? No balance either.....

REPLY
Profile picture for madgemgunia @madgemgunia

Me too! Nothing has worked and I am miserable wiith constant foot and leg pain..like being at a campsite with my feet and legs in the fire---continuous!!!!!! Is there ANYTHING that would help? No balance either.....

Jump to this post

I only have pain in one foot. Hurts all day long. I take clonazepam to help me sleep each night. I have spent thousands of dollars trying to find relief...without results. I also have balance issues. The disease seems to be progressing.

REPLY

@suzirtist, @preknight and @madgemgunia, It sounds like you have similar neuropathy symptoms and haven't found anything that helps yet. I'm wondering if reading what other members have shared in this discussion might be helpful.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

The Foundation for Peripheral Neuropathy also has a lot of different alternative treatments that might be helpful if you haven't already tried them -- https://www.foundationforpn.org/treatments/

REPLY
Profile picture for suzirtist @suzirtist

Neuropathy and Acupucture. Has anyone had success with it?

Jump to this post

I had 20 treatments with no success.

REPLY
Profile picture for suzirtist @suzirtist

Neuropathy and Acupucture. Has anyone had success with it?

Jump to this post

No success with accupuncture, but have had more success at improving balance from chiropractor.

REPLY

Has anyone tried Vicks rub to relieve neuropathy?

REPLY
Profile picture for swanny58 @swanny58

Has anyone tried Vicks rub to relieve neuropathy?

Jump to this post

I use it daily as it takes the edge off. My symptoms are mostly numbness and tingling. First I massage in Aquaphor cream followed by the Vicks. The massage helps me, too.

REPLY
Please sign in or register to post a reply.