Living with High-Risk C-Diff and Preventing Re-Infection
My name is Renee or Faithwalker007 for those who may have met me in the Chronic Pain, Neuropathy, Addiction, and other groups having to do with CRPS type 2. I am a chronic C. Difficile patient with 5 cases of C. difficile infectious colitis under my belt. The antibiotic that I’m at now to treat it is Vancomycin. I’m at the stage of recovered, but HIGH-RISK. I guess at any time another flare can hit depending on the circumstances— hospital visit, exposure to community source (the initial cause,) illness requiring antibiotic treatment, etc.
My main issue is persuading OTHERS like nurses, doctors… to exercise PREVENTION MEASURES if I need any procedures which was a contributive cause to my last and worst case.
Does anyone else have problems like this? I have nobody to talk to about this. The subject is awkward since c diff is not exactly considered a subject for dinner time or casual conversation.